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Author Topic: New Fistula  (Read 12601 times)
natnnnat
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WWW
« Reply #25 on: November 18, 2012, 09:17:53 PM »
Gah.   :P
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
AnnieB
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« Reply #26 on: November 19, 2012, 11:16:45 AM »
Hope this one works out :thumbup;  Can't be fun to have to keep going back for more surgery. I'll keep you in my prayers that this one will do the trick.

Anne
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Wat76
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This Too Shall Pass
« Reply #27 on: November 19, 2012, 12:57:53 PM »
I had 3 fistula surgeries and a graft and neither of them work. I will  have my PD surgery on the 11th, hoping all goes well with that.  Wishing you the best and hoping it works for you this time.
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PKD: PD started in February 2011.
Live, Laugh and Love daily.
KidneySinger
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« Reply #28 on: November 22, 2012, 11:10:51 AM »
I am on my third attempt and it was successful - so hang in there.  It really has not been that painful - I have not had to use any pain meds.  Mine is under my muscle very deep just above my elbow.  They will have to move it a month before I start dialysis so it is accessible - but I can feel it very strong every day.  Good Luck!
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3rd generation of Alports Syndrome: 1st generation: 4 uncles died in 20's - next generation: 2 uncles transplanted at 40, 1 died from cancer as result of rejection medication, other still alive at 65 with 20+ year transplant from sister (a carrier of Alports) but mulitple cancer surgeries through the years...looks like he is 85 years old.
1961: Blood and Protien in urine since birth
Doctors telling me kidneys would fail - every year for 50 years now! No hearing loss, just ringing
(Really think ace inhibitors and beta blockers since high school helped my surprising longevity - if you are NOT on an ace inhibitor, please ask your doctor why)
2012: GFR: 18 at present - on transplant list but they are going to have to convice me after seeing my uncles.
Preparing for dialysis
Younger brother on dialysis now for 2 years
Fistula Surgery at Mayo Clinic: failed
Going in for 2nd attempt at a fistula with different doctor - different vein
9/7/12 2nd attempt at fistula - WORKING! Mayo ruined 2 veins and St Vincents got one working!
Need additional surgery when fistual matures to bring closer to the skin.
GFR 17 - so plenty of time
WOW...just when I thought I had plenty of time - my GFR dropped to 13 in a month - guess I better get that fistula moved forward.
Moved it forward and have a thriving...thrilling fistual...BUT
Just when I did all that, I decided to go the PD route...so glad I did.
Now do PD every night and all seems to be going very well...for about a year.
Now on hemo dialysis at Mayo Clinic Jacksonville
Every Mon Wed and Friday for 4 hours at 400 pump speed.
Its really not that bad.....
Fatkidney
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« Reply #29 on: November 28, 2012, 05:24:01 PM »
Fistula number 3 has been placed and there's a nice strong thrill. Yay!  They kept me at the hospital overnight this time since it was a little more intense, four incisions.  It's pretty Frankenstein looking.  When they came in to do vein mapping before the surgery the veins were a bit smaller than we'd been hoping for. So the surgeon asked if he could go ahead and put a graft in if the vein wouldn't dilate big enough when he got in there.  I gave him permission to do that, but he thought it was dilating nicely so no graft.  Really feel good about this one.  Thank you all for your well wishes.  It's much appreciated!
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June 2004 diagnosed with PKD
April 2012 Listed for transplant
November 2012 3rd and finally successful fistula placement, left basilic vein. Yay, it worked!
GFR down to 10.
Deceased donor transplant August 24, 2013.  Perfect match. So far so good!
cassandra
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When all else fails run in circles, shout loudly
« Reply #30 on: November 29, 2012, 02:15:19 PM »
Congrats Fatkidney, nice to hear positive news.

love Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
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