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Author Topic: I freaked out today (thats nothing new!)  (Read 3145 times)
frankswife
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« on: June 09, 2012, 07:05:55 PM »

Frank had some kind of an "episode" today. Dont know how else to describe it. He had taken a 5 mile walk, and then about 2 hours later he said he didn't feel good, that his legs hurt. Then he threw up. I'm thinking OMG, it's dialysis time. I wanted to bring him right to the ER but he refused. He took a nap and felt better when he got up. I'm hoping it was just from that walk. I hate when he gets it into his head to do stuff like that. GRRR! Thanks for letting me rant :rant;
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"If we all abandon our posts, who then will stand?" St. Augustine
boswife
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us and fam easter 2013

« Reply #1 on: June 09, 2012, 08:54:25 PM »

oh boy frankswife, im sorry for your worries,,,,, i know all about them :(  This stuff is so hard on them, but i really believe that its as hard on us.  I've said many times here before that i sometimes wonder who will 'go' first..him or me.  im so stressed at times that it just plane hurts..  I hope that all will be fine and tomorrow brings you both stability ....   :cuddle;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
bleija
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« Reply #2 on: June 09, 2012, 09:06:05 PM »

i wouldnt worry about trying to decide when its dialysis time, let his labs decide... if u keep stressing it its as bad as actually being on dialysis enjoy the freedom and try to prolong what kidney function he has left
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natnnnat
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« Reply #3 on: June 10, 2012, 12:15:34 AM »

I freaked out the other day when Gregory's potassium was high for the first time.  Tears, overwhelmed, etc.  Sometimes the wheels fall off - mine do anyway.  Later I was reminded that we don't worry about individual readings, we worry about trends.   Good.  Waiting to see what the next labs look like.  Meanwhile, returning to your man, who came good;  hopefully those kinds of things will only happen 'now and again' for awhile longer.  Frank knew to wait and see, they learn that, don't they, and when you give the body a bit of time to rest things straighten out. 
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
MooseMom
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« Reply #4 on: June 10, 2012, 03:15:48 AM »

I may be oversimplifying things, but it seems to me that if Frank can walk five miles, he's not ready for dialysis just yet.

And natnnat, you're right to look for trends and not focus overly much on onetime lab results.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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