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Author Topic: Home Hemo  (Read 3239 times)
tee
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« on: June 14, 2009, 03:33:38 PM »


 



My husband was scheduled to start home hemo training in July, and they just told him yesterday, he has to wait until September, because there are two people ahead of him.  He was so mad, I was able to calm him down, but it just annoys me that they do not have more people to train for home hemo.  It like they want to keep you coming to the center, until they can fill your seat, to keep the ins dollars flowing.
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Adam_W
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Me with Baron von Fresenius

« Reply #1 on: June 14, 2009, 09:34:30 PM »

First off, welcome to IHD. I can relate 100%. I've been on home hemo for two years, after four months being in a centre. I knew I wanted home hemo right after I started dialysis, and within a month or so I finally had my HHD orientation, and they told me I would be on a six month waiting list. I wasn't doing well at all with in-centre dialysis, emotionally as well a physically, so at the time it felt like a lifetime. I was on the waiting list for both home hemo units in the city, and right after I had the orientation for the second one, I found out from the social worker at my centre, that a new HHD unit had opened up, and they could start training me in six weeks. It actually only took about three weeks, and I was the third patient trained at that facility, and I've been there ever since. You and you're husband hang in there, because when he is on home hemo, I can almost guarantee he will never go back to in-centre.

Adam 
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
tee
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« Reply #2 on: June 15, 2009, 05:12:33 AM »

Thank You for your words of encouragement, I am happy that I have found this site.  We have been down a crazy path, and I have been reading to him what other people have written on this site, to show him that others have been through some rough times and he is not the only one.  He does not use the computer, but I have been encouraging him to do so, so he can start his own posts.
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willowtreewren
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My two beautifull granddaughters

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« Reply #3 on: June 15, 2009, 09:02:56 AM »

Hi, Tee.

We are very, very happy with HHD. And I agree with you 100% about this site. Whenever I feel like life isn't treating us so well, I only need to read through posts on IHD to realize that there are so many wonderful people handling situations far worse than ours.

Lending support and encouragement to others is such a help to me.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Jean
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« Reply #4 on: June 15, 2009, 11:22:36 PM »

SIGH..... Does any one else here who is not yet on dialysis get queazy at the sight of their own blood? I can not even watch when they take blood at the labs from me. I should be on dialysis soon, and I need to make up my mind. I had decided I wanted to do home PD, but the queaziness stopped me. Any ideas, anywhere???
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One day at a time, thats all I can do.
Wallyz
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« Reply #5 on: June 16, 2009, 12:26:15 AM »

OUr phobias about blood and needles can get in the way of good care.  I would talk to a hypnotherapist who has experience dealing with phobias, or even better, one who has worked with ESRD patients before.
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Jean
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« Reply #6 on: June 17, 2009, 12:03:51 AM »

Oh, that's a good idea. Can hardly wait to see my neph in August, with my little list of questions in hand. Thanks.
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One day at a time, thats all I can do.
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09

« Reply #7 on: June 17, 2009, 05:12:08 PM »

Definitely think about PD.  No needles that way.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
nick
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here iam still skateboarding even on dialysis

« Reply #8 on: September 27, 2009, 05:23:06 AM »

hi i would like to know more about home dialysis? here i the Philippines never heard  that always peritoneal dialysis  only please give me some information about HHD
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thank you and take care
Nicolas Buenafe

January 2 diagnose ESRD
January 05, 2007 start dialysis
51.5k dry weight
Braun Dialog Machine
2x a week
Blood Pump 300-380
Plan for transplant maybe next year looking for funds
Zach
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"Still crazy after all these years."

« Reply #9 on: September 27, 2009, 12:46:10 PM »


hi i would like to know more about home dialysis? here i the Philippines never heard  that always peritoneal dialysis  only please give me some information about HHD


Here's an entire section of IHD about Home Dialysis:
http://ihatedialysis.com/forum/index.php?board=25.0

And this section is all about the NxStage hemodialysis machine and member's experiences:
http://ihatedialysis.com/forum/index.php?board=37.0

When I visited Manila many years ago, I dialyzed at Medical City and at Makati Medical Center

8)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
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