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Author Topic: Will Disabiltie decrease when 65 yrs is reached  (Read 4123 times)
lmunchkin
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"There Is No Place Like Home!"

« on: June 04, 2012, 03:03:05 PM »

John has been recieving Disability check for a little over a year now.  My question is will it drop down when he reaches age 65 next year?  They send a summary out showing what you receive of Social Security (65)  and what you recieve if disabled.  I would think not, but then Ive been surprised by some things with regard to Federal Govt.

I know he would still be working had it not been for ESRD past age 65.  The extra money every month DOES MAKE A DIFFERENCE!!!!!!

God Bless,
lmunchkin
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
boswife
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us and fam easter 2013

« Reply #1 on: June 04, 2012, 03:28:20 PM »

ya know munch... I worried about that too as i was told that yes it does decrease. Im guessing different states are different, but i didnt see a change when hubby came to that age. I know i was watching for it, but i know i was also destracted with carring for mom and hubby and loosing my mind bout then, but im pretty sure that i would have caught that.  I sure hope not though for your sake.   :cuddle;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
lmunchkin
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"There Is No Place Like Home!"

« Reply #2 on: June 04, 2012, 04:10:05 PM »

You are a good person Boswife.  You care so deeply and I admire that about you.

Well Im thinking it won't, cause he would still be working past age of 65 had it not been for ESRD. I know he has enough credits because he has been paying Social Security for years.  It would be a shock if they dropped his monthly premium because he is 65.  The man has worked his ass off for many years and that would be a "slap" in his face and a downright disgrace IMO!

But it would not surprise me in this given economy.

lmunchkin :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
smcd23
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The patient, the baby and the donor - October 2010

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« Reply #3 on: June 04, 2012, 06:28:12 PM »

No, it will not decrease at age 65 (actually 66 since that's most peoples full retirement age now). The way I explain it to folks is that by taking disability, you are essentially taking your full retirement benefit early. So you get the highest possible amount because you're disabled, and it will not change so long as you are still disabled. The only reason some folks see a decrease is because of Medicare. But if you're on disability for ESRD, chances are the medicare is already coming out.
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Caregiver to Husband with ESRD.

1995 - Diagnosed with vesicoureteral reflux and had surgery to repair at age 11. Post surgery left side still had Stage I VUR, right side was okay. Both sides were underdeveloped.
2005 - Discovered renal function was declining, causing HBP. Regular monitoring began.

March 2008 - Started transplant evaluation for preemptive transplant due to declining function.

September 16, 2008 - Transplanted with my kidney.
September 18, 2008 - Kidney was removed due to thrombosis in the vessels in and leading to the kidney.

October 2008 - Listed in Region I

May 2009 - Started in Center Hemo
January 2010 - Started CCPD on Liberty Cycler

June 15, 2012 - Kidney transplant from a 43 year old deceased donor
June 22, 2012 - Major acute rejection episode and hospitalization began
June 27, 2012 - Nephrectomy to remove kidney after complete HLA antibody rejection. Possibly not eligible for another transplant, ever again.

Now what?
Chris
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« Reply #4 on: June 04, 2012, 10:00:08 PM »

I was told it does decreaseby a rep from social security at a seminar I went to a couple years ago. He said it would go down to $685 or 600 something. I had notes, but do not know what I did with them. Either way it sounds like I'm screwed if I live that long and need an apartment.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
smcd23
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The patient, the baby and the donor - October 2010

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« Reply #5 on: June 05, 2012, 05:22:53 PM »

Chris it shouldn't go down at all! I work for SSA and unless I've been doing it wrong for almost 10 years the only reason it would decrease at 65 would be the Medicare deduction, but if you already have Medicare coming out, then it would remain the same.
Logged

Caregiver to Husband with ESRD.

1995 - Diagnosed with vesicoureteral reflux and had surgery to repair at age 11. Post surgery left side still had Stage I VUR, right side was okay. Both sides were underdeveloped.
2005 - Discovered renal function was declining, causing HBP. Regular monitoring began.

March 2008 - Started transplant evaluation for preemptive transplant due to declining function.

September 16, 2008 - Transplanted with my kidney.
September 18, 2008 - Kidney was removed due to thrombosis in the vessels in and leading to the kidney.

October 2008 - Listed in Region I

May 2009 - Started in Center Hemo
January 2010 - Started CCPD on Liberty Cycler

June 15, 2012 - Kidney transplant from a 43 year old deceased donor
June 22, 2012 - Major acute rejection episode and hospitalization began
June 27, 2012 - Nephrectomy to remove kidney after complete HLA antibody rejection. Possibly not eligible for another transplant, ever again.

Now what?
Chris
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« Reply #6 on: June 05, 2012, 06:22:53 PM »

It's not the first tme I was given wrong answers by a rep from the local office, but learned that if 4 out of 5 dentist agree, forget about what dentist #5 said!
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
smcd23
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Gender: Female
Posts: 528


The patient, the baby and the donor - October 2010

WWW
« Reply #7 on: June 05, 2012, 08:37:52 PM »

Sadly, a lot of times wrong info is given - not that it's entirely wrong, but it's not the right information for every situation. As we all know, people with ESRD are a special group so a lot of SSA rules are different for ESRD patients than regular folks. Trust me, I hear all sorts of strange things on a daily basis!

But I can assure everyone that there is no rule or rules that will reduce someones Disability when they reach retirement age. Think of disability as taking your full retirement early because you're disabled. The only thing that can change that is if you willingly switch from disability to retirement (and there are few situations where you'd want to do this, or where it would be beneficial, but those situations are NOT the norm and I'd say 99% of people here would not benefit) or if for some reason you were not on Medicare and you elected to take it based on age at 65 - then your benefits would be reduced by the Part B premium amount.
Logged

Caregiver to Husband with ESRD.

1995 - Diagnosed with vesicoureteral reflux and had surgery to repair at age 11. Post surgery left side still had Stage I VUR, right side was okay. Both sides were underdeveloped.
2005 - Discovered renal function was declining, causing HBP. Regular monitoring began.

March 2008 - Started transplant evaluation for preemptive transplant due to declining function.

September 16, 2008 - Transplanted with my kidney.
September 18, 2008 - Kidney was removed due to thrombosis in the vessels in and leading to the kidney.

October 2008 - Listed in Region I

May 2009 - Started in Center Hemo
January 2010 - Started CCPD on Liberty Cycler

June 15, 2012 - Kidney transplant from a 43 year old deceased donor
June 22, 2012 - Major acute rejection episode and hospitalization began
June 27, 2012 - Nephrectomy to remove kidney after complete HLA antibody rejection. Possibly not eligible for another transplant, ever again.

Now what?
lmunchkin
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*****
Offline Offline

Gender: Female
Posts: 2471

"There Is No Place Like Home!"

« Reply #8 on: June 22, 2012, 06:06:29 PM »

Thanks yall for your thoughts.  I had his SW check on it for us, and Smcd, you are right.  It will not go down when he reaches 65.  When it comes to Fed govt, any thing can change on a fly!!!  At least for now, it will remain!

Again, thanks all,
lmunchkin :kickstart;
Logged

11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
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