the nausea mystery

[sullidog]

this is a mistery to me and probably the doctors too.
Starting about my third month of dialysis I started having periods of nausea, no vomiting just the nausea. I went to my family doctor who refered me to a GI. I met with the GI who scheduled an indoskaphy to which nothing was found so he suggested it was one of my meds which the nurses and I at dialysis think is weird since I'm not on many meds. I will list them here.
renagel 800 mg (with meals)
zofran 8 mg for these nausea spells (as needed)
nexium 40 mg (daily)

renal cap softgel (for vitamin dosage)
venipar (on the machine for iron once a week)
epogen 4500
zemplar (on hold)
clonopin 1 mg (as needed)
Some of these meds I wasn't even taking before the nausea started and as far as I know nothing changed in my treatment or meds when this all started.
Foods don't matter, it just comes and goes as it pleases, and most of the time it does go away without  me killing it with the zofran
A nurse suggested it might be anxiety but I don't feel anxious most of the time.
They also thought it might of been my adiquicy but that is at 82 percent. My labs are fine other then the phosferous a bit hi at times (it usually gets as hi as 6.5 and that is it) Calcium was hi but it is now normal and I'm still having the issue. PTH tends to go up and down although it doesn't go really out of this world.
I'm not a fluid gainer (still have that function) so no fluid is taken off but blood pressure sometimes goes low even when not removing fluid.
Do you guys have any suggestions on what may be causing this? I'm sure the doctors and I are out of options lol.
Thanks,
Troy
ps: this happens on and off dialysis

[Malibu]

I don't have an answer as we are new to dialysis but I am sorry it is happening.  I look forward to the answer to the mystery.

[glitter]

I dont have any suggestions, just the experience of my husband. He struggled with nausea almost the entire time on dialysis, the first year was really bad, then it leveled off. Mostly he just learned when it was bad, to cut back on his food. and eat really easy like scrambled eggs and toast.

[silverhead]

We have found that most all of the Phos control drugs (Renegel, Zemplar, etc.) cause the symptoms you describe, the only thing she can tolerate is Tums, but now her Calcium is elevated because of the Tums, so the merry go round continues.......

[cdwbrooklyn]

Sullidog, it may be the foods you eat that's causing it.  What's good for this condition is golden seal roots.  You can purchase the tablets from any healthy food store or the Asian fruit store. Be sure it's the golden seal from the roots.  Do not get any other kind as it will not work as good.   Start off with one tablet a day with a meal than increase it to two tablets a day.  Be very mindful because this herb is very strong but it will help your condition.  I used it for the first year on D and it work well with me, not sure about others.  Also, try to suck on ginger candy if you can (also strong) it will help to so would warm gingerdale.   However, if these methods don't work than it can be a side effect your body gets from D.   

CDW

[glitter]

Sullidog, it may be the foods you eat that's causing it.  What's good for this condition is golden seal roots.  You can purchase the tablets from any healthy food store or the Asian fruit store. Be sure it's the golden seal from the roots.  Do not get any other kind as it will not work as good.   Start off with one tablet a day with a meal than increase it to two tablets a day.  Be very mindful because this herb is very strong but it will help your condition.  I used it for the first year on D and it work well with me, not sure about others.  Also, try to suck on ginger candy if you can (also strong) it will help to so would warm gingerdale.   However, if these methods don't work than it can be a side effect your body gets from D.   

CDW

dont forget to check with your neph before doing this- somethings are very dangerous for kidney patients- not everyone has the same level of function.

[BigSky]

High calcium and or high phosphorus can make on nauseous.

[pdpatty]

had the high calcium and phosphorus  last moth and was nausous a lot

[murf]

I have changed my diet to one that quite bland so whenever I play up and have spicy food, I become quite nauseous. Happened last week after a dish of lemon grass beef and rice.

[texasstyle]

Wish I had an exact answer for you. This whole dialysis thing, eer... I just wanted to say that my husband has very bad nausea even before dialysis. I think it kinda comes along with the whole territory of renal failure. For some reason I guess it's the way your body reacts to the build up of toxins. Are you feeling all only after a treatment, or on the days in between too? Low blood pressure can also make you feel queasy. So many things. Maybe your body is trying to adjust itself to dialysis at this point. All I really know is that I hope you start feeling better soon.

[Joe Paul]

I spent  lots of the past year suffering with nausea as you describe. After my transplant, it became worse yet. About a week after being home, mine came to a head. I was sitting here in my favorite chair, when all the sudden, pains in my belly, worse then ever. I waited the remainder of that day, then finally got in touch with my transplant coordinator, who sent me to the E.R. They diagnosed me there with a bad gull bladder. They told me that they now thought that may well have been the cause of my nausea all along. I would have yours checked, it might be the same cause for your nausea. Joe

[Malibu]

It has been our experience that the (almost) entire kidney medical community insists that nausea is not a symptom of kidney disease.  Through all 8 Neph's we had from end of 2007 to now, only 1 of them admited that nausea was a product of kidney disease.  Thankfully he prescribed Zofran.  All the other Dr's have said nope, that nausea, constipation, diarrhea, stomach movement and noises, none of it is from kidney problems and you need to see a GI Dr.  ........shrug........ This will baffle me forever because I know and all of you know it IS a kidney problem.

Thankfully MM has not been nauseated since the day he started dialysis...until last night.   

My answer is to take the Zofran.

[jbeany]

All the other Dr's have said nope, that nausea, constipation, diarrhea, stomach movement and noises, none of it is from kidney problems and you need to see a GI Dr.  ........shrug........ This will baffle me forever because I know and all of you know it IS a kidney problem.

Ever wonder if they took a different biology class in high school than the rest of us did?  You know, the one that described how every system in the body is interconnected?   

[kitkatz]

Medicine is a "practice" ya know!