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Author Topic: Heart Surgery  (Read 3861 times)
murf
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« on: January 23, 2011, 12:47:45 PM »

After my heart stress test and angiogram, the doctors found I had two small blockages inn the heart valves. Not a life threating effect but enough to take me off the transplant list. Surgeon stated that he has seen this type of problem quite often in dialysis patients. I have been given two choices. Have a stent put in and wait twelve months before I can go back on the list (something to do with the medication given with a stent) or have open heart surgery and hopefully (as long as I survive) and go back on the list in six months. I have never feared surgery so opting for the surgery.
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Started Hemodialysis Anzac Day 2005
Patiently waiting for a transplant
Started PD New Year 2010
Taken off transpalnt list, Jan 211
phyl1215
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« Reply #1 on: January 23, 2011, 01:22:41 PM »

I had the heart surgery years ago before I found out I was on the transplant list.  Having a stent put in is not that bad but waiting another year I know is hard.  I had a single bypass and my Dr. said it was better in the long run for me.  Best of luck. 
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PD 3 yrs.
TX list 4 yrs.
Deceased donor PERFECT MATCH Kidney transplant July 8, 2012


Learning To Dance In The Rain
Jean
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« Reply #2 on: January 23, 2011, 03:34:13 PM »

Good luck Murf and I hope they get it done for you soon.
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One day at a time, thats all I can do.
Nephrologista
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« Reply #3 on: January 23, 2011, 03:49:35 PM »

Murf, the one-year delay suggests that the doctor would be using drug-eluting stents.  Those secrete tiny amounts of a drug to prevent scar tissue from filling up the stent.  However, the drug also really slows down the process where the metal of the stent is covered up by the wall of the blood vessel.  As long as there's metal exposed to the blood flow, there's a clotting risk, so you have to take Plavix.  Plavis is a super-aspirin and it takes about seven days to get out of your system, so it makes a transplant surgery impossible.  That's why you'd be off the transplant list.  Even if you had a live donor, it wouldn't be safe for you to come off the Plavix long enough to get the surgery.  A clot in the stent would block the blood flow to that section of the heart - that's by definition a heart attack.

HOWEVER - drug eluting stents aren't the only stents out there.  Before we had those, there were bare metal stents.  You have to take Plavix for about six weeks, to let the blood vessel slowly grow over the metal.  But then you're good to go.  We upgraded to drug-eluting stents to prevent "in-stent restenosis."  That's when the blood vessel wall overgrowth goes too far, slowing closing off the stent.  It doesn't happen suddenly, like a heart attack.  Instead, you get the same angina symptoms you get when a blockage of your own is slowly developing.  In-stent restenosis is why drug-eluting stents took off in a big way.

THERE IS NOW VERY GOOD EVIDENCE that the drug-eluting stents offer NO BENEFIT in dialysis patients over the bare metal stents.  There is no reason to knock you off the transplant list for a year, just so you can take Plavix.  Your cardiologist (likely not a surgeon, they don't put in stents) may not be aware of this literature, it was published in the nephrology journals.  Have him or your neph research it and see if you can get the bare metal stent instead.
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Nephrologista
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Believes in prevention, transplantation, and longer, slower dialysis
Cordelia
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« Reply #4 on: January 23, 2011, 05:18:29 PM »

I hope you can get on that list soon!  :)
Good luck and take care! :grouphug;
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Jie
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« Reply #5 on: January 23, 2011, 05:50:21 PM »

When I did the angiogram, the doctor told me that there are two kinds of stents, one requiring 90 days of medicines another for one year. So there is a choice here.   
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RichardMEL
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« Reply #6 on: January 23, 2011, 07:18:39 PM »

Wow Murf that's a kick in the pants for you either way. I think I probably would have gone for the surgery also.

Hang in there mate and good luck with it!!!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
galvo
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« Reply #7 on: January 23, 2011, 10:22:42 PM »

Bummer, Murf. Good luck with whatever decision you make.
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Galvo
phyl1215
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« Reply #8 on: March 10, 2011, 07:26:18 AM »

Well, I just had to have 3 stents put in about a week ago.  What a shock, was doing the cath to start doing treatments to lower my antibodies and this was just a check up!!!  One artery was 99%, one 90 and one 75, Doc said I was hanging on by a thread!!!!  I'm still in shock.  I am now on hold for 6 mths. on the transplant list, I hate that but I guess better than the other choice.  On hold because of the Plavix as you have to be on it for 1 yr. but my Dr. said I could be back active on the list in 6 mths. as they could stop the med. during the TX time.  Drama continues!
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PD 3 yrs.
TX list 4 yrs.
Deceased donor PERFECT MATCH Kidney transplant July 8, 2012


Learning To Dance In The Rain
huldafolk
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« Reply #9 on: March 10, 2011, 08:10:19 AM »

I live in Canada.  I have been on and off the list for ~ 7 years.  I just finished having a bare metal stent reworked with a drug-eluting one due to restenosis of 70% in 3 months.  They also had to stent the entire length of the LAD coronary artery (66mm) with drug eluting.  The transplant doctor came to see me and stated that he would place me back on the active/ready transplant list after4 weeks from the stent placement.  They seem to want to get me off dialysis due to multitude of complications over the years.  I an on Plavix/ASA/coumadin, as well as sometimes require Fragmin injection to bridge during operations.
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1980 diagnosed with ADPKD
2003 EMERG. Bi-lateral nephrectomies IVC STENT
2003-now 3x/week 4hours each hemo at clinic
2003-2004 multiple complications /ileostomy
2004 reversal of ileostomy
2010 colostomy
2003 to now ,on transplant list(on and off due to complications)
8 years on list> said to be at top of list for transplant.
2010 RCA Heart STENT
2011 Restent RCA with Drug Eluting (70% closed in 3 months)
LAD stent with drug eluting (66mm long stent)
On transplant list again!!2011/3
KICKSTART
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In da House.

« Reply #10 on: March 10, 2011, 11:06:39 AM »

Go for the safest option not the quickest , time will pass soon enough.
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
rocker
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« Reply #11 on: March 10, 2011, 11:22:48 AM »

Plavis is a super-aspirin and it takes about seven days to get out of your system, so it makes a transplant surgery impossible.

It does not make transplant impossible, in fact, the only effect seems to be a somewhat higher risk of needing a transfusion after the surgery.

http://www.pslgroup.com/dg/2231f6.htm is a study from 2008.
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murf
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« Reply #12 on: March 10, 2011, 02:34:09 PM »

Got the word from the cardio. Lot more work than what I had first thought. I have to have a triple by pass using the vein from the leg as a graft. Three days in ICU, 9 days in the ward. and then 2 weeks in rehab (I live alone so they won't send me home)/ Good news is that I stay at the Mount hospital which is like a hotel/ Op is in June. As always, I will take things as they come but must admit this is the biggest operation I will have to face. No driving, lifting for two months after the op. Start physio the day after the op. Doctor reckons the main pain will come from the leg.
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Started Hemodialysis Anzac Day 2005
Patiently waiting for a transplant
Started PD New Year 2010
Taken off transpalnt list, Jan 211
Des
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« Reply #13 on: March 10, 2011, 09:46:43 PM »

Oh my, when are you going in?

 :cuddle;
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
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Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
rsudock
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will of the healthy makes up the fate of the sick.

« Reply #14 on: March 11, 2011, 12:31:24 AM »

thinking of you Murf. Stay strong!!
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
phyl1215
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« Reply #15 on: March 11, 2011, 07:06:50 AM »

Well, I guess if it doesn't kill us it makes us stronger, as the saying goes.  We do what we have to do and hopefully all will turn out well for you Murf, sending prayers and good vibes your way.  Huldafolk, that is a lot of work but getting back on the list in 4 wks. is great, I also wish you the best and let us know how you do.  Now I have to do 3 mths. of cardaic rehab 3 x's a week to build my strength up in the hospital.....never a dull moment!!! :P
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PD 3 yrs.
TX list 4 yrs.
Deceased donor PERFECT MATCH Kidney transplant July 8, 2012


Learning To Dance In The Rain
murf
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« Reply #16 on: March 11, 2011, 01:31:44 PM »

never a dull moment!!!

Thanks for your kind thoughts. Henry S. will probably down my throat when I say this: The heart surgery is an Interesting diversion away from the every day hum drum of daily dialysis. BTW, I will be off the transplant list for another 6 months so, fingers crossed, back by Xmas.
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Started Hemodialysis Anzac Day 2005
Patiently waiting for a transplant
Started PD New Year 2010
Taken off transpalnt list, Jan 211
galvo
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« Reply #17 on: March 11, 2011, 09:38:05 PM »

Good luck to you, Murf!
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Galvo
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« Reply #18 on: March 11, 2011, 10:11:29 PM »

This time that you are off the list...are you losing this accrued time?  I'm not sure how this sort of things work.

I wish you all the very best.  Make sure they get you into tip top shape!

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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Henry P Snicklesnorter
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« Reply #19 on: March 11, 2011, 11:58:48 PM »

.


« Last Edit: October 22, 2013, 03:38:28 PM by Henry P Snicklesnorter » Logged
Jean
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« Reply #20 on: March 12, 2011, 12:01:23 AM »

Best of luck to you Murf.
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One day at a time, thats all I can do.
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