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Author Topic: What would your neph want?  (Read 3503 times)
MooseMom
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« on: January 18, 2011, 11:32:30 PM »
Have any of you had a read of some of the many websites and blogs about CKD and/or dialysis?  More than one blogger has suggested that as we decide what modality might suit us best, we should ask our nephs how THEY would want to receive dialysis if their kidneys failed.  I doubt they'd ever request incenter hemo 3xweekly like we have now in the US.  Have any of you asked your own neph this question?  I haven't, but I think I may.  I think that might be a very good standard by which to measure the efficacy of treatment...what would your neph want for him/herself?

If any of you DO get the opportunity to ask, I'd be very interested in any replies.

PS...here's a partial reply, taken from a link posted by noahvale in another IHD thread about a dialysis pioneer...

http://www.aakp.org/aakp-library/Option-Dialyzing-at-Home/index.cfm
« Last Edit: January 18, 2011, 11:40:00 PM by MooseMom » Logged
"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
PatDowns
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« Reply #1 on: January 19, 2011, 04:49:24 PM »
My nephrologist believes that transplantation offers the best chance of living a normal life and would try to get one before having to go on dialysis for any extended period of time.  And, if he had to (reluctantly) go on dialysis....he would set up a machine in his office.  Would not want it in his home life.
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Frank Moiger aka (previously) NoahVale and now PatDowns, the name originally chosen by a good dialysis mate who died in 12/2013.  I started in center hemodialysis as a 22 y.o. in 1978.  Cadaver transplant in 1990 and then back to in center hemodialysis in 2004 (nocturnal shift since 2011) after losing my transplant.  Former Associate  Director/Communications Director of the NKF of Georgia, President of the Atlanta Area AAKP Chapter, and consumer representative to ESRD Network 6.  Self-employed since 1993.

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Sun-Tue-Thur - 6 hours per treatment
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Ang
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« Reply #2 on: January 19, 2011, 06:55:08 PM »
you don't give  a hoot what your neph wants you tell them this is what i would like because
a
b
c
you then ask them "is this feasible " for me
YES/NO, why
take it from there
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live  life  to  the  full  and you won't  die  wondering
kellyt
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« Reply #3 on: January 19, 2011, 07:31:18 PM »
I adore and respect the hell out of my pre transplant nephrologist, as he diagnosed me and I was with him from day 1 (diagnosed in 1993).  I totally wanted to know what he would do if he were in my shoes and he said other than transplant, which was our plan from the beginning, he said home hemo.   When he and I discussed what he thought might be a better option for me, being that I didn't want to start with home hemo for multiple reasons, he suggested nocturnal.  And that's what were were planning to do up to the point of transplant.  He is the lead physician/nephrologist the nocturnal dialysis unit downtown and he was reserving me a chair from March 2008 until I transplanted in Nov 2008.  I didn't allow him to release the chair until my transplant was deemed a success.  lol  He was more than happy to do it.

I love my pre transplant neph!  I hope I never have to see him again!   :clap;
« Last Edit: January 20, 2011, 04:14:26 PM by kellyt » Logged
1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Lillupie
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« Reply #4 on: January 19, 2011, 08:13:15 PM »
My neph is very honest, and always says he would do PD. He seems to think PD is the best.

Lisa
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cookie2008
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« Reply #5 on: January 19, 2011, 08:16:42 PM »
He said he would do home dialysis, big fan of pd, and nxstage.
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Started PD in 11/07
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« Reply #6 on: January 20, 2011, 03:19:35 PM »
My neph would just list all the things he expects me to do (as his own preference)
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