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Author Topic: Tired - CKD or med side effect?  (Read 4094 times)
Deanne
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« on: August 29, 2011, 11:39:53 AM »
I'm tired, always tired. I get up in the morning and I'm tired. I drive to work and just want to sit in my car and nap. Is it CKD or is it a side effect of Toprol? I'm at about 20% function, probably a bit less than 20%.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
Cordelia
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« Reply #1 on: August 29, 2011, 12:32:44 PM »
It's the CKD.
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Pam
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« Reply #2 on: August 29, 2011, 01:16:59 PM »
Its the CKD! I'm on hemo have almost perfect labs and I'm tired all the time. It just doesn't end. Maybe if I could get a good nights sleep it would help. But so far nothing works for tthat.
Pam
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paris
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« Reply #3 on: August 29, 2011, 02:17:29 PM »
I agree with Pam.  I fell asleep at a stop light before I was diagnosed.  It is a tired I had never felt before -- like you are walking through quicksand in a huge fog.  And you can't explain to others how tired, because everyone says they are tired.   Don't push yourself. Rest when you can.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
monrein
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Might as well smile
« Reply #4 on: August 29, 2011, 02:33:24 PM »
Could be both together, the med compounding the relentless fatigue of the CKD.  One of Toprol's side effects apparently is increased difficulty sleeping so restless sleep and relentless fatigue equals your basic recipe for exhaustion. 
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
jbeany
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Cattitude
« Reply #5 on: August 31, 2011, 12:35:56 PM »
At 20%, anything less than 11 or 12 hours of sleep a night left me a whimpering mess the next day.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Deanne
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« Reply #6 on: September 16, 2011, 07:18:41 AM »
It turns out it was the Toprol. I saw my neph this week. She asked how my energy level was. When I said "What energy?" she asked right away if I thought it was from Toprol because my creatinine level is pretty stable. She cut my Toprol dose in half, doubled my lasix dose to 80mg/day, and is adding in another bp med (I don't remember the name of it. I'll have it in a few days through mail order). It only took about a day to notice the difference. I know I'm still more tired than "normal" people, but I'm able to function again.

As a bonus, by doubling the lasix dose, I found my ankles! They've been lost for quite a while.   :bandance;
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
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