How to handle the "advice" from others?

[Rain]

I too have experienced this "helping hand" advice.   Where I am in WA there are so many people I know that are totally into organic eating and living naturally without chemicals and stuff in their food like our Great Grandparents ate.   I swear it seems each month someone is telling me I should eat this or not eat that so my body will heal itself.   They have no clue about the effects of potassium , phosphorus and the need for animal protein we have when we are dealing with kidney disease.

I don't even bother telling them what I've learned from my Neph and research online.   I just nod and say ok I might give it a try.   

Riverwhispering, there is nothing wrong with natural eating with no chemical and organic.  Because I have to prepare all my food and I can't grab and go, my potassium, phosphorus are always the same every month on blood work days and I feel the same.  The only thing I stay away from is the whole grains, but I eat fermented veggies and grass fed meats, I even found a source for pastured butter.   I got rid of teflon frying pans, I clean with vinegar and baking soda, I have cotton shower curtains.  I just keep within my daily limit of foods  I could eat.
I cook with butter, lard (which I render myself once a year), duck fat or other natural fats and i has stopped me from snacking between meals since I"m not hungry.   It was because of dialysis and the additives within foods that contain phosphus or sodium, that I went to a more natural diet ,but I still eat white rice and light rye bread.

[Whamo]

Yes, but remember it's water, not fat, that you lose.

[amanda100wilson]

Whamo, I know it may be water but it is uncomfortable, and people who see you don't know that, and neither do my jeans for that matter!

[Riki]

I bought a zip up hoodie sweater back in October.  I got the biggest size that was availible, and I knew that I woudln't be able to zip it.  I was right, it wouldn't zip at all.  In the last week however, I have been able to zip it, and it's not even all that tight (except for across my boobs, but everything is tight there. *L*).  I must be losing something besides water.

[natnnnat]

I bought a zip up hoodie sweater back in October.  I got the biggest size that was availible, and I knew that I woudln't be able to zip it.  I was right, it wouldn't zip at all.  In the last week however, I have been able to zip it, and it's not even all that tight (except for across my boobs, but everything is tight there. *L*).  I must be losing something besides water.

That's great work Riki.  I gotta start thinking about exercise and some kind of portion control... its all getting out of control on my bathroom scales these days. 

[Riverwhispering]

Rain I eat organic as much as possible too.   I buy fresh eggs from farmers here and also the grass fed beef and hormone/antibiotic free chickens.

I guess i didn't make it clear as i was typing before.  I've had people here giving me advice on eating foods that help your kidneys get rid of toxins and are really good for your kidney health..... which doesn't apply usually to someone with 11% kidney function.   For healthy kidneys no doubt it's good advice.

[Wildrose]

I too have experienced this "helping hand" advice.   Where I am in WA there are so many people I know that are totally into organic eating and living naturally without chemicals and stuff in their food like our Great Grandparents ate.   I swear it seems each month someone is telling me I should eat this or not eat that so my body will heal itself.   They have no clue about the effects of potassium , phosphorus and the need for animal protein we have when we are dealing with kidney disease.

I don't even bother telling them what I've learned from my Neph and research online.   I just nod and say ok I might give it a try.   

I'm having a hard time with this also as I also live in WA and MANYof my friends and family are into eating 'real food'. Which by the way is a type of living/eating that I agree with... or I did until I found out I was in renal failure. I know that for a normal healthy person that eating whole foods, organic foods, etc are really good for you. But for someone on dialysis or with ESRD to abandon what the Nephrologists say to try to eat a real food diet, could be dangerous. I'm having a hard time wrapping my mind around how to eat.

[MooseMom]

I read some stupid article today listing five foods you should never eat, and what you should eat instead.  One was white rice, to be replaced by brown rice, and another was white bread, to be replaced by some kind of bread made with something that sprouts.  I'm so sure!   

[Riverwhispering]

MooseMom as I've said before "if it's healthy I can't eat it!!!" 

[Lowilson]

Amen to that !! My dialysis center balks when I tell them to pull extra kilo below my so called dry weight. I tell them to suck it  if I cramp they can give me saline. Hello!! How else can I tell if this stupid kidney diet is actually causing me to lose weight. 

[Rain]

I've been eating a real food diet, but with white rice and pasta for 3 years just the low potassium and phosphorus diet, works great.

Haven't had commercial bread, chips, pop,  or prepackaged foods in 3 years.  Make my own chicken stock etc.

I think I'm far healthier then more of my friends, but they still say why don't you eat brown rice, while they are eating their chemical filled deli meat sandwiches.  and i have homemade level overs for lunch which consist of meat, rice and veggies with a fruit.

[Riki]

My mom took a "healthy eating" class, which did teach her a lot, like how to read labels, but when they went over foods that were healthy and would help you lose weight, they talked a lot about whole wheat pastas.  Mom told the instructor that she couldn't really do that, because I couldn't eat it.  The instructor told her to make two separate portions, one with whole wheat for her, and white for me.  Mom thought that seemed a little much, so she went downstairs to the grocery store (the room where the class was is a community room above the grocery store) and looked at the labels between the white pasta and the whole wheat pasta.  Since the class was about eating and losing weight, she thought it was kind of a waste to have the whole wheat pasta, because it was only a few calories less than the white pasta.

I also don't eat white bread anymore, simply because I don't eat a whole lot of bread.  I'd usually end up throwing out 3/4 of a loaf because it went bad before I could eat it.  We just can't afford to waste money like that.