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Author Topic: Crap! I forgot my cassettes  (Read 3039 times)
Annig83
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« on: May 08, 2012, 03:12:45 PM »
I'm visiting my inlaws for 2 days. My boyfriend packed the car with all my supplies, but forgot mycassettes for my liberty cycler. Any suggestions? FMC won't deliver me a box and there is only a hemo center here!
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*~Annie~*
Any change, even a change for the better, is always accompanied by drawbacks and discomforts.
Arnold Bennett
Even though I have gone through so much with ESRD, my son is my inspiration to keep going.  He was delievered at 28 weeks weighing 1 lb 12 oz and today he is a fun-loving 1 year old, whom I love with all my heart!

Diagnosed with Nephrotic Syndrome Age 13- 1996 Unknown Cause. 35% functioning of both kidneys.
Stable until Age 27; complications with pregnancy, loss of 25% function. (Current functioning is between 5-7%).
December 3, 2010- PD Catheter Placed on Left Side
March 2011- PD Catheter Removal (Due to malfunction)
April 2011- PD Catheter Placement on Right Side
April 2011- Surgery to adjust Catheter and "tacking of fatty tissue"
May 2011- CCPD Started
October 2012- Infection of PD catheter.  PD Cath. removal surgery. Perma-Cath. Placed for Hemodialysis.
Hemodialysis started October 12, 2012.
January 16 2013- First Fistula
On Transplant List in Indiana, awaiting 1st Transplant at IU Health in Indianapolis.
WishIKnew
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Alports, dialysis '07-'12,cancer'11,transplant '12
« Reply #1 on: May 08, 2012, 03:19:48 PM »
What state are you in?

Try local hospitals to see if they use Liberty Cyclers for patients.

Call Fresenius back and ask them for the nearest unit they deliver to which would have what you need and go there tomorrow or try to get their 24 hour nurse on call number.

Hope this works out!
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smcd23
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The patient, the baby and the donor - October 2010

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« Reply #2 on: May 08, 2012, 06:05:41 PM »
Like WishIKnew I was going to suggest calling the nearest Fresenius facility and see if they PD nurse can give you some. I know they can get more delivered and keep a stash for when they train new patients. I am sure they could spare one if you explain the situation.
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Caregiver to Husband with ESRD.

1995 - Diagnosed with vesicoureteral reflux and had surgery to repair at age 11. Post surgery left side still had Stage I VUR, right side was okay. Both sides were underdeveloped.
2005 - Discovered renal function was declining, causing HBP. Regular monitoring began.

March 2008 - Started transplant evaluation for preemptive transplant due to declining function.

September 16, 2008 - Transplanted with my kidney.
September 18, 2008 - Kidney was removed due to thrombosis in the vessels in and leading to the kidney.

October 2008 - Listed in Region I

May 2009 - Started in Center Hemo
January 2010 - Started CCPD on Liberty Cycler

June 15, 2012 - Kidney transplant from a 43 year old deceased donor
June 22, 2012 - Major acute rejection episode and hospitalization began
June 27, 2012 - Nephrectomy to remove kidney after complete HLA antibody rejection. Possibly not eligible for another transplant, ever again.

Now what?
Bill Peckham
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« Reply #3 on: May 08, 2012, 06:10:06 PM »
Quote from: smcd23 on May 08, 2012, 06:05:41 PM
Like WishIKnew I was going to suggest calling the nearest Fresenius facility and see if they PD nurse can give you some. I know they can get more delivered and keep a stash for when they train new patients. I am sure they could spare one if you explain the situation.


You might find there is someone on PD nearby that could help you out. I have found NxStagers when in a pinch and there are fewer of us then PDers. Putting out a call for assistance on the Home Dialysis Central PD board and here might find someone close by.
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
Annig83
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« Reply #4 on: May 08, 2012, 07:48:13 PM »
I'm in the Tell City Indiana area. I will try all of your suggestions! Thank you all!!!
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*~Annie~*
Any change, even a change for the better, is always accompanied by drawbacks and discomforts.
Arnold Bennett
Even though I have gone through so much with ESRD, my son is my inspiration to keep going.  He was delievered at 28 weeks weighing 1 lb 12 oz and today he is a fun-loving 1 year old, whom I love with all my heart!

Diagnosed with Nephrotic Syndrome Age 13- 1996 Unknown Cause. 35% functioning of both kidneys.
Stable until Age 27; complications with pregnancy, loss of 25% function. (Current functioning is between 5-7%).
December 3, 2010- PD Catheter Placed on Left Side
March 2011- PD Catheter Removal (Due to malfunction)
April 2011- PD Catheter Placement on Right Side
April 2011- Surgery to adjust Catheter and "tacking of fatty tissue"
May 2011- CCPD Started
October 2012- Infection of PD catheter.  PD Cath. removal surgery. Perma-Cath. Placed for Hemodialysis.
Hemodialysis started October 12, 2012.
January 16 2013- First Fistula
On Transplant List in Indiana, awaiting 1st Transplant at IU Health in Indianapolis.
smcd23
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The patient, the baby and the donor - October 2010

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« Reply #5 on: May 08, 2012, 08:11:09 PM »
The nearest facility (30+ miles) is:
FRESENIUS MEDICAL CARE CORYDON
1141 HOSPITAL DRIVE
SUITE B-1
CORYDON, IN 47112
(812) 738-6200

But they don't list home dialysis. The nearest facility that lists home dialysis as a treatment option is 45 miles from Tell City:
FRESENIUS MEDICAL CARE OHIO VALLEY DIALYSIS
230 BELLEMEADE AVENUE
EVANSVILLE, IN 47713
(812)425-4111

Don't know if the phone #'s are 100% correct because I had to google search them after I got the facility name from the Fresenius webpage.
Good luck!
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Caregiver to Husband with ESRD.

1995 - Diagnosed with vesicoureteral reflux and had surgery to repair at age 11. Post surgery left side still had Stage I VUR, right side was okay. Both sides were underdeveloped.
2005 - Discovered renal function was declining, causing HBP. Regular monitoring began.

March 2008 - Started transplant evaluation for preemptive transplant due to declining function.

September 16, 2008 - Transplanted with my kidney.
September 18, 2008 - Kidney was removed due to thrombosis in the vessels in and leading to the kidney.

October 2008 - Listed in Region I

May 2009 - Started in Center Hemo
January 2010 - Started CCPD on Liberty Cycler

June 15, 2012 - Kidney transplant from a 43 year old deceased donor
June 22, 2012 - Major acute rejection episode and hospitalization began
June 27, 2012 - Nephrectomy to remove kidney after complete HLA antibody rejection. Possibly not eligible for another transplant, ever again.

Now what?
Annig83
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« Reply #6 on: May 09, 2012, 08:53:19 AM »
I found a facility that will give me cassettes in Evansville! You are wonderful!!!! Thank you guys for the info. :)
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*~Annie~*
Any change, even a change for the better, is always accompanied by drawbacks and discomforts.
Arnold Bennett
Even though I have gone through so much with ESRD, my son is my inspiration to keep going.  He was delievered at 28 weeks weighing 1 lb 12 oz and today he is a fun-loving 1 year old, whom I love with all my heart!

Diagnosed with Nephrotic Syndrome Age 13- 1996 Unknown Cause. 35% functioning of both kidneys.
Stable until Age 27; complications with pregnancy, loss of 25% function. (Current functioning is between 5-7%).
December 3, 2010- PD Catheter Placed on Left Side
March 2011- PD Catheter Removal (Due to malfunction)
April 2011- PD Catheter Placement on Right Side
April 2011- Surgery to adjust Catheter and "tacking of fatty tissue"
May 2011- CCPD Started
October 2012- Infection of PD catheter.  PD Cath. removal surgery. Perma-Cath. Placed for Hemodialysis.
Hemodialysis started October 12, 2012.
January 16 2013- First Fistula
On Transplant List in Indiana, awaiting 1st Transplant at IU Health in Indianapolis.
smcd23
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Gender: Female
Posts: 528


The patient, the baby and the donor - October 2010

WWW
« Reply #7 on: May 09, 2012, 10:42:22 AM »
Yay! Glad everything worked out!  ;D
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Caregiver to Husband with ESRD.

1995 - Diagnosed with vesicoureteral reflux and had surgery to repair at age 11. Post surgery left side still had Stage I VUR, right side was okay. Both sides were underdeveloped.
2005 - Discovered renal function was declining, causing HBP. Regular monitoring began.

March 2008 - Started transplant evaluation for preemptive transplant due to declining function.

September 16, 2008 - Transplanted with my kidney.
September 18, 2008 - Kidney was removed due to thrombosis in the vessels in and leading to the kidney.

October 2008 - Listed in Region I

May 2009 - Started in Center Hemo
January 2010 - Started CCPD on Liberty Cycler

June 15, 2012 - Kidney transplant from a 43 year old deceased donor
June 22, 2012 - Major acute rejection episode and hospitalization began
June 27, 2012 - Nephrectomy to remove kidney after complete HLA antibody rejection. Possibly not eligible for another transplant, ever again.

Now what?
bleija
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Posts: 572
« Reply #8 on: May 09, 2012, 12:15:08 PM »
everytime i travel anywhere, the first thing i prepare is all my dialysis supplies... and onece i am 100% sure i have it all then i look at what clothes , but i am terrified of doing exactly this
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wbdoug
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« Reply #9 on: May 09, 2012, 12:22:18 PM »
Due to the fact that there is a lot of stuff to remember to take when traveling on pd I made up a spread sheet to check off the supplies as I pack them and the correct quantities based on the number of nights I will be traveling (or camping). I have two seperate lists, one for capd and one for ccpd.
I will be happy to share these with anyone who would like to see them.

Bill
« Last Edit: May 09, 2012, 12:25:51 PM by wbdoug » Logged
8/3/2011 PD Cath installed
Life keeps interfering with my plans
Annig83
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« Reply #10 on: May 10, 2012, 07:06:56 PM »
Send one for CCPD to me BILL!   :2thumbsup;
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*~Annie~*
Any change, even a change for the better, is always accompanied by drawbacks and discomforts.
Arnold Bennett
Even though I have gone through so much with ESRD, my son is my inspiration to keep going.  He was delievered at 28 weeks weighing 1 lb 12 oz and today he is a fun-loving 1 year old, whom I love with all my heart!

Diagnosed with Nephrotic Syndrome Age 13- 1996 Unknown Cause. 35% functioning of both kidneys.
Stable until Age 27; complications with pregnancy, loss of 25% function. (Current functioning is between 5-7%).
December 3, 2010- PD Catheter Placed on Left Side
March 2011- PD Catheter Removal (Due to malfunction)
April 2011- PD Catheter Placement on Right Side
April 2011- Surgery to adjust Catheter and "tacking of fatty tissue"
May 2011- CCPD Started
October 2012- Infection of PD catheter.  PD Cath. removal surgery. Perma-Cath. Placed for Hemodialysis.
Hemodialysis started October 12, 2012.
January 16 2013- First Fistula
On Transplant List in Indiana, awaiting 1st Transplant at IU Health in Indianapolis.
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