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Author Topic: just updating been awhile no computer  (Read 2359 times)
gothiclovemonkey
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« on: July 07, 2012, 09:59:50 PM »
Hi I'm alive!
I tried to do Pd it didn't work they think I'm allergic to the tubing. I was in the hospital for a week for infection,I've. Got a gnarly tube for draining. Ew
I'm back on hemp booooo
I'm totally in love with my bf and we are all doing well. We just got back from a huge convention and film fest in ky and a week from today we are goingto a cubs game. We won tickets for rooftop Vip. Woot
life is good.... life is life lol
I've. Had a few roamers this month but some uppers too so I cant complain.


Does anyone know how much it costs to get treatment in Vegas? On Medicare?
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
TX listed 8/1/11 inactive
LISTED ACTIVE! 11/14/11 !!!
billybags
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« Reply #1 on: July 08, 2012, 03:06:42 AM »
Goth, lovely to hear from you. You sound so positive now,, I am glad things are going your way. Pity about the PD though. You take care and continue having those little breaks, does you good.
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Traveller1947
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« Reply #2 on: July 08, 2012, 04:12:08 AM »
We've missed you, goth.  Glad you're back!
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MooseMom
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« Reply #3 on: July 08, 2012, 06:06:29 AM »
Oh wow, I was thinking about you yesterday, thinking about how I hadn't seen you on IHD for a while, and here you are!!!  Glad you are OK.  VIP rooftop seats to a Cubs game?  You lucky girl!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
gothiclovemonkey
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« Reply #4 on: July 08, 2012, 09:29:11 AM »
I've missed this site. Just got a computer but I haven't had a chance to set it up I figure ifido I wont get much unpacking done. Wont be long though and ill be back on here regularly

Yes very lucky! I'm not a huge bball fan but my bf is a fan of both the teams playing lol

He is one of my reason for being positive. Hes so sweet and supportive. On my first day back on hemo he got me a beautiful diamond skull necklace :) ya I'm spoiler lol
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
TX listed 8/1/11 inactive
LISTED ACTIVE! 11/14/11 !!!
cassandra
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When all else fails run in circles, shout loudly
« Reply #5 on: July 08, 2012, 02:39:06 PM »
So glad to hear you are happy. Lovely

love Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Chris
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WWW
« Reply #6 on: July 08, 2012, 08:10:39 PM »
Sorry to hear goth. To bad I'm in NY right now or I'd meet you up in Chicago for a bit for a really really small IHD meet  :rofl;
 
Stay Well
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Whamo
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« Reply #7 on: July 09, 2012, 05:04:26 AM »
I'm glad to hear you and your boyfriend are in love.  Love makes life bearable.   :clap; :clap; :clap; :2thumbsup; :yahoo;
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gothiclovemonkey
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« Reply #8 on: July 09, 2012, 06:50:22 AM »
That would have been awesome Chris!
Yes his love and support do make this easier in some ways, sometimes harder lol
ugh typing on a kindle is very time consumming I cant wait to hook my computer up
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
TX listed 8/1/11 inactive
LISTED ACTIVE! 11/14/11 !!!
lmunchkin
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"There Is No Place Like Home!"
« Reply #9 on: July 09, 2012, 11:50:00 AM »
Welcome back GLM!
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
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