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Author Topic: All night at home vs in center question  (Read 3211 times)
glochis
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« on: December 31, 2011, 05:29:31 PM »
My daughter had "adjustments" to her fistula (16 weeks old) two weeks ago and was knocked out for it.  One week later she had pneumonia.  They gave her a Z pack for antibiotic - 6 pills over 5 days.  Was doing fine until 2 days ago when she started with upper chest pain.  24 hours in hospital and a multitude of tests, her heart is unchanged, kidneys holding at 6.4 and lungs mostly clear.  No reason for pain from shoulder to shoulder across chest, so home we came for the New Year with pain meds.   
One of the Drs who saw her mentioned she would be ideal for at home dialysis.  Plug in overnight and have her days free.  Is this something she would do with a fistula???  I thought that was only with a tube to her belly.

Thanks for any help to clarify. 
G
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Mother of 39 year old childhood cancer survivor.
Living with the long term effects of chemo and radiation. 
Kidney failure the latest twist on the horizon.
ToddB0130
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« Reply #1 on: December 31, 2011, 05:31:59 PM »
Check with her center and also on this board.  There is definitely home hemo available, as well as PD.  Seems a really viable option for lots of people.  Good luck.
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willowtreewren
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My two beautifull granddaughters

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« Reply #2 on: December 31, 2011, 05:45:37 PM »
There are a couple of options for extended "overnight" hemo dialysis. There are several available areas here on IHD:

http://ihatedialysis.com/forum/index.php?board=25.0

http://ihatedialysis.com/forum/index.php?board=37.0

http://ihatedialysis.com/forum/index.php?board=74.0

I hope this helps.

Aleta
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Desert Dancer
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« Reply #3 on: December 31, 2011, 05:47:49 PM »
Quote from: glochis on December 31, 2011, 05:29:31 PM
One of the Drs who saw her mentioned she would be ideal for at home dialysis.  Plug in overnight and have her days free.  Is this something she would do with a fistula???  I thought that was only with a tube to her belly.

Hi, glochis! It's ABSOLUTELY something she can do with a fistula: home hemodialysis (HHD). The tube in the belly is peritoneal dialysis (PD), but either modality can be performed at home. I've been doing nocturnal home hemo with a fistula since November of last year and I feel great. Here's a really good site to learn about the different home modalities:

homedialysiscentral.org

And specifically for nocturnal:

nocturnaldialysis.org
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

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del
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« Reply #4 on: December 31, 2011, 07:22:21 PM »
Hubby has been doing nocturnal hemo dialysis for over 5 years and he feels wonderful.
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Don't take your organs to heaven.  Heaven knows we need them here.
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