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hurlock1
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« on: January 09, 2010, 07:21:18 AM »

I came into dialysis with a BP of 167 over 90. I have been reduced in time from 5 hrs. to 4.5 hrs. (some weeks ago) toward the end of my session, I passed out and woke to having a bunch of caregivers around me and a oxygen mask on my face, with one of those little things that they clamp on your finger (pulse oximiter SP?) on my finger. My blood pressure was 57 over 45. ( I was almost dead) The made me keep the mask in my face (it stunk) and they brought me a cup of beef broth (it tasted like. . . ) and I had to stay for 40 min. longer. I was just wondering if there is something I can do to prevent this from happening again. It seems like this happened last year. I don't mind dying in such an unknowing state, but I would much rather just keep on going. It seems like I would much rather have made some better preparations. I used to fear death, but, not that I'm looking forward to it, I am not fearing it as much, especially if it doesn't hurt.
anyway. . .
jmz
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tyefly
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This will be me...... Next spring.... I earned it.

« Reply #1 on: January 09, 2010, 07:39:08 AM »

   how much fluid did they take off......   
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

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dwcrawford
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Getting the heck out of town.

« Reply #2 on: January 09, 2010, 07:49:07 AM »

So the broth was yukky and the mask stunk.... come on now!  But that has happened to people near me on the unit.  Last week they refused treatment to a man with high pressure even.  Can you see your machine and watch your pressures.  I have a little "dizzie" when it starts to drop.  Do you?  If you can't see your machine, ask them a few hundred times a day what your pressure is and they will  move it so you can see.  I promise.

I don't want to die on any machine.  I want to die coming home from the bar and driving my lamborghinii  too fast --  and not until  I get on to drive home.
« Last Edit: January 09, 2010, 07:50:43 AM by dwcrawford » Logged

Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
cdwbrooklyn
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« Reply #3 on: January 09, 2010, 11:17:42 AM »

Did you take any BP Meds before going on dialysis?  Anytime you are on the machine and you feel yourself getting hot or feeling strange, call a tech and let him or her know how you are feeling.  If your BP is too low, the tech should lay you back so your BP can level out.  This will help your BP come back to normal.   8) 
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Dailysis patient for since 1999 and still kicking it strong.  I was called for a transplant but could not get it due to damage veins from extremely high blood pressure.  Have it under control now, on NxStage System but will receive dailysis for the rest of my life.  Does life sucks because of this.  ABOLUTELY NOT!  Life is what you make it good, bad, sick, or healthy.  Praise God I'm still functioning as a normal person just have to take extra steps.
billybags
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« Reply #4 on: January 10, 2010, 04:53:50 AM »

hurlock1, Daft question, do you sit or lay down when you are getting hemo? My husband had similar problems, his BP would just drop until he stared laying down on the chair. Give it ago.
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Malibu
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« Reply #5 on: January 10, 2010, 07:03:43 AM »

Yeppers, I agree.  They took too much fluid off.  Feet up, head down, stop UF.
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dwcrawford
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Getting the heck out of town.

« Reply #6 on: January 10, 2010, 07:39:45 AM »

Definitely not a daft question, Billie... first thing they do is lay you back in chair if bp goes low... and obviously they take a final bp after treatment sitting and standing.  Don't know why, but it is valid.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
hurlock1
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« Reply #7 on: January 11, 2010, 05:58:27 AM »

I wear bib-overalls. they weigh 1.3 kilos. When I weigh, i subtract 1 kilo. Friday, my "after" weight, i didn't subtract the 1 k. It was 5.3, a lot, I know, but it was actually 6.3. They're suckin me dry!
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fc2821
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Just another hamster on the dialysis W.O.F.

« Reply #8 on: January 11, 2010, 08:16:35 AM »

I wear bib-overalls. they weigh 1.3 kilos. When I weigh, i subtract 1 kilo. Friday, my "after" weight, i didn't subtract the 1 k. It was 5.3, a lot, I know, but it was actually 6.3. They're suckin me dry!

Dude, sounds like it!   I have to wear crow walker boots inorder to walk, they weigh 3 kg together. I MAKE sure they subtract that when they weigh more going in and going out.  But my question didn't they watch your blood presure suring treatment?   Couldn't someone notice it was dropping?  Or did it just bottom out all at once?  I've had that happen.  The other day I ended up with a 67/43 and had to get restuck to get some saline.  They adjusted my dry wight after that.  I was feeling fne and my pressures were good,  them boom.  That was suppose to be my final standing pressure too. Unlike you didn't pass out, but had to sitdown quickly.   My blood pressure runs low anyway, and maybe that's why.    Now they monitor my pressure all the time, won't pull the needles till I do a standing. 
   
Talk about it with them?  I would.  All the above advice is great too. 
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In center hemo dialysis since Feb 14, 2007. 

If I could type properly, I'd be dangerous!

You may be only one person in the universe but you may mean the the universe to someone else.
Rerun
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Going through life tied to a chair!

« Reply #9 on: January 11, 2010, 08:23:20 AM »

You can request that BP be taken every 15 minutes instead of every 1/2 hour and make sure they have the perimeters set on the machine to alarm if your BP gets below 100.  Then if it does they need to shut your UF off which will stop pulling fluid.

Some techs move the permiters for a patient and then forget to move it back. 

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hurlock1
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« Reply #10 on: January 12, 2010, 04:31:20 AM »

Did you take any BP Meds before going on dialysis?  Anytime you are on the machine and you feel yourself getting hot or feeling strange, call a tech and let him or her know how you are feeling.  If your BP is too low, the tech should lay you back so your BP can level out.  This will help your BP come back to normal.   8)
That's just it. As far as I remember, I was feeling as good as ever and then. . . boom!
« Last Edit: January 12, 2010, 04:34:21 AM by hurlock1 » Logged
girliekick
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« Reply #11 on: January 13, 2010, 01:19:05 AM »

this was a constant problem for me. I just skimmed the thread, so i may repeat some stuff.

Even though u felt normal, i bet there was some something that may serve as a signifyer for you if there is a next time. You should always be able to see your bp and heart rate. If your heart rate starts to elevate (this is a tell tell sign of that bp is about to drop from being dry)  ask... TELL them to stop pulling fluid. Also if your queazy, hot, dizzy, slow reaction time, vomit, or feel like your in a tunnel. (these are personal symptoms, there may be others) if you have never had problems w them pulling a certian amount, you can tell them that is all i am going to pull off today. Ie no more than 4 kilos
O yea cold cold ice water helps bring up bp too
hope this helps
girl
« Last Edit: January 13, 2010, 01:22:08 AM by girliekick » Logged

-Christmas '03 get news of esrd
-June '08 start hemo
-Thanksgiving '08 pd surg
-Feb '09 Stop hemo and manual exchanges
... start cycler
Setp 3 '09 On UNOS list (27th b day)
Dec 09 peritonitis
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