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Author Topic: severe back pain  (Read 9661 times)
Adam_W
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Me with Baron von Fresenius

« on: November 24, 2011, 10:22:25 PM »

Several years ago, my mom had a severe seizure that crushed two of her vertebra, and a year ago, one more was crushed, so she has chronic, sometimes severe back pain. She developed a cold a couple weeks ago, and has been coughing really bad, which has made the pain worse. Just this evening however, she suddenly got the worst pain she's ever experienced for no apparent reason. She was ok one minute and doubled over and in tears the next. The pain is mostly in the ribs on her right side, and they are very sharp pains. We just got back from the ER and they did X-rays and a CT scan, and they couldn't find anything that's causing it. I've been so accustomed to being the one in the hospital bed and my family standing around me. This time it was the other way around, and I just felt so helpless seeing my mom laying there crying in pain. She will be following up with her primary care dr and her pain management dr to try to get to the bottom of this. 
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
Cordelia
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« Reply #1 on: November 25, 2011, 05:33:48 AM »

Thinking of you and your Mom      :grouphug;      :grouphug;    I really hope the cause can be found and a form of treatment to help  relieve her pain. Chronic pain is not pleasant, that's for sure!
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #2 on: November 25, 2011, 10:18:49 AM »

 :grouphug;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
sullidog
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« Reply #3 on: November 25, 2011, 05:27:12 PM »

keep us posted!
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
Adam_W
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Me with Baron von Fresenius

« Reply #4 on: November 28, 2011, 12:08:37 PM »

Well, she saw her dr today and he said she may have a couple ribs that are broken or separated from her spine. She is going to have more X-rays done to get a better idea. Unfortunately if it is that, it could take months to heal, and shes still having pain that is almost unbearable. She is not able to do anything because it hurts so much to move. All that can be done right now is pain management. She has been prescribed Vicodin, and it helps, but not much. I don't know if there is anything stronger that is available that can be prescribed outside of a hospital, but she will be able to ask her pain management dr about that. She needs a lot of prayer right now, and so does my dad who is taking care of her. I'll keep you all posted on what we find out.
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
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