People loved me a lot more when I was sicker...

[jennyc]

By 'people' I mean his mother, and by 'carry on as he did before' I mean the trip to Belgium she likes us to drive her on every few months so that she can buy her cigarettes cheaper. 

They must really be cheap smokes!!!! I know she's his mum, but you may have to put you foot down. Sometimes driving that great a distance with PD can be just dangerous. We go on long trips and i like to drive but sometimes i just have to suck it up and pull over becuase i tire a lot easier than hubby. My brain isn't as quick as it was before and i my attention drifts.

Congrats on the wedding, i'm hoping to be off PD by the time mine swings around, we were going for FEB 10 but not happening now as i will probably be getting catheter out then.

I quite like looking healthy, cause if i look even the slightest bit sick my mother starts the smothering. Had to go to ER for BP the other night and i havent even told her, she'd freak (190/135 happened whilst i was on the lounge reading..... Hubby reckons the book must have been erotic ). Very few people actually know that i have renal failure, well i don't tell anyone. My mum tells everyone she meets about her poor sick struggling daughter who is sooooooooo ill. When people meet me they are actually shocked she's referring to me. I've been standing there with her in shop when she started telling a distant aquaintance of hers (i'd never met them) about my whole condition, it was like i wasnt even there. I got the shits, told her to shut up and walked away. I must have looked rude (oh, she get grumpy sometimes it's the kidneys) but i didn't care.

I can't handle pity, i don't give pity and i hate to recieve it, i think that's why i like this board, i can vent and talk about what's happening and know that i'm not being pittied

It is stupid that you have to wait so long for approval for you meds. Like with RM my DR calls up medicare and gets on spot approval for PBS drugs (those that are heavily subsidiesd by govt like sensipar and aranesp). We can then get them straight away (first round has  to be purchased from hospital pharmacy but then our local one can order)

[Plip]

Lol...I'm going to follow posting on your posts....it's like we're in the same spot. I didn't get cards either...but I DID put up my tree yesterday finally ! Grats on the wedding. If I could find the card my son got me when I was in the insane asy...err...hospital I'd send you a copy....but I can't. I'll tell you what it said tho..." You make me smile, all over my face !" originally sent by a 5 yr old to his dad. I look at it when I get the holiday blues. Don't get me started on social workers....mine handed me an internet addy to sign myself up for a transplant...it was so very helpful. I think the actual harvesting of organs by myself will be harder to do solo 

We all need to hurry up and get well before they nationalize healthcare and we're no longer "cost effective" , thank God you're not sicker