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Author Topic: Better News  (Read 1722 times)
murf
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« on: April 19, 2011, 05:26:07 PM »
As some of you know, I have been been going through a pretty hard time of late. Been taken off the transplant list and have to have a triple bypass next month. Arteries have narrowed as a result of build up of calcium . At my last meeting with my neph, I posed the question outright. Do you think I will ever get back to the transplant list. He looked at me quizzically and stated: "why do you think we are going through all this?" He then asked me my age (58) and reiterated, "of course you will get back". That means so much to me. There is now light at the end of the tunnel. After my operation, I'll ask the next obvious question. How long before I get back?
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Started Hemodialysis Anzac Day 2005
Patiently waiting for a transplant
Started PD New Year 2010
Taken off transpalnt list, Jan 211
willowtreewren
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My two beautifull granddaughters

WWW
« Reply #1 on: April 19, 2011, 06:49:15 PM »
Most important thing is to get as healthy as you can and stay that way!  :2thumbsup;

Get through this surgery and take it one step at a time...

Here is hoping for you.  :thumbup;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Ang
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« Reply #2 on: April 19, 2011, 08:04:12 PM »
one step at a time even for 58 year olds
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live  life  to  the  full  and you won't  die  wondering
AguynamedKim
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« Reply #3 on: April 19, 2011, 08:37:43 PM »
Great to hear the positive attitude from the doctor. I'm thinking positive thoughts for you, murf!
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Pre-dialysis - Intro: http://ihatedialysis.com/forum/index.php?topic=20344.0
RichardMEL
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« Reply #4 on: April 19, 2011, 08:49:53 PM »
Murf - that reassurance is worth so much to you - I can't begin to imagine the sense of relief, and probably renewed purpose, you got from hearing that from the neph!

You're still young mate, you'll get back on and get that call - remember this "time out" from the list just means you're inactive, but you're still counting up "time credit" so when you get back on that will definitely count in your favour in a major way.

As for how soon you can get back on? Who can tell. I think the focus should be on getting yourself as healthy as you can post the op (but don't push things - this is your heart we're talking about!) and when that happens you'll be in the best shape to accept that donor kidney.

I'm so glad you have some light, and something (a goal) to keep you positive and motivated - this is a great thing!!!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
murf
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« Reply #5 on: April 19, 2011, 09:20:54 PM »
Richard, you have an innate way of putting people's feelings into words. I reckon you must have great empathy. Also many thanks to all the well wishers.
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Started Hemodialysis Anzac Day 2005
Patiently waiting for a transplant
Started PD New Year 2010
Taken off transpalnt list, Jan 211
kristina
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« Reply #6 on: April 20, 2011, 01:55:06 PM »
Hello, murf,

I keep my fingers crossed and send you my best wishes.

Good luck from Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #7 on: April 20, 2011, 03:15:56 PM »
good luck friend thinking of you!

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
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