cramping NO MORE!

melobelle

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Melody "melobelle" Murphy

cramping NO MORE!

« on: April 19, 2010, 05:08:18 AM »

I still urinate and when I first started dialysis, I would always feel way worse after dialysis. When I started getting unbelievable cramps one of the tecs mentioned, "too much fluid was taken off". I told them I still urinate and they shouldn't be taking ANY fluid off. I have to really monitor the nurses and tecs who hook me up. I make sure they ONLY take off what they put into me. Usually .50 or 500 ml. I really monitor this and as long as they don't take off any more fluid than they put into me I have NO MORE CRAMPING!


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RichardMEL

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Re: cramping NO MORE!

« Reply #1 on: April 19, 2010, 05:29:03 PM »

Comment: even if you still urinate some you may still be retaining some fluid. I still urinate a few hundred mils a day but obviously retain more so I need fluid taken off. Have you had a fluid analysis, either by BVM/crit line or the special scales that measure the % of fluid inside. It could well just be that your dry weight is set incorrectly and needs to be re-established. Of course some do not need fluid taken off if they are peeing out as much, if not more, than they take in between treatments, and if THAT is the case then definitely I agree just stick to the washback amount. Get your neph to verify this and put an order in to the unit that they only take off the minimum washback amount, if the neph feels that is appropriate.


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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions

27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!!

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!

sullidog

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Re: cramping NO MORE!

« Reply #2 on: April 19, 2010, 05:44:56 PM »

I'm the same way, keep in mind even with an order my techs would always take more off, it took a lecture from my neph for them to finally listen.
Troy


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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access

aharris2

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Volcan Pacaya, Guatemala

Re: cramping NO MORE!

« Reply #3 on: April 24, 2010, 01:38:05 PM »

Quote from: melobelle on April 19, 2010, 05:08:18 AM

I have to really monitor the nurses and tecs who hook me up.

Good for you for understanding this and taking charge.


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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
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Rest in peace my dear brother...

RightSide

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Re: cramping NO MORE!

« Reply #4 on: April 28, 2010, 03:40:52 PM »

What has made fluid management quite easy for me has been cutting way back on sodium. I consume no foods with added sodium anymore, except for a bagel or couple of slices of bread. I eat all meats and vegetables with no salt or added sodium whatsoever. I'm probably not getting more than 800 grams of sodium in my diet a day. The blood tests show that my blood sodium level is on the low side of normal, borderline hyponatremic.

And with that, even my damaged kidneys can still excrete nearly all the fluid. The amount they pull off at each dialysis session is minimal--never more than 1.1 kg, often less.


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