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Author Topic: I hate when I'm not feeling well ....  (Read 4054 times)
ToddB0130
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« on: March 10, 2012, 09:51:47 AM »

(like today) ....and that voice in my head keeps saying "Is it time to start ? Is it time ?".  Not feeling well with that added anxiety.  Ugh.
« Last Edit: March 10, 2012, 10:06:45 AM by ToddB0130 » Logged

No day but today
MooseMom
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« Reply #1 on: March 10, 2012, 10:02:46 AM »

And the anxiety makes your heart race, and then you start thinking about the cardiovascular implications of CKD, and then you just fall into an incoherent puddle in the corner somewhere.  Been there, done that.  I don't think you ever get used to it.

I feel the anxiety the most when I am waiting to get lab results.  My neph gave me a prescription for anti-anxiety meds.  [Most Interesting Renal Patient in the World] I don't use them often, but when I do, I take Xanax.[/Most Interesting Renal Patient in the World]

I hope you feel better soon.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
cariad
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What's past is prologue

« Reply #2 on: March 10, 2012, 12:45:35 PM »

I hate that you're not feeling well, too.

But glad to at least hear from you. I'd wondered where you'd gone off to. I once called 911 because I was sure I had plummeted into serious renal failure. The ambulance came and everything. I am so glad I am not a famous person, because you all would have no doubt got a good laugh hearing me on the gossip programs saying dramatically down the phone "I'm in kidney failure. Quick, I need dialysis." or something. Turned out I had a 24-hour flu that was making me upchuck every 20 minutes or so. As ridiculous as I felt, everyone understood why I panicked. If you have a health problem of this magnitude, it's always best to take the cautious route.

I hope you feel better and that dialysis is ages and ages away for you, Todd.  :bestwishes;

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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Riverwhispering
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« Reply #3 on: March 10, 2012, 02:24:07 PM »

Todd,   What is your GFR?  Mine was 12.5 last labs and was 11 the one before that.

Just want to compare symptoms here.  It drives me nuts too.
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It's only one step from the Jungle to the Zoo
cassandra
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When all else fails run in circles, shout loudly

« Reply #4 on: March 10, 2012, 02:39:47 PM »

Oh, oh, I would seriously say to just live every single second, before D. But than again after 14+ yrs (I decide at this minute that I won't count from now on, sounds bad enough) on D, its okay sometimes, I feel good sometimes, I'm quite often happy, so just think its shit, but whatever happens, happens. Breath in deeply, and blow out 2  as slow. (apparently reduces stress)

strength, and luck, and love

Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Rain
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« Reply #5 on: March 10, 2012, 06:35:25 PM »

the two times I really didn't feel well, nausous and extremly tired, I went to the ER and my potassium was super low,  and creatine was high, so they doctors made me stay in the hospital until it got under control again.   The second time i went it I had to start dialysis.  And honestly i was thankful, because I was sick of being sick.  Dialysis actually made me be able to continue on with my day, since I was was working full time and still going to school part time.  I was a determine young women. 
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1988  Diagnosed with reflux and kidney damage
2006-  Diagnosed with Renal Failure and start dialysis in centre with catheter
2007- Fistula created and in centre hemo with fistula
2012- Fistula clotted and central line inserted
May 2014- Received Kidney from deceased donor
wvgirl
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« Reply #6 on: March 10, 2012, 08:11:04 PM »

I am there too and totally understand. I just got my labs, gfr 9.5 now and appt. with doctor Friday to see what he says about it. Is it time yet? Is it time yet??
My symtoms are very tired, some swelling, nausea occationally, headaches occationally.
Xanax.. without taking it occationally, and without my anti-depressents I would be curled up in the corner right now.
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Jeanne
1988- Chronic Kidney Disease
2005- Biopsy showed IGM Nephropathy
10/2011- Fistula surgery, transplant evaluation-gfr 13
02/2012- On transplant list
05/2012- Started in center dialysis with gfr 9
2 calls for a transplant but still waiting...
Jean
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« Reply #7 on: March 11, 2012, 12:28:53 AM »

ME Too!!!! I have a neph appt on Tuesday and have wild headaches and exhaustion the whole week before I go to see him. Same thoughts, "Is it time " as the rest of you.
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One day at a time, thats all I can do.
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