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Author Topic: Eating issues  (Read 3393 times)
Ladystardust24
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Keep Calm, Carry on.

« on: August 17, 2011, 03:38:35 AM »

A little background:

I've had many stomach surgeries, and a part of my stomach was used to create a bladder.

Well, anyways, I eat VERY little. (Like, 6 french fries in, and I cannot eat at all)

So, this was all ok. But then I talked to my renal team and therapist.

I've been on diets my entire life. So, I have a hard time sometimes realizing how much of what is ok. I'm used to limiting. And, due to keeping track of things, I have OCD/anxiety.

But, with an active lifestyle now, Being 22 and not always getting a chance/or desire to eat. I tend to push it aside. I rarely feel actually HUNGRY. Well, besides actual real medical reasons, somewhere along my lines of "I want to get healthy" and go from 125 in a year to 102. And at some point the lines have blurred for me what was "healthy" and what was not. I take my meds and all. Blood is fine.

Coming to my point.

I was recently diagnosed with a ED and I'm not sure how to handle it. As in, I'm getting help for it. And I recognized what was "Wrong" in my ways. But it doesn't make my feelings just go away. If I "overeat" (like more than say appetizer) I feel sick, physically. And I hate that feeling. So i always feel like it's not even worth the effort.

Luckily, I've seeked out the help I will need. And have many supportive friends. But my doctors have said this is a very common issue. Since dealing with diets and all is our life. And feeling sick. Also, other factors. I was wondering if anyone had any experience with this stuff.  ::)
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Dialysis 99-01
transplanted 01-04
Dialysis 04-10
Currently Transplant 10-22 +!

Very grateful for my Ziggy Bean.
Gandalf
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"Character is Destiny" Heraclitus

« Reply #1 on: August 17, 2011, 05:39:22 AM »

I am in no position to offer any wise advice - just to say I am sharing some of your confusion and difficulty.  I am a survivor of quite a destructive ED, and have really struggled with the dialysis thing - like you I have spent much of my life restricting and avoiding food, and the preoccupation with weighing/dietary restrictions etc inherent to the hemodialysis process is really, really difficult for me too.  I guess ultimately I am hoping that with time the anxiety will become less, and one will develop some sense of perspective on the fact that it is all a necessity to stay alive) both dialysis and eating that is!)  Wish there was something helpful and constructive that i could offer, other than to say I am there too, and pretty much struggling too!
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Cordelia
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« Reply #2 on: August 17, 2011, 05:12:26 PM »

I'm really glad you've seeked help. I think that is great and you are taking a step in the right direction.      :cuddle;  to you!
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Rerun
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Going through life tied to a chair!

« Reply #3 on: August 17, 2011, 05:42:24 PM »

Help me here.....  what is ED?

                :shy;
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Cordelia
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« Reply #4 on: August 17, 2011, 05:50:47 PM »

Eating Disorder
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
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