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Author Topic: WATCH OUT WATCH OUT !  (Read 4032 times)
KICKSTART
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In da House.
« on: October 10, 2010, 01:51:41 AM »
There's a new KICKSTART about !!!! and all thanks to one nurse! . Well yesterday was D day and as usual i was dreading it ! I went in and the nurse had managed to find out that it WAS possible to set the machine to HD ! So i said ok lets give it a go ...WOW what a difference , a totally different session altogether ! I CAME OFF SMILING !  :bandance; :cheer: :bandance; :cheer: Ok so i came off with some pain over my eye but im know thats the lights in there, but how i felt must be how you guys feel. Its amazing what a simple change has done...Hey RM i even got my BVM down to 84 !!!! with no adverse effects! Im still in shock at how good i feel ! I slept a whole 10 hours last night , got up and felt like a new person ! That nurse is going to get a big thankyou card from me next week , but wouldnt you think my neph would have come up with this ? I am really  :pray; it wasnt a one off , but i cant see it.  Hopefully this will now be of help to anyone else that this happens to , finally an answer why !  Im just so happy i dont know what to say !  :2thumbsup;

MM Im probably not very good at describing the difference between HD & HDF but this is how the nurse described it ; HDF is the latest treatment and throughout D she said it blast the toxins out of your bloodstream , then sucks them up. With HD its a gentler treatment that doesnt blast them out . So who says progress is the way forward !
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
RichardMEL
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« Reply #1 on: October 10, 2010, 03:11:34 AM »
This sounds very promising!!! Long may it continue!

 :yahoo; :yahoo; :yahoo;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
billybags
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« Reply #2 on: October 10, 2010, 03:14:36 AM »
Wow, that sounds brilliant, long may it last.
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Darthvadar
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« Reply #3 on: October 10, 2010, 04:31:05 AM »
Yippie!!!!!..... Great to hear this news!.....

You're right though.... You'd think someone would have listened to what you were saying AGES ago!....

My mum's Neph. always says to me "You're the expert on Elsie... What do I know???"....

Keep the inprovement going.....

Love to the pawed people....

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #4 on: October 10, 2010, 05:03:43 AM »
Great!! :thumbup;  I do hope it continues like that.  This was a great start to my IHD morning :cuddle;
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
kremizin
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« Reply #5 on: October 10, 2010, 05:24:33 AM »
wow! nice to hear this news! :clap; honestly...whenever i read kiskstart's thread, it somewhat make me anxious about my mom's condition specially once she starts dialysis.
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Zach
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"Still crazy after all these years."
« Reply #6 on: October 10, 2010, 05:41:13 AM »
 :beer1; :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
monrein
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Might as well smile
« Reply #7 on: October 10, 2010, 06:02:31 AM »
 :clap;    :cuddle;    :flower;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
jbeany
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Cattitude
« Reply #8 on: October 10, 2010, 07:32:12 AM »
A solution at last!   :bandance;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
greg10
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« Reply #9 on: October 10, 2010, 09:51:56 AM »
 :beer1;  Congratulations and here is a song to celebrate your success!

Watchout now, take care
http://www.youtube.com/watch?v=C6H_-uA6IvU
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Newbie caretaker, so I may not know what I am talking about :)
Caretaker for my elderly father who has his first and current graft in March, 2010.
Previously in-center hemodialysis in national chain, now doing NxStage home dialysis training.
End of September 2010: after twelve days of training, we were asked to start dialyzing on our own at home, reluctantly, we agreed.
If you are on HD, did you know that Rapid fluid removal (UF = ultrafiltration) during dialysis is associated with cardiovascular morbidity?  http://ihatedialysis.com/forum/index.php?topic=20596
We follow a modified version: UF limit = (weight in kg)  *  10 ml/kg/hr * (130 - age)/100

How do you know you are getting sufficient hemodialysis?  Know your HDP!  Scribner, B. H. and D. G. Oreopoulos (2002). "The Hemodialysis Product (HDP): A Better Index of Dialysis Adequacy than Kt/V." Dialysis & Transplantation 31(1).   http://www.therenalnetwork.org/qi/resources/HDP.pdf
kellyt
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« Reply #10 on: October 10, 2010, 10:29:18 AM »
That's great!  You sound so upbeat and energetic!  I hope that's the case.   Keep up the great sessions!!!!   :2thumbsup; :cuddle;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
kamar55
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« Reply #11 on: October 10, 2010, 02:11:16 PM »
I'm so happy that things are working out for you--at last. Yippee!!!   :clap;
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Want unconditional love? Want a friend for life? Adopt an animal from your local shelter. It's a win, win situation!!
MooseMom
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« Reply #12 on: October 10, 2010, 02:23:40 PM »
Oh RickyG, that is just the most fab news!  I have been sooooo worried about you.  I KNEW there was something afoot; I KNEW there was an explanation for what was going wrong, you just had to discover it.  And your explanation re HD v HDF sounds reasonable to me.  Oh, this really is the most wonderful news, it's just fantastic.  I really really hope this signals the end of all of your difficulties.  I know you've been to hell, but now you've come back, and I am most eager to hear how your next several treatments go.  Be sure to tell us, OK?  I'll be looking for your posts in this thread!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
calypso
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« Reply #13 on: October 10, 2010, 02:50:31 PM »
Good news for a change? I like it!

Glad to hear you've found something that works for you! Finally!
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"The very powerful and the very stupid have one thing in common. Instead of altering their views to fit the facts, they alter the facts to fit their views ... which can be very uncomfortable if you happen to be one of the facts that needs altering.
-Doctor Who, "Face of Evil"

"The trouble with the world is not that people know too little, but that they know so many things that ain't so." - Mark Twain

"Darkness cannot drive out darkness; only light can do that. Hate cannot drive out hate; only love can do that." -Martin Luther King Jr.
KICKSTART
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In da House.
« Reply #14 on: October 10, 2010, 03:20:00 PM »
Thanks everyone ..something so simple ,its unbelievable!  ;)

PS ..MM just for you !!!  :rofl;
« Last Edit: October 10, 2010, 03:33:36 PM by KICKSTART » Logged
OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
paris
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« Reply #15 on: October 10, 2010, 03:36:45 PM »
Wonderful news!   You can see such a difference in just how you are posting.  I am so glad you had a good day.  I hope this is the answer and you stay this upbeat.  You certainly deserve a break.    Lots of love and hugs   :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
cariad
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What's past is prologue
« Reply #16 on: October 10, 2010, 08:51:35 PM »
Oh, yeah!!! Sweet! :yahoo;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Jean
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« Reply #17 on: October 11, 2010, 01:36:24 AM »
Wowie KS, that is awesome!!! Finally, some good news and some relief for you. Hope it just keeps on a coming.
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One day at a time, thats all I can do.
carol1987
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« Reply #18 on: October 11, 2010, 04:19:36 AM »
 :clap; :clap; YAY!!!!
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
KICKSTART
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In da House.
« Reply #19 on: October 11, 2010, 04:25:31 AM »
Day 2 of my 2 day break and im usually dragging myself breathless round the house or sat on the sofa ..NOT today ! Ive done more housework this morning than i get done in a week ! The weather is great so ive been out in the garden this morning , just sat enjoying it with a cup of tea ! Ive been sleeping for 8-10 hours which for me is unheard of! I cant begin to think that a different type of dialysis could make such a difference on so many levels! (maybe this is all a dream? ) My dogs think im the best thing since sliced bread and just keep bringing balls for me to throw. I pray that this good feeling remains with me (i wont overdo it !) and thanks to all those who encouraged me to carry on, i hope i can do the same for someone else. All know you have done your good deed for the day/week/year !!! Lots of Love   KS  x
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
Poppylicious
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« Reply #20 on: October 11, 2010, 08:13:41 AM »
Awww, that's fabulous Kickie.  I really hope your next session goes as well as the last (if not better). 

(Do you have enough energy to pop down to mine and get my housework done? Bring the dogs; they can chase my cats round the garden!)

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
gothiclovemonkey
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« Reply #21 on: October 11, 2010, 08:38:26 AM »
Im very happy to hear things are looking up for u!!!
Im going to ask my center about this... see if maybe it works for me too Thank you for telling us about it!
I read how much trouble u have had and its wonderful that ur feeling so well! Hope it continues forever!
 :yahoo; :2thumbsup;
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
TX listed 8/1/11 inactive
LISTED ACTIVE! 11/14/11 !!!
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