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Author Topic: Web sites with transplant waittimes  (Read 1943 times)
Lillupie
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wedding 12-10-11

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« on: June 03, 2012, 01:00:38 PM »

ok,
 We know that every state has a different waitlist. Like Michigan is 5.5 years. Wisconsin has like two and i think California has like 10.
 My question to you all is there a site I can look up that has the wait times. Im trying to prove by me moving to Kentucky it will be easier for me to get a kidney then it will be if I stay in Michigan.

(to make a long story short I got married to a man in the military, and my daughter's father is giving me a hard time about taking our daughter out of state)

Thanks
Lisa
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Check out my Facebook profile for CKD "Help Lisa Spread Awareness for Kidney Disease"

It is my utmost dream and desire to reach out to other kidney patients for them to know that they are not alone in this, also to reach out to those who one day have to go on dialysis though my book i am writing!

dx with lupus nephritis 5/99'
daughter born 11/2005
stage IV CKD 11/2005-6/2007
8/2007- PD cathater inserted
9/2007- revision of PD Cathater
10/2007 started PD
cassandra
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When all else fails run in circles, shout loudly

« Reply #1 on: June 03, 2012, 02:52:23 PM »

I did a bit of research about that, and couldn't find one. Just let your daughter's father prove that it isn't
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
SugarBear
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« Reply #2 on: June 03, 2012, 05:46:26 PM »

The following website has a lot of useful data divide by states so you can compare the average numbers.  Hope this helps.

Nelson

http://optn.transplant.hrsa.gov/latestData/stateData.asp?type=state
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Xbox GT: ShonumShogun

CKD due to FSGS 1999
Drop from Stage 4 to Stage 2 ESRD 2000
ESRD 2005
Started Dialysis September 13, 2006
Short Daily Home Hemo March 2009
Back to In-Center Hemo August 2009 (Too Many Hours)
Nocturnal Home Hemo with Remote Viewers  May 2010
Received Transplant March 1, 2012
Transplant Failed in October 2017
Nocturnal Home Hemo with Remote Viewers December 2017
jbeany
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Cattitude

« Reply #3 on: June 03, 2012, 07:09:39 PM »

If he fights you in court, the judge will look only at the best interests of the child.  Of course, having a mom off dialysis with an extended life span and better health seems like it counts as being in her best interests to me!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

okarol
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« Reply #4 on: June 03, 2012, 09:03:28 PM »

Go to http://www.srtr.org/csr/current/Centers/TransplantCenters_New201112x.aspx?organcode=KI
You can also search by state
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Lillupie
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wedding 12-10-11

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« Reply #5 on: June 03, 2012, 09:28:20 PM »

omg, :bandance;
 I love you guys so much!!!! Thank you so much for the information. I didnt find the one that Okarol found. See I just want to move 8-10 hours to be with my husband whom I have never lived with for longer then two weeks at a time.

To make a long story short my daughter's father wants to refuse to let our daughter go out of state. He will not pay child support and its only $50 a month. I got $2.80 in the last 5 years. He has no job, no car, no place to live. When my daughter goes over there they sleep on the couch together! And part of my moving is to get a kidney sooner then in Michigan. In Sept it will be 5 years since I have been listed. I refuse to go without my daughter. Last year she had kindergarden with her dad and missed 25 days of school!

Another reason to let me go is to try to prove it easier for me to get a kidney

Lisa
Logged

Check out my Facebook profile for CKD "Help Lisa Spread Awareness for Kidney Disease"

It is my utmost dream and desire to reach out to other kidney patients for them to know that they are not alone in this, also to reach out to those who one day have to go on dialysis though my book i am writing!

dx with lupus nephritis 5/99'
daughter born 11/2005
stage IV CKD 11/2005-6/2007
8/2007- PD cathater inserted
9/2007- revision of PD Cathater
10/2007 started PD
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