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Author Topic: 5th fistula placement tomorrow  (Read 3026 times)
dyann
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« on: August 30, 2011, 07:15:40 PM »
Only two years on dialysis and on the 5th fistula placement  one only ever worked  and it is now going bad  so another back up one  it is was it is,  just a bit down  its ok though.
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cariad
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« Reply #1 on: August 30, 2011, 07:22:23 PM »
So sorry, dyann. Let's hope 5 is your lucky number.  :grouphug;
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Riki
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« Reply #2 on: August 30, 2011, 07:27:12 PM »
I think I'd want to know why they've stopped working.. wow... 5 in 2 years?  I've had 2 in 20 years, and the first one was never actually used.
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
dyann
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« Reply #3 on: August 30, 2011, 08:02:07 PM »
I have been told that I scar very badly,  I have had 10 fistulagrams do to the scar tissue it is frustrating  at some point I may have to go to PD  I dont know,  but will continue to think positve and fight :boxing;
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boswife
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us and fam easter 2013
« Reply #4 on: August 30, 2011, 08:07:07 PM »
Thats right!!!!!  keep fighting  :boxing;  and you'll win  :flower;  Sending my prayers that this one is thee one to carry you to health...   :pray;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
monrein
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« Reply #5 on: August 30, 2011, 08:51:48 PM »
So sorry you've been having so much trouble...hope this attempt is successful.  :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
MooseMom
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« Reply #6 on: August 30, 2011, 09:51:04 PM »
I am really, really sorry to hear this.  Where will this new one be placed?  Would it be possible for you to have a graft instead?  Or is that a stupid question...I really don't know.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
jbeany
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« Reply #7 on: August 31, 2011, 12:52:51 PM »
 :grouphug; :grouphug; :grouphug;
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lmunchkin
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« Reply #8 on: September 01, 2011, 07:56:39 PM »
So sorry for these problems with the fistulas.  Hopefully this one will be the one!  They are so great when they work!  Will be praying  :pray; this will be it for you!

lmunchkin    :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
daveosaurus
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« Reply #9 on: September 01, 2011, 08:12:07 PM »
I'm new here but I can feel your frustration. Don't give up and remember the secret password ...  :secret; perseverance!

Oh, if you only knew how many words I spelled wrong you'd be really thankful for spell check!  :2thumbsup;
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boswife
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us and fam easter 2013
« Reply #10 on: September 01, 2011, 08:19:21 PM »
how ya doen dyann?  and....... your funny daveosaurus...  im a crazy speller at times and just forget to look back to see what i wrote... gotta remember that spellcheck!!!!
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Riki
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« Reply #11 on: September 02, 2011, 09:16:48 PM »
I think that if I had to have so many fistulas put in, and still had the option for PD, I'd be doing that really quick. I am a bit biased on PD, however, as I involuntarily gave it up
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
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HD - Dec 2008-present
dyann
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« Reply #12 on: September 03, 2011, 12:33:13 PM »
Feeling pretty good they are hoping this one goes better,  I have to admit I was a little down  it just seems things dont ever get better,  but meeting with my clinic nurse on tuesday to discuss my concerns.  I feel like both arms have been through a war there are scars all over my arms.  I feel like everytime I turn around something else goes wrong.  would be nice to have a little break  even if just a small one  to go out and laugh and just feel normal for once.
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MooseMom
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« Reply #13 on: September 03, 2011, 02:36:42 PM »
Quote from: dyann on September 03, 2011, 12:33:13 PM
Feeling pretty good they are hoping this one goes better,  I have to admit I was a little down  it just seems things dont ever get better,  but meeting with my clinic nurse on tuesday to discuss my concerns.  I feel like both arms have been through a war there are scars all over my arms.  I feel like everytime I turn around something else goes wrong.  would be nice to have a little break  even if just a small one  to go out and laugh and just feel normal for once.
Yes, it is all so unrelenting.  And I don't know what "normal" is, anymore.  I really hope that you will get a scrap of good luck and will have a good, working fistula soonest.  If scarring is such a problem for you, has your surgeon given you his reason for thinking that this time your new fistula will be successful?  And again, is there a possibility that a graft instead of a fistula might be the answer for you? 

Please keep us posted on how you are getting on, OK?  I'm eager to know how well this fistula will perform for you.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
lmunchkin
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« Reply #14 on: September 04, 2011, 12:57:54 PM »
How is it going for you Dyann?  Do you feel the "frill"?  It was so strange when I felt my husbands "frill".  It was like a bee fluttering under his skin.  Knock on wood, he has had it for over 2years now and it is still kicking.  Some find them ugly, but I find it "BEAUTIFUL".

I really hope and pray this goes great for you.  You certainly deserve a break from all of this surgery stuff!  Crossing my fingers and whatever else there is!

God Bless,

lmunchkin

 :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
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