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Author Topic: no big improvement  (Read 2293 times)
brenda seal
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« on: June 06, 2012, 07:21:55 AM »
Well , Laurie has been home from hospital for two weeks now and has had 10 hours dialysis every day . He had blood tests yesterday and the nurse rang today with results - his creatinine is still high -six hundred and something and phosphorous high also . He is not improving as well as we expected and apart from going to see the doctor last week he has hardly gone past the bathroom . He has walked to the letter box once or twice and that is about it . His appetite is still very poor , it is his birthday tomorrow and I was hoping to take him out for dinner but he is just not up for it .
I am starting to get worried now . Is this as good as it gets ? I read on here about everyone getting on with their life and some of you even able to keep working . It is just not happening here . Any insight on what could be going on ?
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Whamo
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« Reply #1 on: June 06, 2012, 07:55:33 AM »
Ten hours a day of dialysis?  My heart goes out to you.  That's tough. :grouphug; :stressed;
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Zach
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"Still crazy after all these years."
« Reply #2 on: June 06, 2012, 08:13:16 AM »
Quote from: brenda seal on June 06, 2012, 07:21:55 AM

Well , Laurie has been home from hospital for two weeks now and has had 10 hours dialysis every day . He had blood tests yesterday and the nurse rang today with results - his creatinine is still high -six hundred and something and phosphorous high also .


He may need to switch over to hemodialysis from PD.

 :cuddle;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
jeannea
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« Reply #3 on: June 06, 2012, 10:23:39 AM »
That sounds so hard. I would also ask the doc what his albumin level is. If that's really low he will feel like crap. I'm sorry he's not feeling better.
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SugarBear
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« Reply #4 on: June 06, 2012, 10:45:04 AM »
I've done 10 hours a night with nocturnal home hemo, usually did about 8 hours, but I had great numbers because of it.  Something is definitively wrong and I would be very concern.  Is PD less effective than hemo?  I don't know much about PD, couldn't do it because my BMI was too high and I was told I would not get effective cleaning.
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Xbox GT: ShonumShogun

CKD due to FSGS 1999
Drop from Stage 4 to Stage 2 ESRD 2000
ESRD 2005
Started Dialysis September 13, 2006
Short Daily Home Hemo March 2009
Back to In-Center Hemo August 2009 (Too Many Hours)
Nocturnal Home Hemo with Remote Viewers  May 2010
Received Transplant March 1, 2012
Transplant Failed in October 2017
Nocturnal Home Hemo with Remote Viewers December 2017
MaryD
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« Reply #5 on: June 06, 2012, 05:26:49 PM »
Is Laurie on a phosphate binder?  Renagel or such?
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Traveller1947
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« Reply #6 on: June 07, 2012, 04:03:03 AM »
Something isn't right here.  I think it's time to switch to hemodialysis.
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