Ken 7% is pretty low. Yes, I felt OK at 6% when they started me, but I honestly think they were going off other lab issues than just the eGFR value - I think my calcium and potassium were getting a bit out of control and as we all know, specially with Potassium, that can lead to serious @#*)@#*)@@ if it goes unchecked - and if your Ca and PO4 get out of whack that can lead to serious bone disease.
I think there comes a point where it becomes a fact that even if you feel OK leaving it could become dangerous.
I'd also argue that in your case they *didn't* apply a one size fits all to you - otherwise you probably would have been on before 7% - like around 10% GFR. Seems that they left you as long as they felt safe because you were feeling OK. I guess your view differs but that's my take on it from what you wrote.
RichardMel
Your posts are always so full of wisdom. Yes you are probably right. Kidney failure is difficult to accept for me as I feel so well. I am constantly looking on the internet for possible misdiagnosis of polycystic kidney desease, you may have read in one of my posts that I went without dialysis for four weeks without any ill effects and my blood toxins didn't build up significantly. I have full urine output so fluid build up wasn't a problem.
I guess with me it's a silent disease which means I still need dialysis.
I Hate Dialysis Message Board
Author
