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| | |-+  I Felt Inspired to Talk to Adults About Kidney Diseae, Dialysis & Organ Donation
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Author Topic: I Felt Inspired to Talk to Adults About Kidney Diseae, Dialysis & Organ Donation  (Read 1733 times)
Cordelia
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Posts: 2012


« on: May 04, 2012, 05:23:23 AM »

Last week I talked to my son's grade 5 class about kidney disease, dialysis and organ donation.

Lastnight I got up in front of a group of about 30 adults and spread the word raising awareness about organ donation. I also told my own personal story and shared it with the group of people. They were very interested to hear about it and enjoyed my speech.

I'm very excited to continue sharing about these things and feel very passionate about it.     :flower;        :)       :bandance;
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
jeannea
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« Reply #1 on: May 04, 2012, 05:52:48 AM »

That's great! Have you considered volunteering with your local Gift of Life organization? They usually have training sessions and opportunities to talk.
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Cordelia
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Gender: Female
Posts: 2012


« Reply #2 on: May 04, 2012, 06:08:52 AM »

That's great! Have you considered volunteering with your local Gift of Life organization? They usually have training sessions and opportunities to talk.

Thanks! Yes, that's actually what I'm doing, who I'm volunteering with.

I'm with a group called Life Donation Awareness       :)
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
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