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Author Topic: upper arm fistula  (Read 3628 times)
tyefly
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This will be me...... Next spring.... I earned it.

« on: October 13, 2009, 05:56:10 PM »

All of you guys that have upper arm fistulas    how do you do it......   when I get hooked up to D   I cant bend my arm at all without fear of infiltration.....  I see others who have the lower arm and they can move their hands and arms , use them to hold books, or whatever....  I was told that it would of been  nice if the fistula was or will mature farther up the arm to get away from the bend in my arm.....  but the lines are looped so that I can not bend my arm..... hours not moving your arm is Hell......     SO    how do I get my fistula to get bigger farther up my arm..... do I need surgery   do I need replumbing....... 
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
iketchum
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« Reply #1 on: October 13, 2009, 06:10:15 PM »

mine is in the crook of my arm. It bothers when I am on the computer and read a book. It is less than a year old so it is still growing.
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Rerun
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Going through life tied to a chair!

« Reply #2 on: October 13, 2009, 06:16:42 PM »

Mine is in my upper left arm and I'm scared to death to move it so I don't.  I have a pillow that I put my arm on and I just lay there and watch a movie or sleep.  I don't move.  Needles in my arm!  I'm not moving an inch!

                                           :flower;
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monrein
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« Reply #3 on: October 13, 2009, 06:25:52 PM »

I echo what Rerun said.  With my upper arm fistula I bought a medium sized buckwheat filled pillow that I nestled my arm into a groove I made in it.  That way I could be sure it didn't move.  Less tension in the muscles that way and easier to relax.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Bub
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« Reply #4 on: October 13, 2009, 07:51:47 PM »

My fistula spans the crook of my arm.  Forearm is arterial and upper arm is venus.  I have had many problems with my fistula with 7 surgeries since Febnrary.
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Brianna!
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I met adam lambert for my make a wish!

« Reply #5 on: October 13, 2009, 07:59:58 PM »

I keep my arm as still as possible. But that never works out well. I end up having to keep my arm like propped up, cause otherwise it gets so sore! I had a pillow that I had my arm on, but that made it more sore for some reason. So I just rest it on the chair arm thing. I don't really know what else to do to make it not sore...
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tyefly
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This will be me...... Next spring.... I earned it.

« Reply #6 on: October 13, 2009, 08:01:03 PM »

    buckwheat filled pillow........ sound so organic...... I like that.... I need something like that...... Thx Monrein for the suggestion......

       both Iketchum and bub......  that does not sound good......  that is worst than me....  one in the lower...... one in the upper......  oh boy....

                       sorry guys......

      ReRun   I am scared about moving too.....  dont want to infiltrate........    Its so hard for me to sit..... with out moving....    something I will just have to get use to.....   Pillow    maybe a memory foam pillow...... not sure   I will have to look around.....   I asked yesterday if I could just stand up and just stand there for some time   like a hour or so.....they told me no one is allowed to stand.....  except when they want your BP.......    Pillow.....  for my behind too.....  I think........
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
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