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KICKSTART
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In da House.

« on: April 25, 2010, 11:18:59 AM »

Ive got strange symptoms , my hands and fingers feel strange , like gripping a pen and writing is hard work and walking about is like walking through tar. Im also getting quite a few cramps , from hands,feet ,right through to ribs, in fact turn or twist to quickly and i get them . NOW before you go through all the usual suggestions i am NOT ..dehydrated , fluid overloaded , blood work is all good , in fact nothing obvious blood work wise. One nurse said to me its usually a sign something is not right with your blood ..possibly low salt? But all my results are ok and im always good with salt , even before D.
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
karen547
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« Reply #1 on: April 25, 2010, 12:22:38 PM »

I would see your Primary Physician, so often we all assume any symptoms we get are related to kidney disease, and sometimes it is something entirely different. Go get checked out!
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-Lady Noir-
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Where's your will to be weird?

« Reply #2 on: April 25, 2010, 12:55:50 PM »

Sounds awful  :(
Are you on HD or PD?
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Expose yourself to your deepest fear. After that, fear has no power, and the fear of freedom shrinks and vanishes. You are free

..Nik..

Fiancee to Mike
Mikes 'history'....
Born September 12 1983
Seizure July 2003 [Unrelated to kidney]
Diagnosed with 'Polycystic Kidney Disease' July 2003 (Wrong diagnosis)
Diagnosed with  IgA Glomerulonephritis April 2004
On active transplant waiting list 2006
Hyperparathyroidism developed gradually
Parathyroidectomy May 2009 (Affected kidney function)
Hospitalized for hyperkalemia June 2009
Catheter inserted June 2009


Started CAPD June 2009
Stared APD September 2009

ABO Incompatible transplant 01 December 2010
Donor = Mikes father Greg
Rerun
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Going through life tied to a chair!

« Reply #3 on: April 25, 2010, 05:01:53 PM »

I would thing too high of Potassium, but if you haven't eaten any high potassium foods then I'm not sure.

                      ???
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Quickfeet
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Mack Potato

« Reply #4 on: April 25, 2010, 07:51:12 PM »

I vote potassum, but I'm sure that would have been on your blood work.

 :cuddle; It's no fun feeling miserable, I hope it's something that can be fixed easily.
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billybags
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« Reply #5 on: April 26, 2010, 06:54:54 AM »

KS keep us informed, you are not over doing the move are you? Doing too much?
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Darthvadar
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« Reply #6 on: April 26, 2010, 06:59:58 AM »

Mum had similar symptoms....

It was thought her potassium was too low.... It was at the low end of normal... The docs suggested stopping the double-boiling of potatoes, and the symptoms stopped...

Mum doesn't eat potatoes every day, though.... About twice or three times a week....

Hope it gets sorted out very soon!....

Love...

Darth....

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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
MooseMom
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« Reply #7 on: April 26, 2010, 08:35:07 AM »

This is a bit of a mystery!  Are you going to see your doctor about it?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
murf
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« Reply #8 on: April 26, 2010, 03:30:56 PM »

I think you may have a complaint that I have suffered with - carpel tunnel syndrome. Apparently it is quite common in dialysis patients. It is caused by a build up of calcium in the wrists. My doctor first prescribed a brace to push down on the vein to allow greater flow. It was only m,moderately successful so I had a simple day procedure to open up one of the veins. Been OK since the operation.
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Started Hemodialysis Anzac Day 2005
Patiently waiting for a transplant
Started PD New Year 2010
Taken off transpalnt list, Jan 211
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