wish that the dialysis machines were more blind friendly

[sullidog]

I read all the ranting on here about dialysis centers not being able to take control of their treatments, well here's something I wanna look into and if anyone has any ideas please let me know. I'm a blind dialysis pacient and have been blind since birth. This of course limits me to what I can do on my treatments such as canulating, checking the display to make sure my treatments are done right, etc. My problem is since I can't see it's impossible to do these things. I've had my center in the past tell me they aren't going to remove any fluid, and next thing I know they are. and I'm a crashin. Sometimes when I crash I yell for a nurse but it takes forever for them to come over. Sometimes I even have to bend my arm to alarm the machine to get their attention. Is there any other blind hemo dialysis pacients on here? I realize there's pd but I don't wanna deal with the infections. Is there anything you all can recommend for me that will help me stay in better control of my treatments? I mean the parts that are a bit visual.
Troy

[billybags]

Troy, Do you know I never gave it a thought about being blind and on dialysis, for that I apologize. You must find it difficult as you say with figures and checking what is going on around you on hemo. Are the nurse very helpful, are they explaining what is going on, or are  they doing their own thing. Is it possible to have some one with you on hemo days just to keep a check on what is going on.

[cariad]

I don't know if we have other blind patients on dialysis here, but I would hope that there is a way to make these machines more accessible to you. Chris (that's his screen name, too) has impaired vision and seems to know a lot about what is available in the way of help and services. Maybe you could PM him for ideas, or perhaps he will see this discussion.

Good luck, Troy!