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| | |-+  Anemia, how do I hate you? Let me count the ways.
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Author Topic: Anemia, how do I hate you? Let me count the ways.  (Read 1972 times)
Big E
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« on: July 03, 2012, 04:08:54 PM »

I haven't had any epo lately and I really feel it. When my hg is low I get so cranky and irritable, probably because I feel like I'm just dragging myself around and it's frustrating.  A few weeks ago my hg went up to 12.9 and I felt so great, as if I were perfectly healthy!  I'd almost rather take the risk of getting more epo than the guidelines allow, just to feel normal again.

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PKD diagnosed June 1996
Started in-center hemodialysis May 2010
Joe
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« Reply #1 on: July 03, 2012, 04:36:25 PM »

My Hg went down to 10.2 at my last labs. My Neph has put me back on Epo with a monthly injection. We'll see how it works.
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Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
Rerun
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Going through life tied to a chair!

« Reply #2 on: July 04, 2012, 04:27:54 AM »

I like my hg to be at 11.  To much and I'm thinking my fistula would clot.  I hate fistula problems.

 :waving;
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Zach
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"Still crazy after all these years."

« Reply #3 on: July 04, 2012, 04:53:16 AM »

Make sure you take your folic acid.

8)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
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