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Dialysis: General Discussion
When I Die...........I want
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Topic: When I Die...........I want (Read 4658 times)
pitagory
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Sorry guys for my spelling and punctuation
When I Die...........I want
«
on:
October 22, 2011, 08:45:46 PM »
I know this is a hard subject to talk about but I am thinking out loud here and thought I would put it in this thread and maybe someone in my family will read it when I die.
when I die
I want every one in my family to get together and not fight over anything
when I die
I want every one to be happy for me because I have had a grate life because having my children and seeing my grandchildren being born is the best thing in the world
when I die
I want my husband to find love again and not be alone for the rest of his life
when I die
I want my family to throw a party with mariachi music and coronas and tequila shots Ahhhhhua
no sad faces
in lieu flowers please donte to a kiddney fund
well I cant think of anything more but I will add to this thread as I think of them
«
Last Edit: October 22, 2011, 09:02:40 PM by pitagory
»
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"I dont need easy, I just need posible"
Henry P Snicklesnorter
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Re: When I Die...........I want
«
Reply #1 on:
October 23, 2011, 04:45:20 AM »
.
«
Last Edit: October 21, 2013, 04:18:17 PM by Henry P Snicklesnorter
»
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willowtreewren
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My two beautifull granddaughters
Re: When I Die...........I want
«
Reply #2 on:
October 23, 2011, 06:56:56 AM »
I want people to celebrate the good things I have done and forgive the bad things.
Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011.
texasstyle
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Re: When I Die...........I want
«
Reply #3 on:
October 23, 2011, 07:54:20 AM »
sounds like you want of a "celebration of life". I like your optimism
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caregiver to husband using in-center dialysis 4 years
Rerun
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Going through life tied to a chair!
Re: When I Die...........I want
«
Reply #4 on:
October 23, 2011, 08:46:23 AM »
When I die I hope God says "I knew you well my good and faithful servent"
I want my family to follow thru with my wishes. I want someone loving to take Tia.
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kristina
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Re: When I Die...........I want
«
Reply #5 on:
October 24, 2011, 07:22:58 AM »
Quote from: Henry P Snicklesnorter on October 23, 2011, 04:45:20 AM
I want people to say: "Wow 105 years old!"
Very inspiring !
Mind you, I am not too unhappy if I can settle for "...Wow 95 years old..."
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
He was completion and fulfillment in itself, like a meteor which follows its own path.
- Robert Schumann -
... Oportet Vivere ...
Iwannabean
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Re: When I Die...........I want
«
Reply #6 on:
October 26, 2011, 06:24:37 AM »
1. I want my wife to know that I love her, and I appreciated the care that she has given me.
2. I want to thank my wife with putting up with my up and down moods, my cantakerousness,
hissy fits, and turmoil.
3. I want her to know that everytime I told her "I love you" it came from the bottom of my heart.
4. I want her to know that she was always my best friend, I'm not making ammends because I am very
happy.
5. I want my children to know that they are special to me.
6. I want my grandson to know that he has brought me much joy
7. I want a "Celebration of my life" not a funeral
8. I want people to know it is greater to give than to receive.
9. I want to be known as the person who tried to help the lonely, hungry the downtroddeen
Iwannabean
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Marina
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God Bless my donor family!! :)
Re: When I Die...........I want
«
Reply #7 on:
October 26, 2011, 06:33:59 AM »
When I die
......
I don't want a funeral, I want my family to have a get together and have a "celebration of life"
I want to be happy for me that I "graduated" from this life, that I learned the lessons I came to learn in this life time which I will use in a future life. I have told them, I don't want any sad faces, I want them to be happy that the Lord decided I was ready to take me home..
(my philosophy if that we life is a school where we come to learn lessons which we will use in future lives. When we learn the lesson we came to learn to be a better person in a future life, we graduate from this life form, and move on. )
When I die
.......
I want my family to donate my body to science. I want body to be donated, so it can be used to help others, whether by donation or by research,
Logged
"Anything is possible, if you BELIEVE....." ~~~Joel Osteen
"Yesterday is history, Tomorrow is a mystery, Today is a gift..... That is why it is called the present"
*************************************************
Nov 1979 ~ Diabetes
Apr. 2004- Nov 2010 ~ CAPD
Nov 9, 2010 ~ Received the THE GIFT OF LIFE at
California Pacific Medical center (CPMC) in San Francisco, CA
Rerun
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Going through life tied to a chair!
Re: When I Die...........I want
«
Reply #8 on:
October 26, 2011, 08:09:09 AM »
This thread makes me weep. Not cry because that takes effort. I weep..... the tears just fall.
I don't like to think about the mess I'm leaving my sisters. I still have a house in Sacramento that needs to be sold then the house I'm in now will need to be sold and all my junk gone through and my dogs and and and. God give them strength. AND yes, let Roger help.
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Brightsky69
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Re: When I Die...........I want
«
Reply #9 on:
October 26, 2011, 08:21:38 AM »
I always tought (even before I got sick) that I don't wanna die first because I would miss everyone too much. I wouldn't wanna go.
So I guess I'd want to be the last to go.
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
glitter
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Re: When I Die...........I want
«
Reply #10 on:
October 26, 2011, 09:04:40 PM »
You know- this is a very touching thread. I wanted to tell you how important the things you're saying REALLY,really are for those left behind.
When Jack, my husband died...I knew without a shadow of doubt that I had loved him totally, without regret, and I knew he knew that too. He died knowing he had been loved as much as he had loved in return. That simple knowledge we often talked about,We both felt so lucky to have found each other - we were careful not to take each other for granted. In the last two years the memory of those conversations have been a great comfort to me. I also did not have to worry that I was not honoring his wishes, we had that conversation multiple times so we were each very clear on what we wanted the other to do if one of had to leave.
Most of you know I recently lost my oldest child, a daughter at the age of 21, I know, with no doubt, that she felt loved every day of her life. Hugs and I love you's are so important you know?
So write what you really want people to know if you cant tell them, or do both- make sure they know-even thought its hard to talk about when the grief hits them - its a big relief not to have to guess what they wanted.
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER
caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
kristina
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Re: When I Die...........I want
«
Reply #11 on:
October 28, 2011, 08:12:37 AM »
Thank you, glitter to come back with your thoughts,
they are very much appreciated and very touching.
What you thought made me also re-think again about my own situation.
As you can imagine I have written many letters to many authorities,
MP’s, Prime Ministers, the Queen etc., in an effort to receive health-care in my ESRF
with a kidney-function of 10-12% caused by a very rare disease,
but there is no help, no assistance, because no one here is in a position to assist me
to receive any NHS-health-care in my ESRF.
In our system here everyone is “bound by a working-contract” which they all have to sign.
In other words, my desperate situation does not fit into anyone’s working-contract here in the UK.
In order to keep their contract they are not allowed to think on their feet and help or assist me,
but their working-contract forces them to ignore problems like mine in the NHS with rare diseases etc.
But, and here is the point, what you thought, made me think again,
because many of those authorities did answer me,
telling me, how very sorry they are, that their position (working-contract)
does not allow them to assist me in sorting out my problem with the NHS.
I have always dismissed their answers as “the answer of just another wimp”,
but they might have had their own point, because after all,
they are just protecting their own income and their own working-situation
and my problem does not fit into their working-remit or their working-contract.
Your thoughts made me realize not to judge all these negative answers too harshly
because we are going through a big change and very harsh times.
Logged
Bach was no pioneer; his style was not influenced by any past or contemporary century.
He was completion and fulfillment in itself, like a meteor which follows its own path.
- Robert Schumann -
... Oportet Vivere ...
kellyt
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Re: When I Die...........I want
«
Reply #12 on:
October 28, 2011, 02:51:12 PM »
Wonderful thread.
When I die I also want a celebration of my life.
When I die I want my husband to do wonderful things with the money he works so hard to make. (all the money we've had to
spend on deductibles, medications, etc.)
When I die I want to be cremated and kept in an air conditioned home. (this one is important.
)
When I die I pray my husband continues to care for our animals/fur babies with the same love and understanding that I provide.
When I die I want to have either a video or slide show put together of me and my family and friends, and for my
family and friends.
When I die I want my family and friends to continue to talk to me.
When I die I want lots of stories and laughter at my celebration. There is lots to laugh about.
When I die I want my nieces to have all my jewelry and my mother's jewelry, all our old family photos, etc.
Logged
1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!
Whamo
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Re: When I Die...........I want
«
Reply #13 on:
November 10, 2011, 07:13:02 PM »
When I die I'm looking forward to a long rest. I feel really lucky. I got to make love to beautiful women (they're all beautiful on the inside); surf some tasty waves (Hawaii, Mexico, California); party like an animal; and pursue a lot of different interests and meet a lot of interesting people.
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Sax-O-Trix
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Re: When I Die...........I want
«
Reply #14 on:
November 10, 2011, 07:58:31 PM »
When I die I want...
To have lived long enough for my now tween/teenaged children to be finished with college, all grown-up and on their own. Anything more than that will be icing on the cake
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Preemptive transplant recipient, living donor (brother)- March 2011
dyann
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Re: When I Die...........I want
«
Reply #15 on:
November 10, 2011, 10:08:14 PM »
When I die.....
I want my children to know how much they were truely loved
I want my ex husband to know I forgive him
I want a party with polish food, beer and friends and family remembering the good times not the bad
I want to see my children out on their own and doing well and happy
I want to see our lord and thank him for giving me the time I had on earth, the good the bad and ugly
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galvo
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Re: When I Die...........I want
«
Reply #16 on:
November 10, 2011, 11:11:37 PM »
When I die, I want nothing.
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Galvo
daveosaurus
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Re: When I Die...........I want
«
Reply #17 on:
November 15, 2011, 12:03:12 PM »
I'd like someone to find my body within a reasonable amount of time ... but I doubt it. I hope I die in my sleep.
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Deanne
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Re: When I Die...........I want
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Reply #18 on:
November 15, 2011, 02:53:32 PM »
When I die, I want my family to know I will haunt to them to the ends of earth and back if they dump my four-leggeds (cats & dogs) at a kill-shelter. I'm putting a will together that will include care plans for them. It's still my only worry.
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Deanne
1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
Cordelia
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Re: When I Die...........I want
«
Reply #19 on:
November 15, 2011, 03:00:44 PM »
Oh boy, I agree with so much posted here!
When I die.....
I don't want people to fight and nitpick over trivial, stupid stuff!
I want people to be forgiving
I want my useable organs to be donated to help someone else who is need of an organ I may be able to give
Logged
Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs, Mom to 3 kids to twin daughters (One that has PKD) and a high-functioning Autistic son
rsudock
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will of the healthy makes up the fate of the sick.
Re: When I Die...........I want
«
Reply #20 on:
November 15, 2011, 05:49:20 PM »
when I die in lieu of flowers donate to NKF and IHD.
Show a slideslow of my life.
Play some awesome music.
Read my favorite poems.
Donate money to the Centers for Dialysis Care in Warrensville so they can get my dialysis friends some heated and vibrating chairs!!!
I want my sister and brother to say something beautiful about me...
xo,
R
Logged
Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
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