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Author Topic: Gift Of Life Walk  (Read 2339 times)
Cordelia
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Posts: 2012
« on: September 11, 2011, 04:24:17 PM »
My family and I participated in a Gift Of Life walk for the Kidney Foundation today!    :yahoo;     :thumbup;     :clap;      :bandance;

The community raised $16,000 at the walk ........$500 of that my family and I, extended family and friends donated and we are just totally thrilled with the funds that was raised for kidney disease, what a thrilling feeling to participate in the walk, I'm so proud of my family!    :2thumbsup;
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
drgirlfriend
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« Reply #1 on: September 11, 2011, 04:30:42 PM »
 :cheer:
Congratulations! You should be proud!!
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Boyfriend diagnosed with renal failure Feb. 2011. Cause unknown.
PD Catheter "installed" June 30, 2011.
Began CAPD August 11, 2011.
On transplant list 11/23/11.
Started Liberty Cycler 12/1/11.
Cordelia
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Posts: 2012
« Reply #2 on: September 12, 2011, 04:05:39 AM »
I am.   :bandance;    :yahoo;

Thank you     :cuddle;
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
mcclane
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« Reply #3 on: September 12, 2011, 09:57:54 AM »
awesome !!  good to hear cordelia !  :thumbup; :thumbup;
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Rerun
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Going through life tied to a chair!
« Reply #4 on: September 12, 2011, 02:03:13 PM »
Good job.  I hope they use the money well.  How many miles or whatever did you walk?

       :2thumbsup;
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Cordelia
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« Reply #5 on: September 13, 2011, 03:11:04 AM »
Thank you!    :grouphug;


Yup, they're using the money for the patients, its not going towards administrative stuff   :)    :thumbup;

We walked 3 k     :bandance;      :clap;
Logged
Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
stuman413
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Have been an on and off dialysis for 15 years
« Reply #6 on: September 14, 2011, 03:56:48 PM »
Great to hear about the funds raised.  I am wondering how can I find out about walks in my area (San Francisco Bay Area)?  Any thoughts on where I can look?
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-Born in !975 with blockage on bladder
-Doctors do not realize this fact until 8 days after I'm born
-Perform surgery to pull ureters out my back so I can pee (called a eurethrarostomy)
-At 3 years of age the doctors fix the bladder and return my anatomy to normal
-23 years old I have pain in my chest/cannot breath, rushed to hospital, find that my kidneys have failed
-March 1999 - first dialysis in hospital
-January 2003   Living donor transplant from cousin
-April 2009  kidney fails  back on dialysis - present 4x per week
-January 2013 - started nocturnal dialysis 3x week for 6 hours per treatment
-April 2013 - Nocturnal shift is discontinued, treatments reduced to 5 hrs apiece
July 3 2016 Received 2nd transplant from cadaver doner
Two years post transplant doing fantastic so far
Cordelia
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Posts: 2012
« Reply #7 on: September 16, 2011, 02:09:02 PM »
Thank you so much, Stuman!   :cuddle;   

Oh gosh, I'm not sure for the U.S.  I live in Canada, so I'm not sure what would be going on in the U.S.    ???
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
CebuShan
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« Reply #8 on: September 16, 2011, 02:50:04 PM »
That is awesome, Cordelia! My husband, me & Timo (the dog) are participating in the Gift of Life Walk in Urbana-Champaign, IL on October 22. Our goal is $150.00 and we have raised $50.00 so far. We had a great time last year.

Stuman: Here is a link to the National Kidney Foundation site:

http://www.kidney.org

or:

http://donate.kidney.org/site/PageServer?pagename=WALK_homepage

Hope you can find one. They are great fun!
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
Think about it! LOL!
stuman413
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Posts: 36


Have been an on and off dialysis for 15 years
« Reply #9 on: September 16, 2011, 06:33:14 PM »
Thanks, I'll check it out.
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-Born in !975 with blockage on bladder
-Doctors do not realize this fact until 8 days after I'm born
-Perform surgery to pull ureters out my back so I can pee (called a eurethrarostomy)
-At 3 years of age the doctors fix the bladder and return my anatomy to normal
-23 years old I have pain in my chest/cannot breath, rushed to hospital, find that my kidneys have failed
-March 1999 - first dialysis in hospital
-January 2003   Living donor transplant from cousin
-April 2009  kidney fails  back on dialysis - present 4x per week
-January 2013 - started nocturnal dialysis 3x week for 6 hours per treatment
-April 2013 - Nocturnal shift is discontinued, treatments reduced to 5 hrs apiece
July 3 2016 Received 2nd transplant from cadaver doner
Two years post transplant doing fantastic so far
Cordelia
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Gender: Female
Posts: 2012
« Reply #10 on: September 18, 2011, 12:50:21 PM »
Thanks, CebuShan!    :cuddle;  That's awesome how much you've raised so far! Good luck!    :bandance;

I think this may be a direct link:

http://donate.kidney.org/site/PageServer
Logged
Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
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