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Author Topic: stupid things people have done to theirselves....  (Read 3110 times)
tyefly
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This will be me...... Next spring.... I earned it.
« on: November 19, 2009, 08:59:35 AM »
I had the flu well over a week ago  not sure if it was H1N1 but I did have the seasonal flu shot already..... but I was very sick with high temps for days and body aches and pains.....  after about a week or so of that  I thought I was getting better and then the next day I relapes and started throwing up about every hour and was really out of it.... could stay awake or anything...... When I had the flu I skipping D and didn't go for 6 days cause I felt too sick to go...... I kept getting sicker.... yet my temp was now normal.... so my family rushed me to the doctors office and then took blood work and then off to the hospital I went.......  my daughter ( who is 24 and my sweet baby of the family was crying alot......)  they said that my potassium was dangerously high and all of the toxins from not going to D was affecting my body.....  they put me on D for three days straight and I am much better....its like the sucked the sickness right out of me......  amazing...... I did not know that not doing D would affect me that way....... that fast.......    I never want to feel like that again and I will never miss D again ...... Never......  scary for me and mostly for my family.......    I am sorry........   
    this D stuff is very real..... and should not be messed with..........  I have learned a lesson in life.......
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
willowtreewren
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My two beautifull granddaughters

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« Reply #1 on: November 19, 2009, 09:15:49 AM »
Oh, Kathy,
I've been thinking of you, but thought you were on a trip.

Should have contacted you...

My SIL tried going for a 3 day weekend without D when my niece got married and was soooo sick.

Be careful! Glad you are on the mend.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
dwcrawford
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Getting the heck out of town.
« Reply #2 on: November 19, 2009, 09:26:59 AM »
Tye, we were so worried about you.  Message here and on FB looking for you.  Glad you are better.

And I too wondered how m any days you could miss dialysis.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
Jean
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« Reply #3 on: November 19, 2009, 11:59:44 AM »
We were all hoping you were on a trip. Glad you are back, and now we know at least one thing we shouldn't do. Happy that you feel sooo much better now.
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One day at a time, thats all I can do.
YLGuy
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« Reply #4 on: November 19, 2009, 01:34:36 PM »
Wow, that is scary.  I am so glad that you are doing better now.
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Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #5 on: November 19, 2009, 01:50:28 PM »
Oh wow - yes, we were all thinking of you wondering where you were.  What a fright.  Good to know about not missing dialysis - we all wonder don't we?
Lovely to have you back.  Keep resting and look after yourself.
L
B
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
*kana*
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« Reply #6 on: November 20, 2009, 03:40:22 PM »
Oh, that sounds terrible!  My clinic has a special room for people that are possibly sick with the flu.  I hope that you feel better very soon. 
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PD started 09/08
PKD kidneys removed 06/17/09

Failed donor transplant-donor kidney removed,
suspected cancer so not used 06/17/09

Hemo 06/2009-08/2009

Liberty Cycler-11/09-5/13
Nx Stage-current tx
Diagnosed with SEP 2014
Chris
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« Reply #7 on: November 20, 2009, 05:09:41 PM »
Sorry to hear tyefly, wondered where you've been hiding.
« Last Edit: November 21, 2009, 11:55:08 PM by Chris » Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
galvo
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« Reply #8 on: November 20, 2009, 06:38:37 PM »
That is one scary story. Very important that it was told, though. Good luck.
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Galvo
Mimi
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For any who do not like me I use - prayer.
« Reply #9 on: November 21, 2009, 12:45:04 AM »
Oh my goodness you had a narrow escape.  Not doing D is a no, no.
Glad you are feeling better.
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
Melissa
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« Reply #10 on: November 21, 2009, 12:54:51 AM »
OMG, SO glad you are ok!
And glad you will not be skipping anymore, even if you are sick!
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RichardMEL
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« Reply #11 on: November 21, 2009, 08:53:47 AM »
There is a reason we do dialysis 3 times a week - because if you leave it too long between sessions the toxins DO build up and as you've seen makes you much sicker. I've never missed a session and wouldn't contemplate it. Indeed if I was feeling sick the best place to be would be at the dialysis unit as they could get me checked out if need be. We've always been told "if you feel sick you still need to go to dialysis" - you can't really pull a sickie at dialysis!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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