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Author Topic: Has anyone else lost their hearing for days or weeks at a time?  (Read 1582 times)
cesposito2
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« on: May 01, 2011, 04:21:54 AM »

Hey everyone. I am so frustrated!! I have been on dialysis almost 20 years now (between 4 kidney transplants) and I am only 31. Anyway, starting in 2004, I have been losing my hearing on and off (mostly my hearing was fine) for hours, days, and sometimes weeks at a time. I had my hearing checked by a specialist as well as my kidney doctors and they all seem to think it is from pressure changes on dialysis.

Anyway, my hearing has been gone for the last 4 months (everyday whether I am dialyzing or not). And by gone I mean sometimes it is totally gone where I hear nothing and the other times I can hear some volume (so I know people are speaking), but the words get muffled (and so I don't know what they are saying). And speaking louder doesn't help because the words are still muffled.

I was just wondering if anyone else has experienced this (for extended periods of time) because I have heard that other patients do experience some hearing issues while on the machine, but nobody seems to know of anyone who has experienced it for extended periods of time.

If anyone has exprienced (or knows what I'm talking about), please let me know. I feel so alone and frustrated. My kidney "team" is no help as they just chalk it up to dialysis (like they do with any other problem I have).  :boxing;
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I have always felt that staying informed about your disease is key to making the treatment work. I like to say: “The only person with you (the patient) all the time, is you (the patient), so the more involved you are in your care, the better the outcome!”
Poppylicious
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« Reply #1 on: May 01, 2011, 12:02:25 PM »

I have no answers (sorry) but I know my Blokey occasionally loses hearing in his right ear after dialysis.  It doesn't seem to last long though (a matter of hours at most).  I hope that you get some answers; it must be so frustrating.
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
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sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
iketchum
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« Reply #2 on: May 01, 2011, 12:57:04 PM »

I developed ringing in both ears but the left was worse. I have just been told I need a hearing aid in the left ear. I do not know if it is the dialysis or the meds that have caused this.
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*kana*
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« Reply #3 on: May 01, 2011, 04:36:54 PM »

Quote
have been on dialysis almost 20 years now (between 4 kidney transplants) and I am only 31
Oh good lord, I am sorry you have had to deal with this "all" of your life.  I was just happy to get to 38 before my kidneys totally failed.  I can't imagine what you have gone through.  Sorry, can't help you with your question.  I have gotten hearing loss only when I was dehydrated and stood up too fast.  I wish you the very best!
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PD started 09/08
PKD kidneys removed 06/17/09

Failed donor transplant-donor kidney removed,
suspected cancer so not used 06/17/09

Hemo 06/2009-08/2009

Liberty Cycler-11/09-5/13
Nx Stage-current tx
Diagnosed with SEP 2014
sullidog
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« Reply #4 on: May 01, 2011, 06:01:15 PM »

I've had it happened in the left but it cleared up after that evening that I had dialysis, im curious of what causes this as well.
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
greg10
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« Reply #5 on: May 01, 2011, 07:17:43 PM »

Unfortunately this is all too common with patients with kidney failure.  You should try to rule out other causes such as some of the antibiotics you are taking and also check for vitamin and mineral deficiencies, but it is likely due to toxins build up in your system that may lead to some neuropathy.  Better and longer dialysis may help.

« Last Edit: May 01, 2011, 07:18:58 PM by greg10 » Logged

Newbie caretaker, so I may not know what I am talking about :)
Caretaker for my elderly father who has his first and current graft in March, 2010.
Previously in-center hemodialysis in national chain, now doing NxStage home dialysis training.
End of September 2010: after twelve days of training, we were asked to start dialyzing on our own at home, reluctantly, we agreed.
If you are on HD, did you know that Rapid fluid removal (UF = ultrafiltration) during dialysis is associated with cardiovascular morbidity?  http://ihatedialysis.com/forum/index.php?topic=20596
We follow a modified version: UF limit = (weight in kg)  *  10 ml/kg/hr * (130 - age)/100

How do you know you are getting sufficient hemodialysis?  Know your HDP!  Scribner, B. H. and D. G. Oreopoulos (2002). "The Hemodialysis Product (HDP): A Better Index of Dialysis Adequacy than Kt/V." Dialysis & Transplantation 31(1).   http://www.therenalnetwork.org/qi/resources/HDP.pdf
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