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Dialysis: General Discussion
It's been a long road...but we are nearing the end!!
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Topic: It's been a long road...but we are nearing the end!! (Read 2898 times)
TiffanyJean
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We live in paradise - if only we could enjoy it!
It's been a long road...but we are nearing the end!!
«
on:
December 14, 2009, 05:19:00 PM »
So I haven't been on here in some time, but I'm always thinking about everyone on here!
So while I've been away, we have finally reached the end of this road, and will get to start on the next!
Richie will be getting a kidney transplant at UCSF Med Center, on February 11 2010!!!
He will be getting the kidney from his mom, who is type A (rich is type O); this type of transplant is an ABO Incompatible transplant, and so Richie will have to do plasmapheresis, which will remove the plasma, and take out the antibodies.
We are super excited, and just wanted to share the news!!!
Tiffany
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"Just think people have no problem having only one kidney, so we have to ask, why
did God give us two kidneys? Perhaps it is so you would have an extra one to
donate and save a life!"
- Dr. Stuart Greenstein, Kidney Transplant Surgeon,
Professor of Surgery, Montefiore Medical Center, Bronx, NY
Source of quote:
www.ourjerusalem.com
pamster42000
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Re: It's been a long road...but we are nearing the end!!
«
Reply #1 on:
December 14, 2009, 05:29:18 PM »
Well what wonderful news! I wish the best as you guys start a new chapter in your life. Keep a positive attitude...that will help you through everything.
Have a Merry Christmas!
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willowtreewren
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My two beautifull granddaughters
Re: It's been a long road...but we are nearing the end!!
«
Reply #2 on:
December 14, 2009, 06:46:41 PM »
This is good to hear, Tiffany! I know it has been hard for you and Rich.
I love to hear this kind of good news as it is really encouraging.
Keep us posted.
Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011.
Jean
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Re: It's been a long road...but we are nearing the end!!
«
Reply #3 on:
December 14, 2009, 06:47:57 PM »
Let us know how it goes, and I pray it all goes very well for you. A new kidney, yippee!!!!
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One day at a time, thats all I can do.
monrein
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Might as well smile
Re: It's been a long road...but we are nearing the end!!
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Reply #4 on:
December 15, 2009, 05:18:42 AM »
Wishing Richie all the best with the transplant.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
paul.karen
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Re: It's been a long road...but we are nearing the end!!
«
Reply #5 on:
December 15, 2009, 05:25:40 AM »
Excellent news.
What a great way to start the new year.
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Curiosity killed the cat
Satisfaction brought it back
Operation for PD placement 7-14-09
Training for cycler 7-28-09
Started home dialysis using Baxter homechoice
8-7-09
YLGuy
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Re: It's been a long road...but we are nearing the end!!
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Reply #6 on:
December 15, 2009, 06:59:21 AM »
That is great news!
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tyefly
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This will be me...... Next spring.... I earned it.
Re: It's been a long road...but we are nearing the end!!
«
Reply #7 on:
December 15, 2009, 08:58:45 AM »
Great news.... wish you the best
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IgA Nephropathy April 2009
CKD May 2009
AV Fistula June 2009
In-Center Dialysis Sept 2009
Nxstage Feb 2010
Extended Nxstage March 2011
Transplant Sept 2, 2011
Hello from the Oregon Coast.....
I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir
The clearest way into the Universe is through a forest wilderness.
- John Muir
paris
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Re: It's been a long road...but we are nearing the end!!
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Reply #8 on:
December 15, 2009, 09:14:08 AM »
I am so very excited for both of you
And his mother is an angel for giving him life, twice! Soon, your life can be what a young couples life should be. Best of luck to everyone. Please keep us updated
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Goofy
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Re: It's been a long road...but we are nearing the end!!
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Reply #9 on:
December 15, 2009, 09:23:30 AM »
Now that's what I call a HAPPY NEW YEAR!!!!!
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Slywalker
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Re: It's been a long road...but we are nearing the end!!
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Reply #10 on:
December 15, 2009, 09:25:17 AM »
Very good news to start a new yeare on
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jbeany
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Cattitude
Re: It's been a long road...but we are nearing the end!!
«
Reply #11 on:
December 15, 2009, 01:16:18 PM »
Hope it all goes wonderfully!
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"Asbestos Gelos" (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter". A term used by Homer for invincible laughter in the face of death and mortality.
Mizar
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Re: It's been a long road...but we are nearing the end!!
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Reply #12 on:
December 15, 2009, 02:21:03 PM »
What a Great thing, to look forward to in the New Year!
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Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
Re: It's been a long road...but we are nearing the end!!
«
Reply #13 on:
December 15, 2009, 07:08:19 PM »
Yay.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008. Now on PD with a cycler. Working very part time - teaching music. Love it. Husband is Paul (we're both 46), daughter Molly is 13.
cariad
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What's past is prologue
Re: It's been a long road...but we are nearing the end!!
«
Reply #14 on:
December 15, 2009, 07:22:31 PM »
Congratulations to you both, Tiffany!
I love UCSF. They have some of the nicest doctors (even the surgeons). I do believe that Richie and his mother are in good hands.
Good luck to all!
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria
People have hope in me. - John Bul Dau, Sudanese Lost Boy
TiffanyJean
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We live in paradise - if only we could enjoy it!
Re: It's been a long road...but we are nearing the end!!
«
Reply #15 on:
December 16, 2009, 02:44:44 AM »
ok so total suckage! Richie is in the hospital tonight (12/15) for a peritonitis infection.... it looks like we caught it
really
early, but we wont really know till the morning.
I guess that we are lucky that we caught it early, and the it happend now and not closer to the surgrey, but it just seems like its always something....
But at least this way we can say we've dealt with basically
every
possible thing that a kidney patient deals with...
it still sucks...
please keep us in you thoughts and prayers - we are hoping that this doesnt mess up the transplant at all...
tiff
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"Just think people have no problem having only one kidney, so we have to ask, why
did God give us two kidneys? Perhaps it is so you would have an extra one to
donate and save a life!"
- Dr. Stuart Greenstein, Kidney Transplant Surgeon,
Professor of Surgery, Montefiore Medical Center, Bronx, NY
Source of quote:
www.ourjerusalem.com
billybags
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Re: It's been a long road...but we are nearing the end!!
«
Reply #16 on:
December 16, 2009, 03:19:04 AM »
Will be thinking about you, hang in there.
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TiffanyJean
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We live in paradise - if only we could enjoy it!
Re: It's been a long road...but we are nearing the end!!
«
Reply #17 on:
December 18, 2009, 10:47:50 PM »
So Richie got out of the hospital yesterday evening; he's feeling ok. We go for our monthly appointment on the 29th, so we will find out what's going to happen with the transplant; but the doctors were fairly confident that our transplant won't be affected.
The infection was caught so early that he never got a fever, and the cultures never grew anything; the only symptom was that his fluid was cloudy and he had a bit of pain in the ab area.
here is hoping everything is really still on track!
Tiff
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"Just think people have no problem having only one kidney, so we have to ask, why
did God give us two kidneys? Perhaps it is so you would have an extra one to
donate and save a life!"
- Dr. Stuart Greenstein, Kidney Transplant Surgeon,
Professor of Surgery, Montefiore Medical Center, Bronx, NY
Source of quote:
www.ourjerusalem.com
kitkatz
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Re: It's been a long road...but we are nearing the end!!
«
Reply #18 on:
December 22, 2009, 09:44:44 PM »
Good luck with it all.
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lifenotonthelist.com
Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5
Remember your present situation is not your final destination.
Take it one day, one hour, one minute, one second at a time.
"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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