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Author Topic: im going to in-centre  (Read 3018 times)
Adam_W
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Me with Baron von Fresenius

« on: March 20, 2012, 07:02:24 AM »

At least for a few months I'm switching from NxStage to in-centre. Because of all my recent problems, my doctor has insisted I have a break from home dialysis for a while. The only positive thing is I will be going to a centre where I can do most or all of the treatment myself. I'm stillreally nervous though because my first time in-centre made me miserable. I don't know how this is going to go..
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
jeannea
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« Reply #1 on: March 20, 2012, 07:08:15 AM »

I think you'll be ok. Just go with the mindset that the people there want you to have a good treatment and you'll be fine. You may even want to relax and let them help you a little. For example you could let them set up the machine and you just check the parameters before you start. Then lay back and take a nice nap. One of the things I liked about in center was feeling taken care of. You'll be fine.
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willowtreewren
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My two beautifull granddaughters

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« Reply #2 on: March 20, 2012, 09:23:23 AM »

The important thing is to start feeling and doing better!  :cuddle;

Stay in control and watch your fluid intake since you will be doing fewer treatments. Here is hoping you will get to go back home soon.

 :grouphug; :grouphug; :grouphug;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
cassandra
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When all else fails run in circles, shout loudly

« Reply #3 on: March 20, 2012, 09:46:46 AM »

Willowtreewren, and Jeannea are right, you need the break so take the possitives from that. You know it will only be a short time. Get better soon Adam,

love Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
ESRD Survivor
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« Reply #4 on: March 20, 2012, 02:49:31 PM »

When training for Nxstage, we were told it was a good idea about every 3 months to go in center and give yourself and care partner a break from doing it 5 days a week at home.  I thought that was a good idea, I am due for my 3 months since training at the end of April, I probably will take a break then.
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lmunchkin
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"There Is No Place Like Home!"

« Reply #5 on: March 20, 2012, 04:29:08 PM »

You obviously have some issues going on Adam.  It is okay to go in-center.  Just relax and get better, so you can get back HOME!  You are in our prayers Adam!

God Bless,
lmunchkin
 :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Traveller1947
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« Reply #6 on: March 20, 2012, 04:48:51 PM »

This won't be anything like your last experience with in-center.  You're in a position of power now--knowing what's going on and able to do or direct you're own treatment.  All the best to you.
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Adam_W
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Me with Baron von Fresenius

« Reply #7 on: March 26, 2012, 10:00:58 PM »

I had my first day of in-centre today and I hated it. After five years of home dialysis, it's just too freaking different! I still can't get a streight answer on how much I can do myself, although I'm sticking myself there, and they were glad to turn the machine towards my chair and even allowed me to take care of some of my alarms after I demonstrated that I knew how to do it. But its mostly having to wait both to get on and off the machine, having to dialyze with tons of people and noise going on, etc. I nearly had an anxiety attack several times there. I'll be asking my dr. if he can prescribe something I can take on dialysis days to help me relax. One good thing though, the people are really nice. I pray I get better with this, and that I can go back to my home dialysis soon.
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
jeannea
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« Reply #8 on: March 26, 2012, 11:25:51 PM »

Maybe the doc can get you some Ativan or something to help with anxiety. But I think part of your doc having you do this is to relax and let people take care of you. Each time will get better as you get to know them.
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malaka
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« Reply #9 on: March 27, 2012, 09:03:15 AM »

Here's a tip from an "in-center" (for the time being) patient:  get yourself a Kindle or equivalent and load it up with books, magazines, tunes.  Beats the hell out of watching Jerry Springer, Judge Judy, et al, for multiple hours.  And you can use the Kindle one-handed.
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Riverwhispering
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« Reply #10 on: March 27, 2012, 11:58:46 AM »

a little mp3 player and headphones might help to take your mind off of the surroundings

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It's only one step from the Jungle to the Zoo
lmunchkin
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"There Is No Place Like Home!"

« Reply #11 on: March 27, 2012, 03:47:36 PM »

J. would take something before going to make him sleep. Its only for a while Adam, till you get better.  At least you know what you are doing now.  Lots know nothing about the care they get in these centers, and that is Sad!

lmunchkin
 :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
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