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Author Topic: How much can you do after fistula surgery? Can you travel?  (Read 10324 times)
natnnnat
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« on: July 09, 2012, 03:31:05 AM »
Fistulaed folk:  How fast did your fistula heal, and how sore was it after the surgery?  Reason I ask is that we want to travel soon after Gregory's fistula surgery.
We wanted to go overseas in September, and its a sad probability that he might not make it.  Nephrologists have expressly said "do not go overseas".  But they don't mind if we travel on this continent. 
Gregory is getting his next fistula on July 16th, in his right wrist (he's right handed).  So he has to have three weeks off work.  So we may as well go traveling to make sure he has many good memories and some satisfaction before he's attached to a machine. 

His last fistula surgery was so long ago that he doesn't remember much about the recovery.  26 years ago? 
We figure, it will be like he has a really big cut on his arm.  So if he rests and sits about, and me and his father do all the luggage and I do all the driving, surely he can
1. get on a plane
2. sit in a taxi
3. rest in a nice holiday house for several days;  go on occasional drives (looking out the window)
4. get on a train.

wadderyer reckon?
He is sitting at eGFR 10 creatnine 550.
« Last Edit: July 09, 2012, 03:33:23 AM by natnnnat » Logged
Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
natnnnat
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« Reply #1 on: July 09, 2012, 03:35:42 AM »
I should also say: 
fistula surgery is 16th July.  We hope to get on the first plane on 20th July, four days later.
« Last Edit: July 09, 2012, 03:39:27 AM by natnnnat » Logged
Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
Grumpy-1
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« Reply #2 on: July 09, 2012, 04:50:43 AM »
my fistula surgeries where done on a Friday mornings.  Home mid afternoon.  Took the weekend just laying about and coming off the pain meds and such. I was back to work on the next Monday.    I would say that traveling on the 20th is no issue.  You would know between the 16th and the 20th if there was any infection building and could take care of it.  Just make sure you protect it from dirty, water, and germs as much as possible.  Don't lift anything - more to do with pulling stitches out than anything else.   Grumpy
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Make me the person my dog thinks I am
cassandra
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« Reply #3 on: July 09, 2012, 06:27:26 AM »
Yup I would think that too. Sounds like a lovely idea. Just don't go swimming, or deepsea fishing I think. And Gregory will not be able to all the carrying of heavy, middle heavy, and light suitcases with his fistula-arm.
All the best with the surgery.

good luck, and love Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
MooseMom
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« Reply #4 on: July 09, 2012, 10:33:17 AM »
My fistula surgery was no big deal.  The only restriction I had was not to lift anything and to generally protect that arm, but that's just common sense stuff.  Make sure he has adequate pain killers for the trip.  I never took any narcotic painkillers after surgery, but the occasional Tylenol was helpful.

Have a wonderful time!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
jbeany
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« Reply #5 on: July 09, 2012, 03:03:16 PM »
The surgeon damaged a nerve with one of mine, and I was miserable.  The ones after that, it didn't bother me much at all.  If surgery goes as normal and expected, there's no reason he can't take a leisurely trip.
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Rain
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« Reply #6 on: July 09, 2012, 04:09:29 PM »
I was out of work for a week with mine since i had to keep it elevated to reduce swelling. 

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1988  Diagnosed with reflux and kidney damage
2006-  Diagnosed with Renal Failure and start dialysis in centre with catheter
2007- Fistula created and in centre hemo with fistula
2012- Fistula clotted and central line inserted
May 2014- Received Kidney from deceased donor
jbeany
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« Reply #7 on: July 09, 2012, 04:48:03 PM »
Yes, bring lots of small pillows for propping!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
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