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Author Topic: Finally  (Read 2067 times)
GoingThere
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« on: November 26, 2010, 11:06:16 AM »
I'm on the list  :2thumbsup;

Now, lets wait for the call.

GT
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1995 - kidney biopsy - IgA
2002 - BP 220/140 - hospitilized
2004 - stage 3 of kidney failure
2005 - stagae 4of kidney failure
2009 - on the edge of stage 5
july 2010 - stage 5
14 july 2010 - catheter inserted and first D session
15 july 2010 - AV fistula created
dec. 2012 - tx with major rejection (plasmapheresis, atg, prednisone pulses)
apr 2013 - kidney function stable
casper2636
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« Reply #1 on: November 26, 2010, 11:55:09 AM »
GT
The hardest part is the wait. Take a number and keep with the faith. This site will help with the frustration and help bid :flower; :flower;e your time waiting for that gift. I'm a newbie and it's helped me immensely! :flower;
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #2 on: November 26, 2010, 12:22:15 PM »
Good! How long is the wait in your area?
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
GoingThere
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« Reply #3 on: November 26, 2010, 03:04:48 PM »
Okarol, around 1-1,5 years.
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1995 - kidney biopsy - IgA
2002 - BP 220/140 - hospitilized
2004 - stage 3 of kidney failure
2005 - stagae 4of kidney failure
2009 - on the edge of stage 5
july 2010 - stage 5
14 july 2010 - catheter inserted and first D session
15 july 2010 - AV fistula created
dec. 2012 - tx with major rejection (plasmapheresis, atg, prednisone pulses)
apr 2013 - kidney function stable
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #4 on: November 26, 2010, 03:08:53 PM »
wow GT that is not a long wait at all! In my area in Ohio I believe it is around 5 to 7 years....eek!
I am wondering though if having O blood makes it longer since that is the only blood type you can accept....does anyone know?

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Rivy
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« Reply #5 on: November 26, 2010, 04:17:11 PM »
Quote from: GoingThere on November 26, 2010, 11:06:16 AM
I'm on the list  :2thumbsup;

Now, lets wait for the call.

GT
Congratulation :clap;,  I've been on the list since April of this year.  I hate the wait and in our AREA is 1-5 years.  I think that lenght of time is feeling more and more sick where it will get you off the list.  I really think here in ABQ that they dont transplant from Cadavers . If you have aa family  member who is willing it's quicker.  I feel it has to do with money.. A cadaver cant pay.. I'm just saying.  Why does it always take 1-5 years and most wait for 5 years or more.
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RightSide
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« Reply #6 on: November 26, 2010, 06:16:43 PM »
Quote from: rsudock on November 26, 2010, 03:08:53 PM
wow GT that is not a long wait at all! In my area in Ohio I believe it is around 5 to 7 years....eek!
I am wondering though if having O blood makes it longer since that is the only blood type you can accept....does anyone know?
Yes, those with type O blood may have a longer wait than average.  At least that is what my transplant hospital told me.
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boswife
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us and fam easter 2013
« Reply #7 on: November 26, 2010, 08:15:48 PM »
What a wonderful feeling that must be!  congratulations!!  im happy for this new faze in your life.
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
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