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Author Topic: How a Dialysis shortcut almost killed me in 1977.  (Read 2172 times)
Rob Brydon
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« on: February 09, 2010, 06:09:48 AM »

Over in my “How Dialysis was in 1976” I said I’d write some other interesting stories about my journey. So here we go. I hope you enjoy.
It was March 77 and I found myself in Ward 11 after getting rigours every time I did my weekly machine clean and grease.
As it happened I bumped into a patient who had already been on hemo 3 years and I was just dying to get some tips from the senior member.
His name was Muir and he was an Orchardist here in Nelson, New Zealand. We got talking about how we were doing and he mentioned he did his cleaning of the machine when he got home at night as it held him up too much every morning before work.
I was encountering that problem too and my ears pricked up when he recounted how he simply rinsed the lines and dialyser out and then disinfected when he got home.
If I was ever going to keep my 8-5 job I was going to have to make some changes and this one sounded just the berries. Having only been on dialysis 6 months and at home for 3, I was doing 10 hours three times a week. Trying to be on by 8 or 9 pm, doing 10, coming off, bleaching, rinsing and disinfecting dialyser and lines before I could even think about heading to work was very difficult. It just wasn’t working. The dialyser I was using was an 18 inch long 3 x 2 inch Gambro that was packed with plastic plates with a cellophane membrane between each plate. Primitive and not terribly efficient.
Anyway I quickly got them out to the laundry after coming off and ran hot water and bleach thru them to remove clots and fibrin. Showered, dressed and out the door. Worked a treat. I was my usual zombie self for the first half of the day but I was at least a punctual zombie.
I felt pretty happy with myself and couldn’t help but wonder why we hadn’t been taught these tricks in training.
Wednesday night came around and I got myself plugged in. I was on less than and hour and started getting rigours but the old Drake Willocks were good for that and often you just had to ride them out. Not long after that I started vomiting and started getting a little concerned. After throwing up for most of the last 4 hours I came off at 2 am and tried to get some sleep. Elusive as it was I was able to sleep in between vomiting bile only every half hour. My whole body was shacking as my stomach muscles were going through hell.
My wife, Chris, phoned the doctor and he came out at about 9 am. First thing he said when he walked into the bedroom was “So this is a kidney machine”?. I wasn’t comforted.
He decided something major was going on and quickly ordered an ambulance into which I was hoisted. I’m sure those guys know every pothole and go that slow as it felt like hours getting the 8 miles to hospital. Chris followed me in and was going to meet me at the ward.
Ward 11 welcomed me back and I was put in a private room. I recall several nurses rushing about and an intern peering down on me. I was trying to explain I had been vomiting non stop since 10am the previous evening (bile only from around 12) and didn’t feel so good and just then as he was looking into my eyes, I stopped breathing. Um, this isn’t good. I could see and hear what was going on but as much as I wished my body to take a breath, it refused. Having never been in the predicament before I did however realise one of the fundamentals to sustaining life is breathing. The intern immediately realised I was in some bother and yelled something and nurses became a blur. Just at that time Chris walked in the door, just to be u turned by a nurse. Oh great, wonder what she was thinking.

I opened my eyes. My throat really hurt and I had been moved. The first thing I saw was Chris sitting beside my bed. I went to talk and couldn’t. She said I’d had pipe down my throat for the last 2 days so it wasn’t surprising it was sore. Obviously irrigation, or sewerage I thought. I gestured for something to write on and she shuffled through her handbag and came up with a notepad and a pencil. I wrote “What day is this and where am I”?
She said it was Friday afternoon and this was Intensive Care.I’d been in there since I came in yesterday morning.  It seems I had blood poisoning. Gram negative septicaemia to be precise and I was lucky to still be here. I was to hang around the waterworks ward for another week and then sent to Home Dialysis Training Centre so my technique could be reviewed.
Somewhere along the way I had infected myself and they had to find where.

I set up, washed cleaned up 3 times that following week without a hiccup. Passed with flying colours even. Karen, one of the nurses said to me. Well it’s got to be there somewhere what you’re doing wrong. Tell me what you do when you come off in the morning”.
Well I have to be at work by 8 so I strip off all the gear, get it out to the laundry, rinse it out and disinfect it when I get home at 5.30.

You do what? YOU DO WHAT? Where on earth did you get such a numbskull idea like that?

Hey Muir’s been doing it just fine for years and he’s still alive.

She pointed out to me that Muir had a totally different dialyser to mine. He was using a Kiil which was bolted together and after every wash he could pull it to bits and completely change all the membranes. That’s why he didn’t get infections.

I was given a wrap over the knuckles and told to stick the training method I was shown and not to deviate, which I have managed since then.
Shortly after I was allowed to cut down to 3 times 8hours per week which did help to get me to work on time.

Even today some of the old hands at the unit give me stick about my “Brydonisms”. It was a very dangerous lesson as I came very close to loosing
 my life. While I was at work the bugs had been growing in the lines and dialyser and even though I was disinfecting and leaving them for over 24 hours before use, the bugs had grown and came out in me when I went on. Very, very bad.

Stick to the rules people. You’ll do just fine. Thank you. Questions welcome.
« Last Edit: February 09, 2010, 06:18:18 AM by Rob Brydon » Logged

First became ill. 07.76
7.76 One and only AV fistula constructed
First HD 07.76
First transplant 05.77 Removed 08.77.
2nd transplant (bro) 06.79 Removed 10.79
Native kidneys removed 81.
Various ops including 3x carpal tunnel, 2x parathyroidectomys
2x below knee amputations 03 and 06.
Nocturnal home hemo 3x 7.5 hours/week loosing 2-3kg per wash.
Have never dieted much but use a small cup.
I take the pills and do as I'm told. Seems to work.
Have never drunk alcohol. That seems to help.
tyefly
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This will be me...... Next spring.... I earned it.

« Reply #1 on: February 09, 2010, 06:32:43 AM »

Interesting that your are still alive......   and here to give us wonderfull stories.....   Sounds so scary...... I think there is something to be said about a near death experience...... I have had one and it does make you think .....

    thx  Rob
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
willowtreewren
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My two beautifull granddaughters

WWW
« Reply #2 on: February 09, 2010, 06:37:22 AM »

Geeze, Louise, Rob.

Scary story! I'm glad all the lines in our NxStage are replaced with new ones DAILY!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
cariad
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What's past is prologue

« Reply #3 on: February 09, 2010, 10:18:33 AM »

That was too close, Rob. :o I'm glad you gave up the experimentation.

Could you not have requested to be switched to the other type of machine? It sounds a better fit for your situation at that time.
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
galvo
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« Reply #4 on: February 09, 2010, 02:20:54 PM »

Strike me gently, Rob! Your stories are so interesting.
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Galvo
JennyGiggle
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« Reply #5 on: February 09, 2010, 02:54:32 PM »

woah, scary! glad it all worked out for the best! thanks for sharing!
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boswife
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us and fam easter 2013

« Reply #6 on: February 09, 2010, 03:11:00 PM »

Woah is right!!  Geesh, i am always told at hubbys dialysis center   "there ya go again.... THINKING!"  cause im always going in saying things such as...... "well, i was thinking ...IF you bla bla bla" .. This makes me want to stop all that thinking and just follow directions..  Geesh!  Sure glad ya got there in time and it really freekes me out when ya describe what ya went through when ya stopped breathing..  Scarry stuff!!!! Glad your here!!!!
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Rob Brydon
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« Reply #7 on: February 09, 2010, 03:39:05 PM »

Thanks folks.
@ tyefly. No nothing quite matches almost "cashing in the chips" before one is able to appreciate life.
@ willowtreewren. Not too many years later reusing was replaced with new gear every wash. Much safer :-)
@ caraid. No Muir was one of the last to be using a kiil in ChCh. Very cumbersome and even more time consuming.
@ Galvo. Cheers Galvo. Happy you enjoyed. I'll drag a few more out soon.
@ JennyGiggle. You are most welcome...and thanks
@ Boswife. How true. Just leave the brain at home please. We'll be having none of that thinking stuff. Cheers


Logged

First became ill. 07.76
7.76 One and only AV fistula constructed
First HD 07.76
First transplant 05.77 Removed 08.77.
2nd transplant (bro) 06.79 Removed 10.79
Native kidneys removed 81.
Various ops including 3x carpal tunnel, 2x parathyroidectomys
2x below knee amputations 03 and 06.
Nocturnal home hemo 3x 7.5 hours/week loosing 2-3kg per wash.
Have never dieted much but use a small cup.
I take the pills and do as I'm told. Seems to work.
Have never drunk alcohol. That seems to help.
Rerun
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Going through life tied to a chair!

« Reply #8 on: February 09, 2010, 04:05:57 PM »

Very interesting.  My first hemodialysis was June of '87, so I used the Drake also.

Keep writing.
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Jean
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« Reply #9 on: February 09, 2010, 04:19:54 PM »

Holy Crap!!!!!! What an experience you had. Glad you are alive and so glad you are here. You have really had some adventures.
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One day at a time, thats all I can do.
Rob Brydon
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« Reply #10 on: February 09, 2010, 06:25:01 PM »

@ Jean..haha holy crap is right. I have some good tales to tell. Fortunately all have a happy ending. cheers :bandance;

@Rerun. There was never a dull moment with the old Drake Willocks..or a quiet night. Thanks
Logged

First became ill. 07.76
7.76 One and only AV fistula constructed
First HD 07.76
First transplant 05.77 Removed 08.77.
2nd transplant (bro) 06.79 Removed 10.79
Native kidneys removed 81.
Various ops including 3x carpal tunnel, 2x parathyroidectomys
2x below knee amputations 03 and 06.
Nocturnal home hemo 3x 7.5 hours/week loosing 2-3kg per wash.
Have never dieted much but use a small cup.
I take the pills and do as I'm told. Seems to work.
Have never drunk alcohol. That seems to help.
Stoday
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Posts: 1941


« Reply #11 on: February 10, 2010, 06:10:08 AM »

That was some tale! Keep 'em coming!

I'm sure that in 30 years time today's HD practices will seem every bit as crude as those of 1977 do now.
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
Kiwigirl
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« Reply #12 on: February 10, 2010, 01:56:28 PM »

Man a live! Reading your bio and your stories - what am I in for?
Kiwigirl
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galvo
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« Reply #13 on: February 10, 2010, 08:55:52 PM »

Kiwigirl, you'll find that things have improved.............a little.
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Galvo
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