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Author Topic: transplant  (Read 1798 times)
mel75
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"I am what I am"

« on: May 21, 2012, 01:57:07 PM »

 :rant;    OK so I received a certified letter telling me I had 90 days to get an aftercare plan or they will take me off the UNOS list, how can they do that? I am sorry that I don't qualify for medi-cal, and I am losing my student insurance at the end of June. What would they like me to do? They want me to have at least $10,000 in an account for my medication for my post transplant. This is the thing I don't have a living donor, they wont test my 19 year old daughter until I do have an aftercare plan and I have been on the UNOS list since 2007. So what are the chances of anytime soon getting a transplant? who knows I hate Loma Linda Transplant center, They don't treat you very well to begin with and now they are taking me off the list? Go for it! I cannot get ten thousand dollars in 90 days so WHATEVER!!!! :banghead;  :banghead;  :banghead;  :banghead;


Edited: Fixed smiley error- paris, Moderator
« Last Edit: May 21, 2012, 06:19:51 PM by paris » Logged

*~Mel~*
jeannea
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« Reply #1 on: May 21, 2012, 03:25:04 PM »

I'm confused. Do you have Medicare yet? If you have Part A and Part B, you can buy Parts C and D which will make them happy. Talk to your social worker for help getting everything in place.
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smcd23
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The patient, the baby and the donor - October 2010

WWW
« Reply #2 on: May 21, 2012, 07:31:44 PM »

I am going to assume to assume you have Medicare and only Medicare. The transplant center my SO is currently listed at doesn't feel Medicare is adequate insurance. And even though we've told them our aftercare plan a dozen times, they still have had him on status 7 hold for over a year. We have over $50k in our combined retirements that we could touch, and we could marry and he could get on my insurance immediately. But apparently that is not enough proof for them.

Why don't you qualify for Medi-cal?
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Caregiver to Husband with ESRD.

1995 - Diagnosed with vesicoureteral reflux and had surgery to repair at age 11. Post surgery left side still had Stage I VUR, right side was okay. Both sides were underdeveloped.
2005 - Discovered renal function was declining, causing HBP. Regular monitoring began.

March 2008 - Started transplant evaluation for preemptive transplant due to declining function.

September 16, 2008 - Transplanted with my kidney.
September 18, 2008 - Kidney was removed due to thrombosis in the vessels in and leading to the kidney.

October 2008 - Listed in Region I

May 2009 - Started in Center Hemo
January 2010 - Started CCPD on Liberty Cycler

June 15, 2012 - Kidney transplant from a 43 year old deceased donor
June 22, 2012 - Major acute rejection episode and hospitalization began
June 27, 2012 - Nephrectomy to remove kidney after complete HLA antibody rejection. Possibly not eligible for another transplant, ever again.

Now what?
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