Information being given

[kitkatz]

When I first started on this adventure called dialysis I kept asking my doctors and nurses for information. Written information, a book or anything to help me cope with this new disease and condition. I was beginning to think the hospital had nothing to give me or was hiding information from me.  I wrote the nurses and doctors a letter stating why I needed information and why I wanted to share in my care.  I ended up on the phone with member services and they got me in touch with someone who asked: "Didn't you receive a dialysis welcome packet from someone?" Well obviously not or I would not be on the phone with you crying to get some information.   So they sent someone over quickly with the dialysis welcome packet that had diet info, hospital in for, a video with overly cheerful people on dialysis  in it, and a book. The book was title Living on Dialysis or some such thing.  I read the entire thing.  It was my dialysis bible in those beginning days.  In 1996, the internet was just getting started so site such as IHD.com were not readily available. 

I just think that getting some information to a patient in a timely manner should not be very difficult for a large hospital. I should not have had to beg and cry for it.

[chuckdims]

I got a welcome packet.  Once I saw someone on dialysis with a fake smile with a quote bubble that said, "Dialysis is not a death sentence, it's a life sentence!," I stopped reading.

[cassandra]

I got a welcome packet.  Once I saw someone on dialysis with a fake smile with a quote bubble that said, "Dialysis is not a death sentence, it's a life sentence!," I stopped reading.

       

[Michael Murphy]

I go to a Fresenius clinic  and a got a bag, blanket and a box of books on my first day. Read most of the books but I got better info from from Bob Norton's book "My life on Dialysis"