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Author Topic: Graduation Day!!  (Read 2241 times)
Desert Dancer
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« on: November 08, 2010, 06:36:21 AM »
In a half-hour we'll be on our way to the center for our very last training session... one home visit tomorrow and then starting Wednesday we'll be on our own at home! I'm so excited! And SO nervous! I cannot believe I've actually accomplished this. I can't believe I actually cannulate myself, for starters, and then everything that goes with it. I can't believe I got precisely what I set out to get and there's a dialysis machine next to my bed.

It's still all so strange sometimes, like I've accidentally stumbled into someone else's life. It's very strange to look down at my new buttonholes and my fistula scar, and realize they will be there forever. It should make me despair but it doesn't - they feel like such an accomplishment now, paid for in infiltrations and tears, and they are going to buy me more time in this body!

I just wanted to share this day with people who will understand its significance. Thank you all for being here for me, even if all I've done mostly is read till now.  :thx;
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
Tracy
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Loved the Movie!
« Reply #1 on: November 08, 2010, 07:55:46 AM »
Congratulations!  Sometimes, I feel like you.  Like it is not to despair, but be thankful.  Good Luck!

You can do it!!

Tracy :)  :cheer:
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9/1990 Found out I have Type 1 Diabetes
7/2008 Told I have GFR 30
2/2009 Kidney/Pancreas Transplant
5 days later, both removed due to massive rejection
Back on List
2/26/10 Fistula placed
3/11/10 Told GFR 9
5/14/10 Started in center Hemo
Waiting on another Transplant
YLGuy
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« Reply #2 on: November 08, 2010, 07:57:40 AM »
 :bandance; Congratulations!
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Stoday
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« Reply #3 on: November 08, 2010, 08:02:58 AM »
That's great DD.

How much time did you need for the training? I can see it took a little over a month, but how many days/hours did you need?
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
billybags
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« Reply #4 on: November 08, 2010, 10:44:39 AM »
So pleased for you. Hope every thing goes OK>
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boswife
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us and fam easter 2013
« Reply #5 on: November 08, 2010, 01:32:30 PM »
i read this off my phone this morning and couldnt wait to get on here and congratulate you!!   :bandance;  It is so exciting to me to hear of your expreience.  WE're on wait right now for our NxStage training, so will be going through "it" all pretty soon, so this was HUGE to me to hear just where your at with it..  EXCITING to say the least.  Please, when you have the chance, write more on the nxStage section here as to how your progressing at home.  Again, CONGRATULATONS!!  Wish we were where you are already.. :cheer: 
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Desert Dancer
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« Reply #6 on: November 09, 2010, 05:45:11 AM »
Thanks for all your well-wishes, everyone!

Stoday, I began the training on 9/28; I went every day for six weeks and spent an average of 4 hours a day, so I guess that comes out to about 120 hours of training. My husband only had to come in for four days towards the end, since all he was required to know involved putting me on the machine, getting me off the machine and dealing with emergencies. (He'll learn the rest at home.)

Boswife, I will certainly be posting my experience here now that I've got my time freed up. I'm so excited for you - do you know when you'll be able to start training?
Logged
August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
GraphicBass
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« Reply #7 on: November 09, 2010, 05:53:13 AM »
Congratulations on your new stage of treatment.

I'm nowhere near being able to do home dialysis yet, but I certainly understand your feeling of "stumbling into someone else's life"! I feel the same way most days; it's unreal!

Best of luck!

gary
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kitkatz
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« Reply #8 on: November 09, 2010, 09:04:52 PM »
Good luck with at home dialysis.  :yahoo; :yahoo;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Riki
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WWW
« Reply #9 on: November 09, 2010, 11:26:51 PM »
Awesome news!  It's not something that I could do, I don't think, but I love that others are able to.  I don't think home hemo is available here anyway, but with my eyesight, I don't think I could put my own needles in anyway, and I don't see my mom doing it either.. *L*
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
chook
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Born to be a Granma!
« Reply #10 on: November 09, 2010, 11:48:28 PM »
Wishing you problem free nights!!!!  :clap;
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
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