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Author Topic: Short of breathe  (Read 3337 times)
murf
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« on: October 28, 2010, 03:43:26 PM »

Finally have found out why I was continually losing breathe after any exertion. My right lung has collapsed, have a small blockage in my heart and a BP that reads about 80/60. Knowing helps. My doctors now want to find out what is the cause of the symptoms and then do something about it. I think I am beginning to appreciate the renal team more than ever.
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Started Hemodialysis Anzac Day 2005
Patiently waiting for a transplant
Started PD New Year 2010
Taken off transpalnt list, Jan 211
natnnnat
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« Reply #1 on: October 28, 2010, 09:54:24 PM »

Hey what!???  This is worrying news, Murf.  Please keep us informed as they come up with what on earth might be causing this. 
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
MooseMom
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« Reply #2 on: October 28, 2010, 10:19:27 PM »

"Oh by the way, my lung has collapsed..."  That's a bit of a shock!  I didn't realize you were having respiratory problems.  So, what do you think will happen next?  Is reinflating your lung a huge undertaking?  And what will they do about the small blockage in your heart?  You'll keep us posted, right?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
RichardMEL
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« Reply #3 on: October 29, 2010, 03:56:52 AM »

bloody hell - that's a shock to read mate!! You seem a little casual about it!! I hope they can sort you out very soon! Yikes!!!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
FindingNeverland
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« Reply #4 on: October 29, 2010, 12:29:38 PM »

That's no fun, I've had that happen twice now since I've been on dialysis. I guess I wasn't getting good enough treatment so I was accumulating fluid in the cavity around my lungs and each time that they tried to drain it, my right lung partially collapsed. The second time I had to have a chest tube put in to help re-inflate it and drain the rest of the fluid. My doctor re-assessed my dry weight and now I go in for extra UF treatments every week to help keep the fluid from accumulating again. I hope they find out what the cause is so they can fix it.
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~*Laughter is the Language of the Soul*~
RightSide
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« Reply #5 on: October 29, 2010, 06:34:33 PM »

It's not good news that you've got these pulmonary problems.

But it sure is good news that your health care team found these problems while you can still get them treated successfully.

One thing I've noticed about nephrologists and the rest of the renal team:  They sure know a whole lot about the entire body, not just kidneys.  To be a nephrologist, one must first master internal medicine.

In fact, when I got HMO Blue health insurance, I chose my neph to also be my primary care physician.  That way, if he needs to make any changes to my dialysis treatment, he can write a referral to himself.   ;D
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murf
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« Reply #6 on: October 29, 2010, 06:35:41 PM »

Off to Royal Perth Hospital to see what is causing these problems. It may appear that I am a little casual about all this, but I have a philosophy of accepting what is and doing your utmost to improve the situation. Casual - no, just realistic.
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Started Hemodialysis Anzac Day 2005
Patiently waiting for a transplant
Started PD New Year 2010
Taken off transpalnt list, Jan 211
RichardMEL
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« Reply #7 on: October 30, 2010, 12:29:53 AM »

Best of luck mate! Will be thinking of you!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Riki
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« Reply #8 on: October 30, 2010, 05:52:00 PM »


One thing I've noticed about nephrologists and the rest of the renal team:  They sure know a whole lot about the entire body, not just kidneys.  To be a nephrologist, one must first master internal medicine.

My nephrologist was an internal specialist before he trained in nephrology.  I remember, when he was still training, he was doing rounds in the hospital (I was admitted at the time) and he had an intern with him.  Even though I was there for peritonitis and starting HD, he pointed out the psoriasis on my leg and explained to the intern why it looked the way it did.
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
murf
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« Reply #9 on: November 05, 2010, 03:53:01 PM »

To be up to date. Start physio for my lungs on Monday. Told it is like a deflated balloon that needs to be pumped up. Good news is that the problem can be fixed. See cardiologist at end of Month. Stress test shows level 1 blockage which is not too serious. Report says there is no need for surgery nor should it affect major surgery. Neph is away so won't know about my placement on the transplant list.
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Started Hemodialysis Anzac Day 2005
Patiently waiting for a transplant
Started PD New Year 2010
Taken off transpalnt list, Jan 211
RichardMEL
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« Reply #10 on: November 07, 2010, 05:15:24 PM »

good news Murf! Sounds like it could have been a whole lot worse... so we take heart that your situation can be fixed up hopefully!  :2thumbsup; :clap;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
billybags
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« Reply #11 on: November 08, 2010, 10:47:37 AM »

Murf hope every thing is OK with you.
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murf
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« Reply #12 on: November 10, 2010, 12:28:45 AM »

Just having a whinge (vent to Americans). I have a triple whammy. Dialysis (as we know) takes off fluid which often drops your BP, I have a collapsed right lung which drops your BP and a small blockage in my heart which drops your BP. So for the last three weeks my blood pressure has been reading in the vicinity of 80/60. So I am constantly buggered. There is a brighter note. Started physio on my lungs which can be repaired. He says like a balloon that needs reflating. See the cardio on Nov. 30 and because I am so tired, I am sleeping like I haven't slept in years. Always look on the bright side of life..... But today, I have had enough. Tomorrow is another day, Now that's off my chest, I feel better already.
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Started Hemodialysis Anzac Day 2005
Patiently waiting for a transplant
Started PD New Year 2010
Taken off transpalnt list, Jan 211
billybags
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« Reply #13 on: November 10, 2010, 06:36:03 AM »

Good you keep getting it off your chest. Hope you feel better to-morrow.
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natnnnat
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« Reply #14 on: November 10, 2010, 03:33:14 PM »

If you get things off your chest, it might help you breathe anyway.
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
rsudock
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will of the healthy makes up the fate of the sick.

« Reply #15 on: November 10, 2010, 06:15:17 PM »

Murf what caused the blockage? Is that dialysis related you think?
Hope you are on the mend quickly!
xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
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