whiskeyfrank
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« on: September 30, 2009, 07:54:45 AM » |
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Tomorrow im due in for a double nephrectomy of my PKD kidneys. Fistula is ready now, not quite sure I am really  so dialysis here i come!! Going in the the Queen Elizabeth Hospital in Birmingham UK. Ill keep you posted. |
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PKD - diagnosed 1986 Fistula added July 2009 Bilateral Nephrectomy Oct 2009 Fistula Failed Oct 2009 HD started Oct 2009 Live donor from mum Jan 4th 2010 mum and me both great Started a blog on my condition from stable now to Living Donor transplant (hopefully) My Blog - http://pkddiary.blogspot.com/ |
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Darthvadar
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« Reply #1 on: September 30, 2009, 09:35:16 AM » |
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Best of luck, Whiskey.... I'll be thinking of and praying for you... Have a speedy recovery!... May God bless and protect you... Love and  Darth.... |
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
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willowtreewren
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« Reply #2 on: September 30, 2009, 09:50:32 AM » |
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Best wishes for a smooth and successful surgery. My thoughts will be with you. I suppose they were waiting for your fistula to mature. Take care. Aleta |
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Wife to Carl, who has PKD. Mother to Meagan, who has PKD. Partner for NxStage HD August 2008 - February 2011. Carl transplanted with cadaveric kidney, February 3, 2011.  |
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KICKSTART
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« Reply #3 on: September 30, 2009, 10:44:25 AM » |
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Good luck , there are a few of us Brits on here !
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
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Des
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« Reply #4 on: September 30, 2009, 11:31:07 AM » |
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I wish you luck and I hope all goes well. Please make detailed notes ....... after the fact of course..  How big the kidneys are/were? What it felt like... how long you were in hospital.... I want to here it all.. My pkd kidneys might be next or very soon. A little preperation might help. Good luck. |
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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rose1999
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« Reply #5 on: September 30, 2009, 12:40:06 PM » |
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Good luck, if you go into the A.R.C. and see Michelle please tell her William Lloyd's daughter Rose said hello, she is a fantastic nurse, started as a student when Dad was first in and was working on Acute Renal Care when he passed away.
Fingers crossed for your speedy recovery.
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Hanify
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« Reply #6 on: September 30, 2009, 02:41:00 PM » |
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That'll be a great relief won't it? All that space inside now!! Good luck with it all.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008. Now on PD with a cycler. Working very part time - teaching music. Love it. Husband is Paul (we're both 46), daughter Molly is 13.
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Ang
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« Reply #7 on: September 30, 2009, 04:09:43 PM » |
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best of luck,had both of mine removed over the last 2 years,just beware peeing becomes obsolete.
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live life to the full and you won't die wondering
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Wattle
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« Reply #8 on: October 01, 2009, 06:00:51 AM » |
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 Wishing you luck. I was booked in to have one removed and got a call for a transplant three weeks before!! So I will still have to do it in the future... grrrrr I will be thinking of you and hope it all goes well.
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
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billybags
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« Reply #9 on: October 01, 2009, 10:35:53 AM » |
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Wishing you all the best,  |
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aharris2
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« Reply #10 on: October 01, 2009, 03:15:44 PM » |
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Best of luck whiskeyfrank, hopefully it will all be a nonevent (except for the freeing up of some space).
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend
Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
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Melissa
Jr. Member
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Posts: 88
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« Reply #11 on: October 01, 2009, 07:04:27 PM » |
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Best wishes for smooth surgery and speedy recovery - good luck!
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sico
Full Member
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wheres my bike gone?
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« Reply #12 on: October 01, 2009, 07:10:36 PM » |
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All the best with that whiskeyfrank.
PKD is hardcore, worse than the FSGS I've got.
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Brad  "Got myself a one way ticket, going the wrong way" - Bon Scott 6/11/08 diagnosed with ESRF, dialysis that day HD and PD 8th of April 2010 Live kidney transplant from my father. |
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