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Dialysis: General Discussion
Help! I am scared for tomorrow
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Topic: Help! I am scared for tomorrow (Read 4737 times)
ESRD Survivor
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Help! I am scared for tomorrow
«
on:
May 24, 2011, 05:07:22 PM »
For the first time I am being stuck with needles instead of using my cath. I doubt I will sleep tonight I am so scared its going to be a terrible feeling. I have some elma cream to use, but really how much pain will I feel? I know we all have different pain levels, but please tell me how it went for you the very first time.
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willowtreewren
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My two beautifull granddaughters
Re: Help! I am scared for tomorrow
«
Reply #1 on:
May 24, 2011, 05:36:09 PM »
Fear is your worst enemy!
Put the cream on about an hour before you expect to be stuck. And try to relax.
My husband swears that it really wasn't so bad.
thinking of you.
Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011.
bette1
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My dear daughter
Re: Help! I am scared for tomorrow
«
Reply #2 on:
May 24, 2011, 06:18:15 PM »
First of all relax, when you tense up it just makes it worse. The elma cream helps a lot, but it will not be painless. I have a fear of needles too, so I understand. It's kind of like a bad blood draw shot. It's not really that bad. Once they get the needles in the worse part is keeping your arm still for 3 hours.
Good Luck!
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Diagnosed with FSGS April of 1987
First Dialysis 11/87 - CAPD
Transplant #1 10/13/94
Second round of Dialysis stated 9/06 - In Center Hemo
Transplant #2 5/24/10
lmunchkin
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"There Is No Place Like Home!"
Re: Help! I am scared for tomorrow
«
Reply #3 on:
May 24, 2011, 06:53:16 PM »
Yea, I remember hubby being petrified of needles too. But once stuck, he wondered what all the dread was. It's like nothing to him now! You'll do fine, I promise! Let us know how it goes, okay?
lmunchkin
«
Last Edit: May 24, 2011, 06:57:59 PM by lmunchkin
»
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present. NxStage at home
sullidog
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Re: Help! I am scared for tomorrow
«
Reply #4 on:
May 24, 2011, 07:39:29 PM »
It's not bad at all, just relax, you will feel a pintch still with the cream, but after a while you may not even need it, I don't use it anymore. It's just like another blooddrawl/iv to me.
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
GraphicBass
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Re: Help! I am scared for tomorrow
«
Reply #5 on:
May 24, 2011, 07:44:29 PM »
It's 5 seconds per stick of blood-draw discomfort, then it's over. When your buttonhole is established (you are getting a buttonhole started first thing, right?) it's easy-peasey.
gary
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dyann
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Re: Help! I am scared for tomorrow
«
Reply #6 on:
May 24, 2011, 08:27:25 PM »
I was so afraid of sticking myself I do home hemo but it wasent as bad as I thought I know I am one of the lucky ones I dont even have to use the cream but once it is in I am fine. Good luck it will be ok I promise!
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kamar55
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Re: Help! I am scared for tomorrow
«
Reply #7 on:
May 25, 2011, 02:44:44 PM »
I never used the cream--don't think I was even told about it. It's just a pinch and then it's over. If it hurts a bit, I usually clench my toes until the pain goes away--it works for me.
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Want unconditional love? Want a friend for life? Adopt an animal from your local shelter. It's a win, win situation!!
kellyt
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Re: Help! I am scared for tomorrow
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Reply #8 on:
May 25, 2011, 03:22:08 PM »
You will be in our thoughts tomorrow! Be strong! I'm sure the first day is the worst!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!
DawnLee
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Re: Help! I am scared for tomorrow
«
Reply #9 on:
May 25, 2011, 04:37:50 PM »
I see from the date and time your first needle stick is over, how was your first treatment without the cath? I'm happy that you now have a fistula or graft it is better for you and your dialysis treatment. Let me know how everything went.
DawnLee
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huldafolk
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Re: Help! I am scared for tomorrow
«
Reply #10 on:
May 26, 2011, 08:41:23 AM »
I have been doing hemo D for over 7.5 years now. I always put on the emla cream 1 hour prior to treatment. When time for needles, I ALWAYS have LOCAL anesthetic placed by needle first. The emla makes the LA needle less burning.( if placed slowly), I have good areas for insertion and BAD areas to this day that feel like the needle is going right through a 1/2 inch diameter nerve root. This will lift you right out of the chair even after the emla and LA combined. Most times if done well by nurse, it is not a painful issue ( but as stated , the potential is there!)
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1980 diagnosed with ADPKD
2003 EMERG. Bi-lateral nephrectomies IVC STENT
2003-now 3x/week 4hours each hemo at clinic
2003-2004 multiple complications /ileostomy
2004 reversal of ileostomy
2010 colostomy
2003 to now ,on transplant list(on and off due to complications)
8 years on list> said to be at top of list for transplant.
2010 RCA Heart STENT
2011 Restent RCA with Drug Eluting (70% closed in 3 months)
LAD stent with drug eluting (66mm long stent)
On transplant list again!!2011/3
ESRD Survivor
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Re: Help! I am scared for tomorrow
«
Reply #11 on:
May 26, 2011, 09:17:42 AM »
Well it isn't over...my tech called in sick and I want him to do all my sticks as to establish the button hole. It won't be till tomorrow now, so another sleepless night is a head of me. lol I plan to use elma cream and laticane for a little while until I get used to it.
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carol1987
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Re: Help! I am scared for tomorrow
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Reply #12 on:
May 26, 2011, 09:27:53 AM »
Don't forget to wrap your arm with saran wrap after you put the emla cream on...
The fear before starting was much worse than the actual experience... I will be thinking of you!!!
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Diagnosed with PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
kitkatz
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Re: Help! I am scared for tomorrow
«
Reply #13 on:
May 26, 2011, 07:23:53 PM »
So... how did it go?
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lifenotonthelist.com
Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5
Remember your present situation is not your final destination.
Take it one day, one hour, one minute, one second at a time.
"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
bluesgirl
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Re: Help! I am scared for tomorrow
«
Reply #14 on:
May 26, 2011, 11:40:35 PM »
being pre-D this is one of my concerns, the pain of the stick. I've always been afraid of needles, even though this has got better now that for the last year I've had to have so many tests done every month. So my question is does it actually hurt even if you put emla on an hour before? How much does it hurt with the emla? Like a normal blood-draw for a blood-test or worse?
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G-Ma
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Re: Help! I am scared for tomorrow
«
Reply #15 on:
May 27, 2011, 12:37:34 AM »
This from a chicken...emla=no pain...I started buttonhones in Jan and awesome, NO PAIN, take crust off and needle slides right in and pop..that's all and without emla.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07. Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Bruno
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TOFF (typical old Fart)
Re: Help! I am scared for tomorrow
«
Reply #16 on:
May 27, 2011, 03:02:09 AM »
You are quite right to be afraid, I was scared s**tless.
Still am, but now I'm sticking the needles in myself...seriously, you do get used to it and if you buttonhole it hurts even less - I have one spot where I can't feel a thing and the other access it hurts a bit.
I believe it hurts less if you do it yourself rather than having someone do it for you.
Strange but its true.
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Hazmat35
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Re: Help! I am scared for tomorrow
«
Reply #17 on:
May 27, 2011, 07:41:39 AM »
I have been NEEDLE-PHOBIC since i was a little kid.
Having to be stuck with needles was like a repeating nightmare for me. I use the Emla cream and it helps, but mine is a MENTAL issue!
I have since worked out my "demons" with this issue. They have been using a button-hole on me for about 2 months now, and it is so easy! I still use the cream, but not as much. Sometimes I still have some "anxiety" attacks now and then, but it is much better.
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Brother Passed away - 1990 - Liver Disease
Diagnosed w/ Polycystic Kidney Disease - 1998
Mother passed away - Feb. 1999 - PKD
Sister passed away - Feb. 2006 - PKD
AV Fistula / Upper Left Arm - September 2009
Father passed away - September 2009
In-Center Hemo Dialysis - April 2010
Broken Knee Cap - January 2015
Diagnosed w/ A-Fib October 2017
Surgery to repair Hiatal Hernia 2018
Multiple Fistula Grams / Angioplasty's since then!
Hating Dialysis since Day 1 and everyday since then!!!!
RightSide
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Re: Help! I am scared for tomorrow
«
Reply #18 on:
May 27, 2011, 08:38:35 AM »
Quote from: carol1987 on May 26, 2011, 09:27:53 AM
Don't forget to wrap your arm with saran wrap after you put the emla cream on...
Wrap your arm LOOSELY!
Don't wrap it so tight that you put pressure on your new fistula.
Believe me, it gets routine very quickly. Just remember that the treatment is there to make you feel better.
Fear is all in the mind.
Good luck.
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ESRD Survivor
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Re: Help! I am scared for tomorrow
«
Reply #19 on:
May 27, 2011, 02:00:36 PM »
So I did it! I put the elma cream on an hour before and they used some litocain and I felt nothing.....but....it was only one needle, used the cath for return and it was a 17 gauge. I alarmed almost the whole time, the pressure would not go more than 200, so the finally just hooked me up totally to the cath so I could get better cleaning. They tell me this is not unusual. They will work me up to the big needles soon.
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willowtreewren
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My two beautifull granddaughters
Re: Help! I am scared for tomorrow
«
Reply #20 on:
May 27, 2011, 02:18:57 PM »
Congratulations!
You did it!
The worst part is over now. Truly, dreading something is usually far worse than the actual event.
I'm glad you have this hurdle behind you!
Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011.
noahvale
Guest
Re: Help! I am scared for tomorrow
«
Reply #21 on:
May 27, 2011, 04:23:28 PM »
^^
«
Last Edit: September 16, 2015, 08:32:36 AM by noahvale
»
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needlephobic
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Re: Help! I am scared for tomorrow
«
Reply #22 on:
May 27, 2011, 08:56:18 PM »
I really don't know how you guys do it. I am so scared of needles freak out just thinking about them. I am getting help with my phoba. but still not ready to be stuck. Last time I was stuck with a needle it took 8 people to hold me down to get a IV in. ((((( shivers ))))) took me a while to read this thread I freaked out to many times
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boswife
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us and fam easter 2013
Re: Help! I am scared for tomorrow
«
Reply #23 on:
May 27, 2011, 09:27:50 PM »
So glad ya got to 'get it done'!! It's so scarry even for the partner!! I had big deals (phobias) to get over and im not the patient!! Just to be there with him was so hard at first and he graciously let me out of the room when he got the needles. Now, im doing it for him...lol I wish you well with it all, and keep in touch letting us know your experience. It'll all be old hat sooner than ya think
And needlephobic... im glad your getting help with your fears.. It's awful when something is soooooooo strong in ya like that!! and espacially when it's something ya really need... YUCK! I have 'issues' were not quite as bad as yours, but pretty darn awful, It was sheer determination to help hubby that i fought and finally won!! Oh, im still afraid of needles and cant watch him stick himself with insulun, but i can do his needles for D. Mabie you can work on just that one ? I wish you well, i know it's tough!
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
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