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I Hate Dialysis Message Board
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Dialysis: General Discussion
Hating Life today
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Topic: Hating Life today (Read 4259 times)
Katonsdad
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Hating Life today
«
on:
November 29, 2011, 06:07:13 PM »
Was setup to have a permenasnt access put in on Weds a.m. Spoke with DR. on Monday of last week.
Tuesday I noticed redness in my leg and a little pain. Spoke to old Neph. and was told to have them look at in on Weds at dialysis/ Thye said it looked like cellulitis and they gave me 2 grams of Amsef a medication. They would ah=gain check it
On Saturday during Dialysis/ they said it looked the same and gave me another 2 grams . I woke up on Sunday and the leg was purple. Call old neph and spoke with oncall Dr and was tyold to go to ER . Spent 7 hrs at hospital waiting for a doppler tech to show up. No clot. Heres a new antibiotic go home and rest.
Did that , went to Dialysis today and had a 100.3 temp and was told to cancel everything. Very sad
Logged
Diabetes 1976
Eye issues 1987
Kidney Failure 1997
CAPD 1997 , Stopped 1997 due to infections evey 28 days
Started In Center Hemo 1997
Received Kidney/Pancreas transplant 1999 at UCLA
Wife and I had son in 2001 , by donor for my part (Stopping the illness train)
Kidney failed 2011 , Back on Hemo . Looking to retransplant as the Kidney is still working
Soft kitty, warm kitty,
little ball of fur,
happy kitty,sleepy kitty,
purr purr purr ::
Sheldon and Penny on The Big Bng Theory
monrein
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Might as well smile
Re: Hating Life today
«
Reply #1 on:
November 29, 2011, 06:18:41 PM »
How horribly frustrating for you. I hope the antibiotic does the job and you can get back on track very soon.
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
boswife
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us and fam easter 2013
Re: Hating Life today
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Reply #2 on:
November 29, 2011, 06:57:14 PM »
im so sorry for all of this. It's so frustrating and disheartning.. Hoping for some good comming your way..
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
cariad
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What's past is prologue
Re: Hating Life today
«
Reply #3 on:
November 29, 2011, 07:23:46 PM »
Sounds just miserable. I am so sorry.
Hope things improve quickly for you.
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria
People have hope in me. - John Bul Dau, Sudanese Lost Boy
kevinswife
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Re: Hating Life today
«
Reply #4 on:
November 29, 2011, 07:41:31 PM »
You have always been a fighter.
You will get through this. Please know that Katon and I are here for you.
Love,
Your wife.
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Wife and care partner to Katonsdad.
May you rest in peace my dear husband.
okarol
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Photo is Jenna - after Disneyland - 1988
Re: Hating Life today
«
Reply #5 on:
November 29, 2011, 08:39:14 PM »
That's very scary - I hope you get some results with the new antibiotic.
Logged
Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
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News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
fearless
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Re: Hating Life today
«
Reply #6 on:
November 29, 2011, 08:54:09 PM »
I feel like that's the way things go for me a lot of the time too - delays, off-track troubles and complications one on top of another. I hate it for you too. So sorry, and always I'm hoping for better and improvement.
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Whamo
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Re: Hating Life today
«
Reply #7 on:
December 06, 2011, 06:22:54 AM »
Yes, it seems like just when everything seems to be in balance, something else in life throws you a curve.
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Darthvadar
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Re: Hating Life today
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Reply #8 on:
December 06, 2011, 06:46:27 AM »
Really sorry to hear that you're going through such a hard time...
Hope things improve VERY soon....
Love...
Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
willowtreewren
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My two beautifull granddaughters
Re: Hating Life today
«
Reply #9 on:
December 06, 2011, 01:48:32 PM »
Oh, Kevin.... I'm so sorry.
It's bad enough to get yourself mentally prepared for something to happen and then it doesn't. It's even worse that it happens because something has gone WRONG!
Here is hoping that you get this straightened out soon and back on track.
Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011.
texasstyle
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Re: Hating Life today
«
Reply #10 on:
December 06, 2011, 09:05:35 PM »
sorry to hear your surefry was put off but it is pretty important to get that infection under control and especially since you had a fever. My husband has had them 3 or 4 times. At first he wasn't;t paying too much attention to them now I am only always the look out because if you spot them early enough, you can get a good handle on them before they get worse . Not always, but many times the infection comes from a bacteria that gets into a cut, and under your skin and effecting the subcutaneous layers of the skin. Symptoms are tenderness, warmth to the touch, and redness. It can become very severe if not treated. Having very dry skin can actually cause little tiny cracks in the skin where this bacteria can get in. For him, it has been a little since he has been taking good care of making sure his skin in that area is moist and supple as best can be expected. Not a days i know pretty much what the starting of a red patch of celluliteis looks like and I check it for warmth and or fever. You probably already know all this but i thought I would just share what i too have learned since. I never knew anything about it until a couple of years ago. So.... hopefully when your infection is gone you should be getting your permacath soon. Best to you!
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caregiver to husband using in-center dialysis 4 years
Riki
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Re: Hating Life today
«
Reply #11 on:
December 06, 2011, 10:12:53 PM »
I've had that before too, on my leg. I have psoriasis on my leg, and that is what got infected. It was red, and hot to the touch, I also had trouble putting weight on that leg. I was put on antibiotics and had to wear a pressure bandage to keep swelling down. It took about 2 weeks for it to clear up.
It would suck that it would happen just before you were to have your access surgery, though
Logged
Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
Katonsdad
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Re: Hating Life today
«
Reply #12 on:
December 07, 2011, 04:54:54 AM »
Having my surgery today, No temp , leg okay . Will see what happens.
Logged
Diabetes 1976
Eye issues 1987
Kidney Failure 1997
CAPD 1997 , Stopped 1997 due to infections evey 28 days
Started In Center Hemo 1997
Received Kidney/Pancreas transplant 1999 at UCLA
Wife and I had son in 2001 , by donor for my part (Stopping the illness train)
Kidney failed 2011 , Back on Hemo . Looking to retransplant as the Kidney is still working
Soft kitty, warm kitty,
little ball of fur,
happy kitty,sleepy kitty,
purr purr purr ::
Sheldon and Penny on The Big Bng Theory
billybags
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Re: Hating Life today
«
Reply #13 on:
December 07, 2011, 11:31:13 AM »
Hope all goes well.
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boswife
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us and fam easter 2013
Re: Hating Life today
«
Reply #14 on:
December 07, 2011, 01:29:09 PM »
Logged
im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Katonsdad
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Re: Hating Life today
«
Reply #15 on:
December 08, 2011, 08:02:11 AM »
Arrived at thw Surgeryy Center and the first theing they wanted was 200.00. Paid the money and did the paperworl / They sent me to waiting room and was then called back. Took my temp and I had a damn fever!!! 100.1 Took off my coat as I am always cold and afet a few it was at 99. Dr came in and inspected me from head to toe and gave the okat. Wheeled me into surgery gave me a shot pf something on the way and they slid me to operatong table
put the mask on me and then I woke up in recovery. Arm hurts and probably will for a few days. Should be able to use uit in 2 wks the doctor says.
Logged
Diabetes 1976
Eye issues 1987
Kidney Failure 1997
CAPD 1997 , Stopped 1997 due to infections evey 28 days
Started In Center Hemo 1997
Received Kidney/Pancreas transplant 1999 at UCLA
Wife and I had son in 2001 , by donor for my part (Stopping the illness train)
Kidney failed 2011 , Back on Hemo . Looking to retransplant as the Kidney is still working
Soft kitty, warm kitty,
little ball of fur,
happy kitty,sleepy kitty,
purr purr purr ::
Sheldon and Penny on The Big Bng Theory
billybags
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Posts: 2190
Re: Hating Life today
«
Reply #16 on:
December 08, 2011, 10:18:02 AM »
Glad things went OK, you take care now.
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fearless
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Re: Hating Life today
«
Reply #17 on:
December 08, 2011, 09:42:30 PM »
here's to a speedy recoup!
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kyshiag
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Re: Hating Life today
«
Reply #18 on:
December 11, 2011, 06:24:14 AM »
My husband had celluliits in Hawaii so talk about a disruption of plans! However, they were able to get his --which had escalated to pain and legs swollen twice their size--under control in a few hours once they decided that's what is was a gave him antibiotic.
I have no doubt you will be okay but I know its scary. Believe me though, once they put the right antibiotic on the job, the difference will be quick.
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boswife
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us and fam easter 2013
Re: Hating Life today
«
Reply #19 on:
December 11, 2011, 06:26:57 AM »
Glad it got done and hope that your much better today ... One down
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
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