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Author Topic: Going to the ER for migraine  (Read 4095 times)
rsudock
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will of the healthy makes up the fate of the sick.

« on: March 17, 2011, 09:36:05 PM »

Good grief does anyone else get migraines after D? I mean these suckers are bad and seem to hit the worse on Mondays after D. Seems like going 2 days without D is not for me.....

Here's the story....So Monday after D came home ate some lasagna and went to bed. My head started to hurt as soon as I got off the machine and was in full fledge hurting mood half and hour later. So I am laying in bed with ICE packs all over my head and the pain is throbbing and I am feeling sick to my stomach. Finally after being in pain all night at 4am I wake up my bro to take me to the ER. As we are driving to the ER he pulls over so I can puke for like 10 mins. Then I am screaming at him to give me a tissue and instantly feel bad b/c it is not his fault I am sick...he has to deal with this stuff too!

Go to the ER and that is when I get REALLY mad!  :rant;  What the hell is the problem with the ER making people waiting for 30 mins to get help? My brother and I were the ONLY ones in the ER and I am bawling at this point. Wanted to tear my freaking head off! They just keep asking me questions and wanted my insurance (ha I don't have any) Then the real kicker they send in a male nurse who I am going to give the name of dumb ass. so this dumb ass tries to put in an IV I told him to put it under my right forearm but NO where does he put in in the crook of my wrist! right below the thumb where the wrist bends. Me -"That is not going to work there you need to find a different spot." DA-"No the vein looks really good." so the whole time he is wiggling it around and pushing it in and out trying to fill these blood vials. I say "you are hurting me stop moving around the IV." DA "I will stop moving it" well guess what he keeps moving it around hurting me!!!! (Remember I have a major migraine pain too!) so I kick his ass out and they send in another nurse and guess what she goes exactly where I want (without me asking) gets it the first time with NO pain. So then I start crying again and saying to her, "What the hell is wrong with that asshole that he can't listen to a patient in pain and put the IV where I want. I have been a pin cushion my whole life and know what is up with my body. You people in the medical field are heartless and cruel...blah blah blah " So then the doctor came in and gave me deluded and some nausea pills and man I finally had relief. Then I started crying to the doc about the American kidney fund denying my claim and how crappy the medical system is blah blah blah...I am sure they didn't care but I felt better....of course I am probably on some kind of list of jerk patients but oh well...I get so depressed dealing with the medical profession. People don't give a care about sick people we are just a pay check, a job,.....

thanks for reading my rant!

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
okarol
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« Reply #1 on: March 17, 2011, 09:42:01 PM »

My husband is not on dialysis, but he gets monster migraines. Only thing that works most of the time is Imitrex.
I get so mad when medical folks keeps digging around when the IV won't work, and it hurts! Jeeez buddy, let me have the needle and show you how it feels!
 :cuddle; :cuddle; :cuddle;

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Admin for IHateDialysis 2008 - 2014, retired.
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MooseMom
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« Reply #2 on: March 18, 2011, 12:51:19 AM »

I am really sorry that you had to experience such awful pain, but I AM glad that you had that rant in the hospital.  I think that sometimes, medical personnel have to be reminded that patients are people with emotions and frustrations.  I hope that the people you came into contact with will remember your words the next time they are tempted to treat a patient with such disregard.

I'm glad you are feeling better.  I have had migraines only 3 times in my life.  I had just moved to London; it was 1985, and I had just married.  I was about to start a job, but first I was going to play tourist.  I must have walked 5 or 6 miles from The City down Fleet Street and into the West End. I stopped off at a pizza place for lunch, and I felt the most colossal headache coming on.  I had planned to hang around and meet my husband at the end of the work day, but I had to get home and lie down.  To this day, I have no memory of how I got back to the flat.  Once I got there, I phoned my husband to tell him that I was already home, but the pain was so bad that I couldn't speak.  It was such a scary thing, and I really feel for people who experience this sort of pain on a regular basis.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Hazmat35
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« Reply #3 on: March 18, 2011, 04:17:59 AM »

I know exactly how you feel.  I used to get Migraines years ago, but, before I started Dialysis.  I used to go to the ER because the pain so so intense, I couldn't even open my eyes.  ANY light and the slightest sound was like it was amplified 1,000 times!  Its was awful.

They use to give me a shot of Demerol (?).  And I went so often, that I was actually put on their drug list and they were not allowed to give me that medicine anymore, they started giving me some generic.  It worked, but not as good. 

Just Tuesday I had to go to our ER here because I was having severe back pains from my PKD.  I was very surprised, that I was taken in immediately, and there were other people in the waiting room, and they starting bitching when I went right in.  (SORRY FOLKS) :sarcasm;

Right away the nurse gave me an IV and some pain meds with some Dilaudid.  THANK GOD for that!!!

But, back to the topic, ER people are usually the WORST when it comes to human compassion.  I think that they are just so use to people coming in in pain, that they get use to it, and it just rolls off their back.  They need to rotate with other floors.  I know that the nursing staff on the floors when you are admitted are great at our hospital, but the ER folks are horrible!!!!!!
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Brother Passed away - 1990 - Liver Disease
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Mother passed away - Feb. 1999 - PKD
Sister passed away - Feb. 2006 - PKD
AV Fistula / Upper Left Arm - September 2009
Father passed away - September 2009
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Hating Dialysis since Day 1 and everyday since then!!!!  :)
gothiclovemonkey
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« Reply #4 on: March 18, 2011, 06:19:33 AM »

I too get the bad headaches after D, usually on mondays, or if ive missed a day, but sometimes, just cuz lol I asked my dr, who is about as useful as an bucket with a hole in it, he said that the D changes the chemicals in my brain, "probably" what causes it.

And, oh my ya, i have terrible veins, probably due to being a pin cushion as well, and they dont listen. When I went to the ER last time, it took 6 people, two tries each before they finally got it. Heck, when I went to have my son, they stuck me THIRTY TWO 32 yes 32 times before deiciding to do a line in my neck!!!

I hope U feel better, I know it sucks...  :cuddle;
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« Reply #5 on: March 18, 2011, 06:24:35 AM »

 :grouphug; :grouphug; :grouphug;

I understand how awful migraines are. I used to get them many years ago. At first I felt like I was going to die. Then as they continued, I worried that I WASN'T going to die, but just continue to live in that excruciating pain.  :Kit n Stik;

Hugs to you.....

Aleta
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needlephobic
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« Reply #6 on: March 21, 2011, 05:16:41 PM »

Same prob EPO and iron gives me real bad migraines. and when I ask questions they don't give me answers just excusses. I asked them why I need a iron shot when I am in the target range charge nurse told me my lab report was a misprint WTF the whole year worth of lab works a misprint yeah righ I buy it. The she tells me the unit MGR wants it ata number much higher than the target range. Who is he God I work best at the numbers im on right now. If they don't know the answer get somebody who does
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rsudock
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will of the healthy makes up the fate of the sick.

« Reply #7 on: March 21, 2011, 06:01:38 PM »

thanks everyone for the replies...it just makes me chuckle b/c before transplant I barely took any pain meds or any drugs. Now that I am on D I feel like a full fledge drug addict! Jeesh!!

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
rsudock
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will of the healthy makes up the fate of the sick.

« Reply #8 on: March 22, 2011, 06:44:02 PM »

sorry I haven't been posting went to the ER again for a migraine Tuesday morning...I don't know friends being in this much pain scares me...I am trying to hang on...

xo,
R
Logged

Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
YLGuy
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« Reply #9 on: March 22, 2011, 07:17:01 PM »

I am so sorry to hear that you are in so much pain.
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boswife
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us and fam easter 2013

« Reply #10 on: March 22, 2011, 08:18:16 PM »

I hope your feeling a bit better... Im really sorry and hope they have figured something out for you  :'(
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
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