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Author Topic: When did your PTH start to rise?  (Read 2789 times)
Deanne
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« on: March 10, 2010, 07:50:02 AM »
Did many of you have problems with your PTH level before you started dialysis? I'm still a long way from dialysis with about 25% function, 2.70 creatinine. I've been on Calcitrol for four months on Mondays, Wednesdays, Fridays only. My PTH continued to rise after starting Calcitrol and is around 300 now, so my neph changed me to a daily dose instead of three days/week. She said that if a daily dose doesn't pull my PTH level back into line, she'll put me on Sensipar. Should I be concerned that my PTH level is already an issue with a relatively high kidney function?
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
thegrammalady
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« Reply #1 on: March 10, 2010, 08:42:14 AM »
my pth was high long before my kidneys had any problems. i had one of my parathyroids out which solved the problem for a while. it was high again by the time i started dialysis. sensipar has resolved the problem.
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Slywalker
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« Reply #2 on: March 10, 2010, 09:13:38 AM »
Yeah I also had high PTH and ended up on daily doses of calicitrol long before I started dialysis.
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Stoday
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« Reply #3 on: March 10, 2010, 03:02:15 PM »
I started calcitrol 3X a week. Moved up to twice a day last month as a result of increasing PTH. I'm sure it won't be long before I start D.
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
sullidog
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« Reply #4 on: March 10, 2010, 04:14:09 PM »
Since I started dialysis as an emergency I don't know if I had any trouble before as I never seen a doctor until my kidney failure. I was on cincplar but it made me sick, now I'm on zemplar.
Troy
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
RightSide
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« Reply #5 on: March 10, 2010, 06:15:46 PM »
When I was first diagnosed with ESRD, my PTH was already up to 1200 or thereabouts.  (And I was itching terribly.)  So my PTH must have been rising for months prior at least.

It took six months of dialysis and meds to knock that down to around 300.  It's been below 300 ever since.
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-Lady Noir-
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« Reply #6 on: March 10, 2010, 06:17:00 PM »
My partners PTH level was extremely high, well before he had started diaylsis. He chipped bones because the level was so high for so long, despite being on Calcitriol & phosphate binders. It was infact the surgery to have his parathyroids out, which caused more damage to his kidney function and therefore resulted in dialysis soon after.
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Expose yourself to your deepest fear. After that, fear has no power, and the fear of freedom shrinks and vanishes. You are free

..Nik..

Fiancee to Mike
Mikes 'history'....
Born September 12 1983
Seizure July 2003 [Unrelated to kidney]
Diagnosed with 'Polycystic Kidney Disease' July 2003 (Wrong diagnosis)
Diagnosed with  IgA Glomerulonephritis April 2004
On active transplant waiting list 2006
Hyperparathyroidism developed gradually
Parathyroidectomy May 2009 (Affected kidney function)
Hospitalized for hyperkalemia June 2009
Catheter inserted June 2009


Started CAPD June 2009
Stared APD September 2009

ABO Incompatible transplant 01 December 2010
Donor = Mikes father Greg
Sunny
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Sunny
« Reply #7 on: March 10, 2010, 06:23:31 PM »
My PTH started to rise at about 20% GFR. I am now at 15% GFR and didn't try Calcitriol till now. Calcitriol made me so nauseous I had to stop. Anyone else have that side effect? I hope it works to bring down your PTH soon, but I think your experience with PTH levels sounds about right for where you are in ESRD.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
-Lady Noir-
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« Reply #8 on: March 14, 2010, 10:28:20 PM »
Calcitriol made you feel sick? Thats a shame Sunny.
Mike was on 60 of those a day after he has his parathyriods out, plus 30 of these giant dissolvable tablets  :puke;
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Expose yourself to your deepest fear. After that, fear has no power, and the fear of freedom shrinks and vanishes. You are free

..Nik..

Fiancee to Mike
Mikes 'history'....
Born September 12 1983
Seizure July 2003 [Unrelated to kidney]
Diagnosed with 'Polycystic Kidney Disease' July 2003 (Wrong diagnosis)
Diagnosed with  IgA Glomerulonephritis April 2004
On active transplant waiting list 2006
Hyperparathyroidism developed gradually
Parathyroidectomy May 2009 (Affected kidney function)
Hospitalized for hyperkalemia June 2009
Catheter inserted June 2009


Started CAPD June 2009
Stared APD September 2009

ABO Incompatible transplant 01 December 2010
Donor = Mikes father Greg
kitkatz
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« Reply #9 on: March 14, 2010, 10:59:19 PM »
Calcitrol upsets my tummy too. They want me to do four now and I cannot but take two and get through the day.
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Deanne
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« Reply #10 on: March 15, 2010, 09:39:33 AM »
I haven't had any side effects from it. Maybe because I take it right before bed so I'm fine by morning? But then, I've been pretty lucky with most meds. I've only really had bad side effects with prednisone, but then, doesn't everyone!?
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
Stoday
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« Reply #11 on: March 15, 2010, 06:26:11 PM »
Quote from: Deanne on March 15, 2010, 09:39:33 AM
I've only really had bad side effects with prednisone, but then, doesn't everyone!?

Not me. I had no problems taking it at all.

Really this just goes to show that you must swap medication around to find the right one for you.
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
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