Question for PKD Patients

[balapandian]

Hi,

For how many years were you urinating while on dialysis?
Did the urine output decreased over the years?


In addition to less fluid restriction, what are the other advantages of urinating with respect to dialysis? less dialysis
crash? no cramps?

My neph wants to remove the left pkd kidney because of repeated cyst infection, keeping the right kidney is left to
my choice.  I want the right kidney to keep if it can produce urine, to aviod dialysis WASHOUT.

please help me in taking this decision.

Bala

[Cordelia]

Hi there Balapandian:

I have PKD. I have been on in center hemo doing dialysis coming up 2 years this summer.

I do urinate and the amount really has not changed. Except when I get off treatment I really only trickle urine that day. It's like the dialysis temporarily dried me out. Otherwise, frequency and amount hasn't changed.   Apparently its better to be able to pee. It's like gold once you're on dialysis.

I have never crashed on the machine. Sometimes I cramp though if they get me down past my dry weight.  I cramp more at home than I do at the center I dialyze at.

If you can preserve and keep your right kidney for now, I would recommend doing so.  Since you still have urine output, that is a good thing if you are starting dialysis soon.   I hope this helps       

[*kana*]

I have PKD and had a Bil Nephrectomy and it has relieved a lot of issues for me.  If it were me, I wouldnt let them take just one out.  Sure I miss peeing,  but the risk of cancer with PKD is high and pain and infection was an issue for me.   

[balapandian]

thanks cordelia and kana for the reply.

cordelia - pls drink water during dialysis to avoid dehydration

kana - it seems you have done both PD and HD and pls give me some suggestions

I have AV fistula is my hand, did Hemo dialysis once and hate it due to following reasons:
painful needle stick
hand pain for 2 days
much travel time to the hemo center
lying in the bed for more than 4 hours

I'm now more interested in PD because:
no needle stick, no pain, no travel


I'm planning for a single or double kidney removal,  does this surgery affects the peritonial cavity?
does kidney transplant surgery affects PD?

Bala