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Author Topic: Saturday might be the day  (Read 3948 times)
needlephobic
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« on: October 27, 2011, 08:35:00 PM »
They are going to try to stick me ((((shivers)))) they tried before and I freaked out I am scared right now thinking about it. The prob is my chest cath is messing up again so its do or die. I got the cream that supposed to help me not feel a thing.
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MooseMom
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« Reply #1 on: October 27, 2011, 10:18:25 PM »
Oh, I don't know what to think or what to say!  I just hope that all goes well for you and that you will be able to cope.  I know how hard all of this has been, and I am really admiring of how you have coped so far.  It would have been easy for you to just give up, but you didn't.  Good for you.  Please let us know how things go on Saturday.  I'll be thinking of you!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Ang
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« Reply #2 on: October 28, 2011, 12:54:34 AM »
good luck, hopefully you'll come back telling everyone how it all went :thumbup;
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live  life  to  the  full  and you won't  die  wondering
natnnnat
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« Reply #3 on: October 28, 2011, 02:51:11 AM »
 :cuddle; Good luck needleman.
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
kristina
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« Reply #4 on: October 28, 2011, 04:28:26 AM »

I wish you good luck and all the best

and I do hope you won't have any problems !

Best wishes from Kristina.  :grouphug;
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
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My two beautifull granddaughters

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« Reply #5 on: October 28, 2011, 04:44:21 AM »
Courage!!!!!

So, I am hoping that we get to change your name......

Instead of NeedlePhobic we will need to call you NeedlePhillic (needle lover!)  :2thumbsup;

Keep in mind that those needles are your LIFE! I am rooting for you. You can DO this! You have come so far.....just a bit further to go. Make sure the BEST nurse is in charge of this momentous occasion.

GOOD FOR YOU!!!!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
monrein
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« Reply #6 on: October 28, 2011, 05:34:47 AM »
Sending my thoughts and all my strength your way ....baby steps can lead to huge strides.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Desert Dancer
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« Reply #7 on: October 28, 2011, 05:36:39 AM »
Quote from: needlephobic on October 27, 2011, 08:35:00 PM
They are going to try to stick me ((((shivers)))) they tried before and I freaked out I am scared right now thinking about it. The prob is my chest cath is messing up again so its do or die. I got the cream that supposed to help me not feel a thing.

DON'T THINK ABOUT IT! I know that's like telling someone on a building not to look down. But really, try not to think about it beforehand. I'm not needle phobic and even I just block it from my mind until the moment I have to cannulate, getting all up in your head about it is just crazy-making for anyone.

Has your psychologist/chiatrist given you any tools for achieving this milestone Saturday?

You know we will ALL be thinking of you and cheering for you on Saturday... think about us instead and all the good wishes coming your way!  :cheer: :cheer: :cheer:
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
jeannea
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« Reply #8 on: October 28, 2011, 06:32:49 AM »
You can do it. You have all of us pulling for you. Don't look while they do it. And pick something to use as your reward if you make it through. You deserve it.
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CebuShan
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« Reply #9 on: October 28, 2011, 07:40:58 AM »
That's great (but scary) news! Are they going to try using 1 needle and your catheter or are they going to use 2 needles? You definitely CAN do this! Call me if you need a distraction while it's happening. Hopefully mine will be working, it didn't on Thursday even though we tried. We'll be thinking of and praying for you.
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Big E
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« Reply #10 on: October 28, 2011, 11:48:47 AM »
Best of luck Needlephobic.  Once they do it you'll find it's not so bad.  All your IHD friends are rooting for you. :cheer:
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PKD diagnosed June 1996
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lmunchkin
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"There Is No Place Like Home!"
« Reply #11 on: October 28, 2011, 07:31:51 PM »
Quote from: willowtreewren on October 28, 2011, 04:44:21 AM
Courage!!!!!

So, I am hoping that we get to change your name......

Instead of NeedlePhobic we will need to call you NeedlePhillic (needle lover!)  :2thumbsup;

Keep in mind that those needles are your LIFE! I am rooting for you. You can DO this! You have come so far.....just a bit further to go. Make sure the BEST nurse is in charge of this momentous occasion.

GOOD FOR YOU!!!!

Aleta

I second what Aleta said! You cracked me up with that one! Iam so very proud that you have come this far!  You need to know that All Of Us have your BACK!  You will get through this!  Praying for you Needlephob!

lmunchkin
 :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
ToddB0130
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« Reply #12 on: October 28, 2011, 07:46:47 PM »
Fears are a terrible thing to have to deal with.  You must be very proud of yourself for working so hard to face yours.  GREAT WORK !!
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No day but today
needlephobic
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« Reply #13 on: October 28, 2011, 08:00:24 PM »
Looks like it will be on hold can't get the cream untill insurance lets my neph  confirm my insurance with the pharamacy  its crazy only other way is to stick me with the numbing shot for my arm. still scared prob won't get no sleep tonight. Funny thing there is a tech there who is afraid of needles won't letr nobody stick him but himself. He told me he will let me stick him if I will stick him with a needle this will be good.
Quote from: willowtreewren on October 28, 2011, 04:44:21 AM
Courage!!!!!

So, I am hoping that we get to change your name......

Instead of NeedlePhobic we will need to call you NeedlePhillic (needle lover!)  :2thumbsup;

Keep in mind that those needles are your LIFE! I am rooting for you. You can DO this! You have come so far.....just a bit further to go. Make sure the BEST nurse is in charge of this momentous occasion.

GOOD FOR YOU!!!!

Aleta

Aleta I can't think of one person on dialysis who loves needles so don't think that will work I do like what natnnnat called me Needleman

Quote from: Desert Dancer on October 28, 2011, 05:36:39 AM
Quote from: needlephobic on October 27, 2011, 08:35:00 PM
They are going to try to stick me ((((shivers)))) they tried before and I freaked out I am scared right now thinking about it. The prob is my chest cath is messing up again so its do or die. I got the cream that supposed to help me not feel a thing.

DON'T THINK ABOUT IT! I know that's like telling someone on a building not to look down. But really, try not to think about it beforehand. I'm not needle phobic and even I just block it from my mind until the moment I have to cannulate, getting all up in your head about it is just crazy-making for anyone.

Has your psychologist/chiatrist given you any tools for achieving this milestone Saturday?

You know we will ALL be thinking of you and cheering for you on Saturday... think about us instead and all the good wishes coming your way!  :cheer: :cheer: :cheer:

Yes the plan is to put a pillow under my arm to block my view of them putting the needle in and having a nurse or tech to talk to me and calm me down and focus my attention away from my arm. The tech or nurse that will be sticking me is not to say her we go or a little stick just supposed to stick me then keep me focused and calm through the treatment if possable one needle in arm and one hooked to chest cath. supposed to be stuck once a week for awhile to keep me from freaking out every time I go in it makes the machine light up like a christmas tree when my blood pressure shoots up .

Quote from: ToddB0130 on October 28, 2011, 07:46:47 PM
Fears are a terrible thing to have to deal with.  You must be very proud of yourself for working so hard to face yours.  GREAT WORK !!

Not sure if I want to be proud of myself cause I am still scared having second thoughts about it
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boswife
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us and fam easter 2013
« Reply #14 on: October 28, 2011, 08:01:55 PM »
So hoping todays efforts went well and  became a  step in the right direction.  I hope it worked for you to give you courage to go at it again.  It's so hard i know, but your giving it a great go at it and i hope you are rewarded for your efforts.   :grouphug;

edit because we were writing at the same time im guessing as i see your post RIGHT above mine...  Wow,,,,  "I" am so increadably proud of you.  You can still be scarred, but your doing it!!!!!!!!  Ok, not yet, but your still going for it and im just so glad.  I always want to go off on my own experiences, but wont, i just want to say, it can happen, you can do it.  You will win :)   :flower;
« Last Edit: October 28, 2011, 08:07:53 PM by boswife » Logged
im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
fearless
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« Reply #15 on: October 28, 2011, 11:42:49 PM »
I'm sending you bravery, but even more: I'm sending you a little trick I practice myself.  That is, I focus on a beautiful ball of light.  It's sitting warmly in my abdomen.   And even though it's a part of my body, it's like it's separate from my body too.  I think about my body as though it is not mine.  I give it love and reassurance.  And I let it know that what's happening to it is to help it.

I suffer from panic when I'm in a stressful situation, but I've learned to conquer it with this sort of thinking.  It takes a while to get in the groove of sort of "checking out", but actually really just focusing on something better.

I got stuck for the first time last week, and it was a failed attempt.  My arm swelled up and I got a big bruise. But you know what?  It didn't hurt.  That cream really works :)

best to you
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willowtreewren
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My two beautifull granddaughters

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« Reply #16 on: October 29, 2011, 11:06:59 AM »
Okay, "Needleman"!

I really like Fearless's idea. That kind of imagery is peaceful and beautiful!

I have a diabetic child in my class and I have had to give him needles for years. Seeing the courage of that little guy (well he is 10 now) has helped me so much. Whenever I feel myself tensing up over any kind of medical procedure, I think about how calm he is for his multiple shots every day! He is an inspiration. AND SO ARE YOU!

Let us know when your cream comes in and you get to take a stab (oops maybe not a good word) at this adventure. That way we can have your back!

 :grouphug;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
boswife
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us and fam easter 2013
« Reply #17 on: October 29, 2011, 02:36:14 PM »
ouhhhhhhh i LOVE that 'fearless'!!!  You explained it very well too.  I do something similar for situations, but would not have been able to explain.  Great job, and great help  :2thumbsup;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
CebuShan
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« Reply #18 on: October 29, 2011, 06:29:18 PM »
Hey Needleman! How'd it go today?
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
Think about it! LOL!
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