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Author Topic: Low Pth and high calcium - what to do?  (Read 2754 times)
cattlekid
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« on: October 05, 2012, 10:18:19 AM »

Just got my labs from October. Pth is down to 110 and calcium is up to 10.4. I am currently on 2 phoslo with each meal and one Renvela. I know my dietitian will tell me to switch to one phoslo and two Renvela, which is fine. But I am wondering if this is the sign of something else that I should have checked out.

Any thoughts or advice would be appreciated. I see a lot about high pth but not a lot about low.
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Desert Dancer
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« Reply #1 on: October 05, 2012, 10:22:35 AM »

My calcium is 11.1 and my PTH is six. Yes, six. Low PTH is just as bad as high.

We've lowered my dose of calcitriol but unfortunately it seems to have brought on a corresponding drop in BP. I don't know what else they can do to raise PTH without lowering my calcium. I sure will be interested in any responses you get.
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
Willis
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« Reply #2 on: October 05, 2012, 11:06:32 AM »

I have the same issue. About 6 months ago I was switched to Fosrenol as my phosphorus binder and it has helped a lot to keep my calcium and phosphorus levels under control.

 
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Ricksters
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« Reply #3 on: October 08, 2012, 05:08:49 PM »

They changed me from phoslo to renvela a few months ago when my calcium was 10.2  I take 2 renvela with meals, my Friday labs came back 9.6, still a lttle on the high side bu I am blaming the cottage cheese.


Smiles,

Ricki
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cattlekid
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« Reply #4 on: October 11, 2012, 10:17:31 AM »

So I talked to my dietitian yesterday.  She said that my PTH level (110) is normal for those who are not in kidney failure.  I do not take Calcitrol so there is nothing to change there.  She said that the most important thing to get under control is the calcium level.  So we agreed that I will be continuing on the 2 Renvela/1 Phoslo combination for the time being and see how that goes.  My fear is that I might have to scrap the PhosLo entirely and go to more Renvela, which will be extra costly as right now I'm just in the sweet spot to use the prescription assistance card and get the Renvela for $5 per month. 
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